DaiCro replied to the topic Plasma cell leukeamia in the forum General 14 years, 1 month ago
Hi Angie,
I am so glad that your Mum was able to request the start of palliative care… It means she was fully aware of her situation and despite her discomfort and fears she was able to dictate her next step… a very brave and very independent woman.
I hope she moves on with peace and full knowledge of the love surrounding her. I am…[Read more]
BADGER replied to the topic Rev/Dex Has Started in the forum Treatment 14 years, 1 month ago
Hi Keith
glad you had a great holiday there will be many more I am sure fingers crossed for the new treatment hope you dont stuggle too much with the DEX
lOVE jO X
tom replied to the topic Plasma cell leukeamia in the forum General 14 years, 1 month ago
Hi OnlyMe
I am sending Hugs and prayers at this difficult time your Mum and Family are going through, please stay strong and I pray your Mum stays calm and is pain free.
Love and Hugs to you all
Tom ((HUGS)) xxxx
tom replied to the topic Rev/Dex Has Started in the forum Treatment 14 years, 1 month ago
Hi Keith
Welcome back 😀 am sure like us all that has been away when we are back it soon becomes a distant memory Lol
Good Luck with the rev and dex and as for the injections :-/ I for one wouldn't look forward to that :-S but if it has to be done its done 😎
Good Luck with it M8
Tom "Onwards and Upwards"
DaiCro replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 14 years, 1 month ago
Hi Judd,
You paint a good picture of the pain.:-D
I was right back there with you. Mine was a very similar story with two collapsed vertebrae that had crumbled into small picees and were pressing into my spine… and my GP, after months of agony and 10 weeks sleeping upright in a chair, sent a chiropractor to apply massage and pressure…[Read more]
eve replied to the topic Rev/Dex Has Started in the forum Treatment 14 years, 1 month ago
Hi Keith
So glad you could enjoy your holiday with out treatment hanging over you.
Would be grateful if you keep us informed of how you get on with treatment as it is nice to know what is in the pipeline and how it is working.
Pinching Toms saying Onward and Upward.Eve
eve replied to the topic Plasma cell leukeamia in the forum General 14 years, 1 month ago
Hi Onlyme
Its harder on you and your family than on your mum,The driver will take away the pain,and your mum is in a state of ease,I do hope by the time your mum is ready to let go,you will be ready to let her go.
I have been wondering how things were with you,but felt that you had enough to cope with,with out answering any post,but do not…[Read more]
DaiCro replied to the topic Cyclophosphamide in the forum Side-effects 14 years, 1 month ago
Drink your 3 litres a day Tina… and while on any sort of treatment add another litre or so. Also…spread your imbibing throughout the day… is pointless drinking like a fish up to tea-time and a then only a cup of tea or so up to bed-time.:-|
I often get high temperatures of 37.7/8, sometimes even 38 or just above… I am under strict…[Read more]
tom replied to the topic Channel 4 documentary in the forum Side-effects 14 years, 1 month ago
Morning Eve well as you know our Charlie has his 5 mins of fame on face book every time I post a photo he is on it (vain little devil) lol xxx
tom replied to the topic Channel 4 Documentary in the forum Treatment 14 years, 1 month ago
And I also am one of those that could tell wotsitsface where to shove it Lol
Have a good day Folks am up and ready for work 🙂
Tom "Onwards and Upwards" xxx
eve replied to the topic Channel 4 documentary in the forum Side-effects 14 years, 1 month ago
Hi Tom
My dog has had his 5 min of fame he was on TV,stardom did not go to his head8-),One in the family is enough:-P.
I do realise these people are young people doing research,but they are suppose to be intelligent,!!!!,Love Eve
eve replied to the topic Channel 4 Documentary in the forum Treatment 14 years, 1 month ago
Very well put Andy
I feel very much like you,.Eve
tom replied to the topic Channel 4 Documentary in the forum Treatment 14 years, 1 month ago
Thanks for that David think a few have been a tad upset with it here :::
http://www.myeloma.org.uk/index.php?cID=16917&ccm_paging_p=1&time=1340657058#msg16940
tom replied to the topic Channel 4 documentary in the forum Side-effects 14 years, 1 month ago
Lol Eve I forgot aint none of us in here able to do the TV Programe as we will all be here after the 12 month is up Lol.
And you are correct they should do one On Myeloma and why Nice take so long to release the drugs and why the drug Company's charge what they do 🙁
And am sure you are ready for more than your five mins of fame Lol…[Read more]
eve replied to the topic Channel 4 documentary in the forum Side-effects 14 years, 1 month ago
Tom
I doubt it very much,
They could do a good documentary on Myeloma,not someone dying of Myeloma.
But that would not get the ratings going as good as a documentary as a person who is going to die of Myeloma,and don,t forget they gave you a time limit to do it in a year LOL:-P
If they did a documentary on all the new and exciting drugs…[Read more]
tom replied to the topic Channel 4 documentary in the forum Side-effects 14 years, 1 month ago
And for those smiles I and Eve are eternally Grateful.
But would it do some good to be aired? it would get Myeloma out in the open rather than just a few thousands that know about it.
Its just the Gaul of the words that got me IE "[u][b]life-limiting illness[/b][/u]" and Or "[u][b]and have a short time left to live[/b][/u]"
We with MM are…[Read more]
eve replied to the topic Channel 4 documentary in the forum Side-effects 14 years, 1 month ago
Good for you Tom and all those people who live with Cancer.
There are some Freaks around LOL.
Still got NZ in are sight,but do not mind a bit of France,in Fact I would settle for any were,Love Eve
tom replied to the topic Channel 4 documentary in the forum Side-effects 14 years, 1 month ago
Lol Eve and do you know that is Correct I aing going nowhere this next 12 months apart from abroad on our holls Lol xxx
Love
Tom "Onwrds and Upwards" xxxx
eve replied to the topic A Postcard from New Zealand in the forum Off topic 14 years, 1 month ago
Hi Helen
it worked,but you have not said what beach it is or were!!!!
What amazed me about NZ every new turning had beautiful scenery, Would be out there again if we could,ONe of the good things to come Love Eve
tom replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 14 years, 1 month ago
Hi Judd
A warm welcome to you sorry you had to nip in, now lets hope they can nip your problem's in the bud and get you into remission soon.
Is the road Long? is tit a hard road?? I dont know you seem to have had it bloomin hard already 🙁 Its not a walk in the park but I had my SCT in December 2009 and am now in remission.
Good Luck on…[Read more]