Hi Dai
Have a nice weekend,summer is suppose to be on it,s way;-)Eve

Hi Mike
Just a welcome to a exclusive club,be it that you are a patient carer family or friend.It is mind blowing when you are first told even if you are expecting it,I could tell you not to worry,but you will,your mind will still be awake in the early hours of the morning,but you will over come all this,and find out it,s not the end of the…[Read more]

Back to the Day Case Unit for blood tests and check up. Eveerything's back to normal in the stomach and bowels, my HGB remains at 9.0 (10.1 on Monday, 9.0on Wednesday) but it should start to pick up now that I am returning to normal. The good news is that my Neutrofils are improving (1.5 on Monday, 2.3 on Wednesday and 3.5 today) todays 3.5 is…[Read more]

Hi Everyone
Well its week end again 😀 and am told that the sun will be shinning this week end :-S 😎

Eve you know i have your sense of humour and i think some one has mine :-/ as my young bride (Elaine) says I have no Sense :-S ((am sure she dunt mean it lol)

Now as for kids, I think kids know more than they let on, when I had my…[Read more]

Hi Stephen,

Unfortunately it looks like I lost my bet which was for Tuesday 17th and your first show was actually Monday 16th with that 0.03. Still, I'm happy to lose because it got you home a day earlier. Your readings will go from strength to strength each day now but please take it very easy for the first few weeks at home.

Surrounded…[Read more]

Hi Alison
Kids are lovely,I could use a few sayings to describe Slim at the moment,but I do not think it would go down well on site plus,I do not think people (except Tom ) get my sense of humour,what I found very funny is my 2 granddaughters came to see Slim,and on the way out,asked there mum could they kiss him,they are 14 and 10??.I thought it…[Read more]

Hi Everyone

Looking back at Slims time on Dex during ctd and velcade,he started with 40 reduced to 20 after pneumonia and blood clots on the lungs.

Dex 40,hell to live with,played tricks with his mind plus hid how ill he was!!!
Dex 20,I had my Slim back,would have liked him with more energy and the will to eat!!!
Keith 4 days on 40 of Dex…[Read more]

Hi Everyone

Well all this is thought provoking,even in the middle of the night or in my case early in the morning:-P
I think you have two different levels of people with Myeloma here!!!!
Dia can I put you in the latter group of a very limited life span!!!{ no offence is intended}:-)
Then Helen who has taken CRD as first line…[Read more]

Hi Amelie,

John may get quite a good remission from his SCT and after that there is Velcade, if he hasn't already had it, Revlimid and the a number of now trialled but by then licensed shorter term treatments which will take him into end of life procedures… but that could be years to come. 😎

Reconcile yourself to the fact that MM is…[Read more]

Hi Keith,

You are of course completely right… all MMers deserve the right to be treated equally but we know for certain that that is most definitely not the case. It is not a deliberate course of action, I know that. It is, in most cases a result of an unfair post-code lottery. Those authorities with higher funding tend to produce…[Read more]

Brilliant.

I am glad you are out and at home. As Woody Guthrie said:

[b]'Take it easy but take it'.[/b]

Now… for the important Q. When did you first achieve 0.1 or more? I placed a considerable bet with myself that it would be Tuesday the 17th.

I hope I am right because I will treat myself with my winnings 😀 but either way I…[Read more]

[quote]'I may look ok but inside I'm dying'[/quote]

Thanks Andy… I suppose we all have felt like saying that at one stage or another… but because I believe in the law of attraction… i.e. we get what we think… these days I prefer to think:

'I may look ok but I have a terminal disease… but a terminal that is several stations down the…[Read more]

Trish I intend to do this one and the next cos my young bride (elaine) told me I was 😎

Let us know what you are told re vaccination

Love
Tom "Onwards and upwards" xx

And a well done to you Stephen I also was a 16 dayer 😎

Now you keep fit healthy and bug free

Tom "Onwards and upwards x

Hi Everyone
Well I for one am glad that this subject is being openly talked about.
First may i say Amelia on Myeloma Trials which you should find info on this site,after SCT you are randomly picked for maintenance or no maintenance,Helen was luck to be picked.
Helen we need more people like you to get on your soap box,because with it comes…[Read more]

Hi Mari & Ali,

As someone who spent 5 days on the harvester plus 2 midnight returns to the hospital for Plerixafor injections my sympathy levels are muted. I was more than happy to spend the time on the machine and the midnight flits, even though I was tired and each trip was a 40 mile round journey. I don't mean to sound harsh but my mantra…[Read more]

Hi Mari and Ali
I hope you do manage to get away,will do you both the world of good,school brakes up soon,so that will be a rest for you Mari.

I agree Ali your mum is very brave,must be holding a lot of those emotions in,SCT is not only body draining it takes you in to another world of emotions,so your mum is holding her own,by taking control…[Read more]

Hi Dai
Well I would agree,and can see what you mean concerning damage to the skeleton,as you are aware Slims skeleton damage is extensive,but at least no compression,so the ability to put one leg in front of the other is there,even if there is pain.

My concern is you attend the hospital,bloods show no markers of illness,but as a carer I see a…[Read more]

Hi Helen
Well to some extent I would agree with your outlook concerning second cancer,but I also think it depends on what second cancers are rearing there ugly head,for example percentage wise are they blood cancers,they must have some dater on it ??????
If for example it was causing (PCL) using that as an example!!! as we know of at least one…[Read more]