Hi Eve,

Last winter Janet had two colds, one with a cough that seemed to last an age but I didn't catch either of them. I don't understand why I didn't catch her colds but I am grateful that I didn't.

My stomach bug is/was just that… our Grandson, who stayed with us last Friday has been off colour these past few days, complaining of…[Read more]

Hello Dai
I like the old saying ( you are as old as you feel ),I think this should apply to health, (you are as good as you feel )
Your bug or what ever just might have been that, a bug,that even without the MM might have knocked you off your feet anyway.I have just had the same with all the symptoms you mentioned.
As a carer I look at…[Read more]

Thank you Mari.

II suppose I am used to seeing it bustling and busy but now it was 5:30pm and the Haematology Day Case Unit was eerily quiet. I was sitting in the waiting area near to the main entrance, waiting for Janet to pick me up, when someone came out of the lift. It was my consultant, head down looking lost in her thoughts. She looked…[Read more]

Hi
Thank you so much for taking the time to let us know. I´m not in that position yet as my first is still holding out but it had been worrying me about what it might be like when or if I have to have another.
Hope all goes well for you both.
Love Carol xx

Hi All,

I was determined to start Cycle 6 with a positive outlook and with a healthy approach and a new regime of getting out into the fresh air and getting out generally.

Monday was good,:-) Tuesday was better… 😀 but I spent this morning monitoring my temperature because I woke with a temperature of 38.3 and a rumbling, grumbling…[Read more]

Thank you Helen 😀

Love Tom xx

Hi Trish

this is one Q I asked after my SCT in dec 09, I was told that I dont need to have any just the flue and they gave me a phnumonia one (check me spelling lol)in 2011 and said that would last ten years?? so me being me I said your husband (my consutant and my Dr are married to each other) said MM has a five year life expentancy in 2009…[Read more]

Hi Etta

I am so sorry to hear about your sister, I send my condolences to you and your sisters family and Friends.

This site is not just for MM and its bits and bobs am sure we all agree this great site is for everything to with our lives to share and be shared, our ups and our downs.

And Etta am sure you dont know how to ramble 8-)…[Read more]

Good Afternoon you all 😀

Well done that Steve, I know you are hanging on to them Steve but now is the time to give them over Honest the hospital will look after them till you are ready to have them Back Lol.

Keep shoveng those stems out into your bloodstream.

Tom Onwards and upwards x

Hi Mari
I know110 for Platelets is low,but Slims have never been above 50,so I have given in worrying when he walks into a door or knocks himself,apart from wrapping him in cotton wool,I cannot do any more,and my attitude is if internal bleeding is the danger,why is no one very concerned.!!!!

I would agree they need to be very stubborn just to…[Read more]

Hi Etta,
I am sorry about your sister,I know a few on here who have had the same thing going on in there lives Jean lost her brother,I lost my Grandson,so we do understand how you feel,myeloma is hard enough without a death of a loved one.So you are entitled to feel low,we can only off sympathy,and a realisation that we do know how you feel Love Eve

Hi Mike

Well as you know,the patient does not get much choice,it,s either trials or treatment as laid down by NICE and all of this is still a post code lottery, If you are lucky and can find a Haemotologist that has a special interest in Myeloma and also has some perspective about the awful damage and pain it causes,physically and…[Read more]

Hi Amelie
Well i hope John has a good recovery,and starts to feel better,I do not envy you a winter in Denmark,but I suppose as we are use to wet weather you are use to the snow and cold,my husband spent many a winter in Denmark,one of his hobbies,was blowing wholes in the ice and diving,use to be in the Marines!!

I was interested in your…[Read more]

Hi Andy

Good luck with the Radiotherapy,
As to the catheter,well the question must be why did they put it in????loss of control or your condition at the time it was put in?????.
There seems to be grey area,s with your low back,chemo works on any form of cells,they know chemo has not worked to reduce your cells,so why have they not given you…[Read more]

Good luck with the radiotherapy Andy. I had extensive radiotherapy to blast away a couple of vertebrae that had crumbled onto my spinal cord… which was successful and got me walking again.8-)

A year later I had one single shot on my left shoulder which was painless and effective. I have to see an oncologist next Tuesday to consider a blast…[Read more]

And same from I and i wish you both a very very long remision.

Love and Hugs to you both

Tom "Onwards and Upwards" xxx

Hi All

Am Pleased it works for you David 😀 having those bottles in the fridge and facing you every time I go for the lemonade for my Vodka is a great reminder Lol

Keep the water flowing 😎

Tom "Onwards and Upwards"

Hi Dai
Well you know this MM lark more than most I would say and am sure you want the levels to drop but a straight line is good so far 😀 , you will have to make sure you are BUG free and those around you are also bug free or just wave through the window at you.

Keep strong My Friend.

Tom "Onwards and Upwards" x

Congratulations to you all Kids let alone Grandkids enhance our Lives 😎
And I should know am on our sixth 😎

You will need a Cuddle chair like mine 😀

Love to you all and enjoy your new Granddaughter. xxx

Hi Mari and Steve

Well no rush to drag them out they must be comfy where they are 😀 so they will soon settle back in when SCT gets going 😎

Hope its a good phone call today

Love
Tom "Onwards and Upwards" xxx