BADGER replied to the topic SCT Underway in the forum Treatment 14 years, 2 months ago
hello Eve
good to hear slim is not doing too badly fingers crossed all keeps going that way and he gets the remission you both deserve. i hope you can get to mettys memorial and you dont get too upset this is a bit like teaching you to suck eggs as i am the worlds worst weeper i get emotional at the drop of a hat kind regards to Slim
Love Jo x
DaiCro replied to the topic moving on in the forum End of Life and Grief 14 years, 2 months ago
Min,
I can only take a wild guess of what its like for you on your side of MM… so I won't even bother to try.
Suffice to say that I truly do care about your well being… your physical and mental health and your coping levels.
I know you are a strong independent woman but the 'independent' part has taken on a new meaning, with a…[Read more]
DaiCro replied to the topic SCT Underway in the forum Treatment 14 years, 2 months ago
Hi Eve,
I hope all is as well as can be expected at this stage. One tip… try and encourage Slim to take on fluids. I know it is difficult, even water tastes vile and is difficult to swallow in anything other than small sips… but the alternative is the fluids by IV… which means being attached to the pump and stanchion. This means that…[Read more]
DaiCro replied to the topic A question………difficuties with leg movementsL in the forum General 14 years, 2 months ago
Hi Peggy,
I developed Peripheral Neuropathy following my CDT (Cyclophosphamide, Dexamethasone and Thalidomide) frontline treatment, exacerbated by my Velcade treatment. It still remains with me although, like my Tinnitus, I manage to blank it out for most of the time. But I too have difficulty lifting my legs… I know I have extensive bone…[Read more]
DaiCro replied to the topic Keep Calm & Carry on in the forum Treatment 14 years, 2 months ago
Jean, Eliz, Theresa, Jo, Tom & Rosie,
Thank you for your lovely supportive replies. 🙂
Yes, I am trying to be honest and reflect how I am feeling but it does sometimes also feel a tad self-indulgent… but I'll decide to be kind and allow myself that small sin. 😉
Today was a bump and run day… being DexDay TM and all. 😀
I have…[Read more]
tom replied to the topic Keep Calm & Carry on in the forum Treatment 14 years, 2 months ago
Now aint I said that before The "You can do it Dai, if anyone can then its you" and am as pleased as punch that you have proved me correct, way to go Dai Onwards and Bloomin Upwards, am sure you have more of the "Whatever it takes" in you than I have and I aint gonna let it take me without the Fight.
Keep strong Dai and keep fit 😎
(shed a…[Read more]
eve replied to the topic Hello to All in the forum Newcomers 14 years, 2 months ago
Hi jacque
My husband is in Kings having hit SCT at this moment,just getting his platelets, dong fine but is having problems eating,has come out with a rash on his legs but it does not seem as bad as I expected.
I think he has his low points in the morning,build up of throat over night plus feeling sick and rushing to toilet,expects to be…[Read more]
BADGER replied to the topic Scilly Isle in the forum Off topic 14 years, 2 months ago
Hello David
I have not been there but have seen films of them it should be a lovely holiday I believe there are some tropicals gardens I think they are on an island called Tresco
hope its sunny all the time you are there
Love Jo x
BADGER replied to the topic Keep Calm & Carry on in the forum Treatment 14 years, 2 months ago
Hello Dia
I have always liked dexys my daughter was taught guitar by their road manager so we met them a couple of times
Regards Jo x
DaiCro replied to the topic Scilly Isle in the forum Off topic 14 years, 2 months ago
I regret that I have never been but by all accounts from friends it is a delightful place for relaxing and taking it easy in the very best of convivial settings.
So… you must enjoy yourselves, you must go easy and take it slowly and come back recharged and essentially happy.
Simples.8-)
Dai.
DaiCro replied to the topic Keep Calm & Carry on in the forum Treatment 14 years, 2 months ago
Thank you one and all.
I am a strong person… with some of the things I have had to put up with in my life it was either be strong or fold up like a piece of paper until it was physically impossible to fold any more.
I will cope with whatever happens in the future but somehow this potential early Rev & Dex failure became personal… it was…[Read more]
BADGER replied to the topic Keep Calm & Carry on in the forum Treatment 14 years, 2 months ago
Brilliant news Dia so it was a blip a good job you decided to stick with it I hope you can have a great nights sleep hopefully you and Janet can now relax a bit
Big (((Hug)))
Love Jo x
DaiCro replied to the topic I am doing the Manchester 10k run on Sunday! in the forum Off topic 14 years, 2 months ago
Good for you Wendy!
An ex-athlete I have now given up running for trundling…. I can get up quite a head of steam when I start my trundling… But I have the same stopping distance as the QEII!
Take your time and avoid any injuries… But enjoy your efforts and the rewards.
With you in spirit.:-D
Dai.
DaiCro started the topic Keep Calm & Carry on. in the forum Treatment 14 years, 2 months ago
After two weeks of shredded nerves we attended our consult today to find out if it's carry on with Rev & Dex or move on to the Bendamustine trial.
Our consultant had to look up my latest Freelight test (apparently it wasn't back this morning) and she looked up and said ' the Revlimid is working'!'
My kappa light chain reading started at 311…[Read more]
BADGER replied to the topic I am doing the Manchester 10k run on Sunday! in the forum Off topic 14 years, 2 months ago
Hi Wendy
good luck for the 10k I am sure you will complete it running or walking it will be an achievement
Love Jo x
BADGER replied to the topic A Postcard from New Zealand in the forum Off topic 14 years, 2 months ago
Hello Helen
sounds wonderful I hope you holiday is marvellous you deserve a really good time
Love Jo x
BADGER replied to the topic What a day in the forum Off topic 14 years, 2 months ago
Hi Scott
I agree it was a great match kept us on the edge of our seatrs until the last kick I think they should give drogba a new contract he came into football quite late so he should be good for another season didnt see the west ham match as we havnt got sky but I am glad they are up Sam allerdyce is a good manager and he has proved…[Read more]
eve replied to the topic Race for Life completed and photos attached in the forum General 14 years, 2 months ago
Hi Sarah and Henry
Well done to both of you,Henry is doing very well it only seems like the other day you joined the site,and there you are SCT over thinking of going back to work and doing the race for life.
Well done keep the good work up,Eve
eve replied to the topic A Postcard from New Zealand in the forum Off topic 14 years, 2 months ago
Hi Helen
A beautiful place and its nearly winter there,I enjoyed the peace you do not have the flight paths or the motorways.
Slim and I next year,hoping to do Christmas but will have to see.
Have a lovely time. love Eve
DaiCro replied to the topic A Postcard from New Zealand in the forum Off topic 14 years, 2 months ago
Belated Happy Birthday Helen,
Have the holiday of a lifetime and enjoy every moment… with plenty of pictures to share when you get back.
Much love, 😀
Dai.