Morning Chris

I am pleased you have been doing Good with your CDT I also did good with that apart from being tired and having to go on sick?

Good Luck with your Harvest and if you do same as I it will all be over in one day 😎

Tom"Onwards and Upwards" x

Hi Vicki

Slims is on the left,as he is often the passenger in the car,it did rub the line a lot when we did the 3 hr drive from London,It looked a bit red but not infected,the whole area goes red,plus hot with infection,Slim had a little pus on his,so took antibiotics just incase,if you catch it early,it saves a lot of problems,I kept spare…[Read more]

Morning Vicki and Colin

I hope you both slept well? Four Injections per day sounds good enough.

Hope all goes well stay strong.

Love to you both

Tom "Onwards and Upwards" xxxx

Hi Vicki and Colin

Sorry its still not worked out and I do feel for you and Colin, we all want it to happen yesterday when we try and Mobilize the cells and not drag on longer 🙁

When I had my GCSF's I had two injections every morning is Colin having two injections or just the one??

Sending Love and Hugs for you both.

Love
Tom…[Read more]

Hi Vicky
Sorry things have not gone to plan,at least you know he might be able to try the other injections so do not get to down.
As for the Hickman Line,Slims went in on the 23 April and its still in!!!!! originally they said it will not come out until his platelets are over 75,and they are only 50 odd.Its just the flushing through every week…[Read more]

Hi Charlie

I live not far from Dover and my husband is treated at local hospital,we are lucky that we have the trials in SE Kent.Slim had to go to Kings for his Stem Cell Transplant it is the nearest for us.
I can only tell you the care was excellent,they are very experienced,and have some of the top myeloma specialist it seems to me a good…[Read more]

Hi Tom and Helen

I know people fall into different degree,s of MM and Slim started off in a very bad place,It still took time to get AA plus disabled badge,Which I thought at the time was bad.IT did eventually come through,and helped us in many ways not as an extra perk,but money spent making like a lot easier for Slim.

As a lot of you know…[Read more]

Hi Eve

I get nowt zero zilch I am just pleased my company has gave me a job I can do and that brings in some money 😎 oh got blue badge and a bus pass and am only 57 years young :-0 the bus pass gives me free yep free train fare from Scunthorpe to either Cleethorpes or the other way and that is as far as Doncaster:-D and free bus rides :-D…[Read more]

hi Scott

glad to see you are ok did you have a good holiday in spain, is the golf going well. I chose to go the vein way if i have to (fingers crossed i can hang on) because they said i could be trained to used the machine at home so I though 4 days off was better for me
Keep well:-)
Love Jo x

Hi Tom
Just a quick question do you get DLA.???
Were would we be without your cheerful face,I am sure you are going to be one of the lucky ones and still going down to your club until your 100 years,They might give you free drinks by then .Love Eve

Hi All

Eve I applied for AA in 2009 whilst I was still bald(er) and still having treatment not long after my SCT mine was refused :-S and I thought How Bad do I have to be to get AA if I am diagnosed with a terminal Cancer and they say No Thanks you can walk and cook Etc Ext >:-(

But trust me Folks that Pension Will be mine am not letting…[Read more]

Hi Michele

A warm welcome to your Forum.

And you have been through it all and on your own well done. and you and hubby are correct positivity is best (well it is for me).
Good Luck and may your remission be a long one 🙂

Tom "Onwards and Upwards" xx

Hi David and Charlie
may be i should have said you are entitled to apply for AA,but you have to make sure you fill the square boxes with square pegs not round ones,8-)

Attendance Allowance is what it says if you need someone to attend you because you can not do things for yourself,may be just in the day or during the night.there are 2…[Read more]

Hello Dee

I was admitted to hospital with pnuemonia and renal failure and what turned out to be MM i had cdt from the start and it was touch and go with my kidneys i did not have dialysis it may come in the future but at the moment my kidneys function between 15 and 20% I have been in good partial remmission since april 2009 as long as your…[Read more]

Hi Di
The person I was thinking of goes under Clucky,so if you find the posting it should tell you a bit more about his treatment,its his wife who does the posting Eve

Hi Paul
The smell is enough to put you off sweetcorn for life,the funny thing was Slim could not smell it.
Eat as much as you can as it will not take long for you,to go off food and drink:-(
Lots of under wear you can just through away,its just so much hassle trying to drag you drip to the loo,so if you can get enough fluid inside you,it will…[Read more]

Hi Charlie,

Welcome to the forum but I wish you were not here.

This is a confusing time… and frightening, with no option but to climb on board the treatment wagon and move forward to a better place.:-)

Yes, there is a better place but you have to be treated to get there. This is an excellent forum with people way ahead of you, just in…[Read more]

Hi Kevin,

CDT worked very well for me bringing my light chains from 3,500 to 0 in 3 Cycles… I completed the 4th to make sure and then had my SCT 4 months later.

I have regretted that decision ever since as I was still in full remission with excellent BMB results when I started my SCT. I wanted to wait until the first sings of upward…[Read more]

Hi Tina,

Plateau reached, SCT to bring it home and remission served… hopefully a very long and healthy remission at that.:-)

Enjoy your break and relax as much as you can.8-)

Regards

Dai.

Hi Paul,

Like many here I believe that your age, general fitness and most importantly your positivity will help you through the process with room to touch the sides.8-)

4.2 means enough in cold storage for SCT 2 at a later date…. is this what they have planned?

The very best of good fortune and try to stay in touch if you are able.:-)…[Read more]