Dear Sue I am so sorry to hear things arent going well , no wonder it has hit you hard. Please dont feel guilty , you certainly have no need. Michael can probably see how much you need a break too Try and be kinder to yourself Sue , you are Michaels strentgh and its bound to take its toll , but you do need time away frm myeloma and hospitals etc…[Read more]

Hi Dai

Its a bugger all this tem up and down but am same as you throw some more water down my neck and a few citemols and soon brings my temp back to normal 😀
Good Luck for the "Normal" before Monday 😎

Keep Kool and keep Calm

Tom "Onwards and Upwards"

Hi Eve and Slim

Oh dont do shopping lol hate it with a passion.

I was told to buy "Tight" Clothes as you dont have to Iron them Lol.
Slim will soon get better but it wont be next week I was a while before I knew I was better but stick with it and dont expect it too soon.

Love
Tom "Onwards and Upwards" xx

hello Sue

I get my husband to have me time I think its important so if i have an appointment that may take a couple of hours he drops me off he also goes fishing once a week this is important so do not feel guilty if you do he will feel guilty for taking up all your time
love jo x

Hi Tom

You have not walked down to Tesco,s and watched all these men standing there unable to decide on the washing powder to buy!!! Lol .I have a confession to make Tom I have not ironed for over thirty years and very seldom use the washing machine,Slim thinks I do not do it good enough!!!!,so that's the secret never be good at doing it.…[Read more]

Hi Teresa

I cannot think of better goals to aim for than the birth of a child and as we are. Both twitchers in a small way,it's lovely to see the birds in there mating colour,s not that we have any exotic birds around us,it's just nice to watch there behaviour.

At least they are keeping the Myeloma from rampaging which will buy you time,plus…[Read more]

Hi Sue

I understand were you are coming from but it will do you good to have a bit of me time,feeling guilty about it is natural.

I am very much the same I spend a lot of time in the hospital with slim,it takes me 1hr to get there,buy the time I get back my day is finished,buti am aware I will have to pace myself as I will not be. Much good…[Read more]

[b]Alert: [/b]

Where would we be without little niggles and interruptions? In a far happier place I imagine.

Yesterday my temperature clocked 38.20 and stayed there for several hours… on a Friday – again… but I didn't phone it in (as they insist I do) because there was no upward movement and my chest was clear… but I was having…[Read more]

Hi Paul

Sorry its not worked out SO FAR am sure we will have more bridges added as time goes on, stick with it and stay strong
and fingers crossed 🙂

Tom "Onwards and Upwards"

aww Sue I am sure its hard for you folk that are erm on the side lines and having to leave us MM folk alone to all the treatment, its a sad thing but it has to be done anm afraid.

You Time is somthing you want to do but cant because you wory too much about Michael.

Hope all is soon sorted out

Love and Hugs to you Both

Tom "Onwards…[Read more]

Hi Eve and Slim

Am sure Eliz will cope re the washing machine as my Young Bride has coped for over 36 years with a mere Male not able to use a washing machine? I fix it when its broke (if poss) and drag it out and take to the skip if i cant fix it so all I ask is the Young Bride is able to use it lol, and to be fair am same with…[Read more]

Hi Eliza

How an earth do you manage with a husband who cannot use a washing machine,!!!!

Teresa how are things going with you, I hope you and you husband are finding some quality of life,try to hold on to the thought the experts are not always right,some times you must have goals and dreams to hang in there.Slims goal is New Zealand,we have…[Read more]

Hi Teresa,

E-Mail received thank you… very interesting and very lucid, aimed as it is at the people who matter… us.

Many thanks again, I will keep an eye on any new reports/developments coming from Canada.

Dai.

Hi Paul,

I must say that you are very calm given the circumstances of your treatments so far but DT Pace certainly seems like a big hitter and you don't need to come down too much to start the harvest and SCT processes.

Also, just because your treatments were part of your frontline therapies doesn't mean that you can't try them again when…[Read more]

Hi Theresa,

I'd be very interested indeed.

dragondai@btinternet.com

Send away… and thank you very much indeed 🙂

Dai.

Hello Paul

sorry your treatment has not worked i dont know about DT PACE a lot of treatments are not available to me becauce of renal failure
good luck with it fingers crossed it works
love jo x

best of luck keith

i am sure you will get on holiday we have just got back from Skiathos had a good time you have go to for it,it will do you good good luck
love jo x

Hi Paul

Sorry to hear Velcade did not work,I think Andy G had the same treatment,may be it is an age thing as you produce more cels the younger you are ???

You must be feeling a bit down,it,s easy to tell you there is something round the corner but your options are getting reduced,I know some people have had SCT with a higher count might be…[Read more]

Hi Eve and Slim

Well Eve this post made me Lol (its just like having a baby lol)

And as for the water good lord I did struglle to drink the amount they wanted me to and the drip for me was far better, yep it was a struggle to unplug wrap cable up and find a FAST way to the loo (failed many a time but hey ho it gave my nurses a laugh to see…[Read more]

Hi everyone

Well Dai Slims mind set is never again,told him it,s a bit like having a baby will forget the bad bits,(no sympathy).

In Kings they keep them in for a month no matter what,so he has been warned as to drips,I can count three at this present moment plus pump,they do not do ice and do not encourage any food other than hospital food…[Read more]