What a relief for you both Mari!

It may mean a few extra days and a bit of moving about but it will be worth it when Steve's stem cell count reaches 2m. 🙂 😎

Dai.

Hi Liz and Kev
Congratulations on another granddaughter, Myeloma puts everything into perspective,for all the family. Also you appreciate the event a lot more when you thought you would only have the one grandchild.
I hope you have lots of first ahead as a family,first steps,first school,first boyfriend,and lots more. Love Eve

Hi Amelie

John is lucky to have enough stem cells for a second sct,and not have to go through another harvest,is any after treatment planned after sct. ??????

How long did John get from first sct to mm coming back?????

Am I correct you are based in Holland,do they have a criteria to follow or is John on trials,or is he treated more as an…[Read more]

Hi Mari & Ali,

Plerixafor is very expensive (not sure now but I was told once and if I recall correctly more expensive than gold).:-D

The harvest machine does a series of cycles and then stops to store what it has collected… so the more days on the machine, the more bags you have. Each bag contains your collected stem cells plus a…[Read more]

Much joy Liz & Kev,

I have a fifteen year old Grandson and I love him very much but I did not see as much of him growing up as I would have wished due to distances involved, although now we are only 20 or so miles away and we have grown much closer.:-)

But our other two (6 & 4) are almost on our doorstep and we can see them as often as we…[Read more]

Hi Mike
This is just a welcome to the site:-)

When I read your post,my own immediate thoughts were so selfish,one was we will have our own resident expert,as this is what you would become,you might not know much about Myeloma at present,you will learn,just to prepare yourself[just incase]:-P
Then my thoughts were for you as a person,and I…[Read more]

Hi Mari,

My initial harvest was cancelled when my Hickman Line leaked, giving me an infection, a week of being neutropenic and finally a replacement line… by which time all of the prep for my harvest, including my CSF injections and the chemoblast were null and void because I had 'missed the window'.

That was 3 weeks before Xmas… so they…[Read more]

Hi Keith,

I am glad that your news is relatively good… and that your team seem to be sorting out your Dex intake.

I asked my consultant today about my Dex intake (20x2mg once weekly) and she said she would like to keep it at that for the present until we see some definite movement downwards with my light chains. That agreed I…[Read more]

Hi Ali

Na dont need heads to roll when they are looking after me lol.

But yes I can have another harvest and SCT if needed and mine went well realy so I wouldn't have a problem doing it again 😀

Love
Tom "Onwards and Upwards" xxx

Well done to your Mum and as you say no pain no gain 😀 thats it now just a wait for SCT date now. I cant remember how long it was from one to the other for me??? just knew it was getting a room free 😀 hope they dont do what the did with mine? I also had enough for two but they put them into three bags?? one not enough so no point in leaving…[Read more]

Hi Keith
Well done My Friend, did you askif vodka is Ok for you to keep your fluid intake up 😀

Keep it going good luck with your next cycle 😎

Tom "Onwards and Upwards"

Thank you its great news and we are still buzzing? but I think we are a pair of buzzers anyways Lol

Love

Tom and Elaine xxx

Hey good luck to you all today am sure it will go well

Tom "Onwards and Upwards xxxx

Thanks folks am also hoping I get chosen to represent the MM lot Lol.

As for Elaine getting to the front I told the Young Bride that she cant go as it will be filmed in HD and a close up wont look that good?? (i get my jaw wired tomorrow lol)

Thanks for your well wishes and watch this space 🙂

Tom "Onwards and Upwards" xx

Hi Keith

Well you have had it all the runs and the block?? am pleased though that things are moving along nicely.

Keep at it M8

Tom "Onwards and Upwards"

Hi Karen

Am Sorry I cant help it would be remiss of me to say yes or no as I am not a Dr, and it would only worry you more sorry, but whatever it is I do hope you are soon sorted with a name and tag to it so as the meds can start.

Hope that soon

Tom "Onwards and Upwards" xx

I can only wish you the best of luck Tom… I am sure you have exactly the sort of personality they want on the show… it would be great to see you… and even better if you won some big money.8-)

Will Elaine be on the front row to guide you I wonder.:-) 😀

Dai.

Hello Suea

this is terrible these people didnt no shouldnt be consultants see if your GP can refer you to one of the teaching hospitals Kings or UCH both in London but centres of excellence the one at UCH is jointly run by McMillan
you could also contact them direct very best of luck let hope next time we hear from you it is better news
Love Jo x