Hi Gill
Have to reply this way as no E mail address,So glad things are as well as you can expect them to be.
Hope you manage,what you both have planned.
You were just constantly in my thoughts with not posting,and you often see on here people just fade away.
Due up at Kings on the 8th.Not looking forward to the journey.EVE

Hi Dai
I can only comment about when Slim was on CTD,then VCD.
No outward effect at all,never even put on weight,but as you know taking large doses did disguise infection,and made him think he new best,insisting he was going home,when he was on his way to ITU!!!
Once I new how they effected him,I was able to relieve some of his side effects,by…[Read more]

Hi Dee,

Thankfully I have never suffered with kidney problems, although my Myeloma, the Bence Jones (light chain) Myeloma, is supposed to be 'high risk' for kidney problems.:-(

In a nutshell there are two main kinds of Myeloma:

Heavy Chain: Measured by the amount of Paraproteins in the blood.

Light Chain: Measured by the amount of…[Read more]

Hi Dee
Just popped in to say hello,and wish you well.

I cannot help you with this there are a few people on here who have had kidney problems,I think there is a chap in the west country,who plays in a band,I know he had SCT even though he was having treatment for kidneys,if i am right he went on to have a machine at home for his kidneys.So do…[Read more]

Hello Joe
Glad to see you are getting on with your life and hope you are not working to hard at uni,that is what your mum and dad would have wanted for you,how is your mum coping,bet she misses you both.!!

I hope its your mum cheering you on at the finishing line,and remembering your Dad,Its very hard the first year,so keep your chin up and…[Read more]

Hi Mike

I remember that feeling of limbo very well. I think a lot of it was shock in my case and I used to feel sick with worry for a week before every appointment with my specialist – as things settle down though and we got to learn more and more about what was going on we got into the routine and things seems less chaotic.
Please don´t…[Read more]

Hi Dee

I am sorry to hear your dads going through a rough time with the treatment, I do hope your dad isnt giving up and am sure its hard for you all at this time.

Stay Strong not only for your Dad but yourself.

Love and Hugs to you Both

Tom "Onwards and upwards" xxx

Hi Vicki and Colin

Well thats a bugger am sorry to hear Colin didn't get any 🙁 but I know its easy for me to say but dont worry it will all come to fruitition soon, they just wont stop and it all adds up and will stay in the blood stream waiting for the rest to mobilize 😎

All the best and hope the little blighters are soon out.

Love…[Read more]

Hi Vikki
Hope Colin is home and resting,I think we all go a bit over the top when we realise,some one you care about could become seriously ill,so we do are best to keep everything clean.It is a bit of a worrying time,just do your best,and make sure food is thoroughly cooked.Love Eve

Hi Scott,

I am on Cycle 6 and my light chains have yet to settle which is a bit disconcerting but while they are yo-yoing up and down they seem to be staying within the same parameters as the beginning… so my consultant 'is not panicking'. I asked her about my Dex dosage and she said she won't consider a reduction until my light chains come…[Read more]

Hi Vicki your more than welcome 😀 gosh I wish I could Blush?? Lol.

I hope Colin got home today? as for the paranoia about infection and stuff I went out and about the same week I came home after my SCT and folk knew not to come near me if they were diseased ha ha.
Keep fit and rest often Vicki am sure you need it also

Love and…[Read more]

Hi Charlie

A warm welcome this site is now yours so use it when you want 😀

I know nothing of the trials I was Diagnosed in Jn 09 had 5 Sessions of CDT then straifgt into SCT and now am pleased to tell you I am still in remission 😎

Good Luck in your Road to Remission.

Great Photo BTW 😉

Tom "Onwards and Upwards" x

Hello Joe

what a brilliant thing to do i know your dad will be with you every step of the way and though your whole life he will be the angel sitting on your shoulder
Love Jo x

Hi Paul
It might seem like a long time to you,but if you look at the big picture its just a blip,I think you will sail through you are young healthy and fit,but do not forget to listen to your body.

As Debs says its not a walk in the park but it,s do,able.

The hard work will be when you get out,mind over matter,but you will do it Paul,Good…[Read more]

Hi Paul great news M8 good position near ready for transplant 😀 I had my collection in Leeds Seacroft Hospital I think it was.

Good Luck with it all

Tom "Onwards and Upwards" x

Hi Joe
Great Job M8 I hope you run it in record time. I am same as you your Dad will be with you all the way

Tom xx

Great news Paul
after all the set backs you are ready to go I wish you the very best of luck for now and the future
Love Jo

Hello Charlie

welcome so sorry you have had to join but you will find such help and support here I would not have got through many times without it I cannot tell you about treatments except CDT many are not open to me as MM caused me to have real failure it has worked quite well for me as a stem cell transplant is not an option for me. I have…[Read more]

Hi Charlie

Welcome to the site,Its my husband who has MM.

Yes it is very confusing to begin with,but you soon get use to all the information,you have got books on Myeloma my advice is read a bit at a time,it will become the norm soon.

Lets start with transport,you can get financial help,also you do not say your age,but you will be…[Read more]