Hi Graham

Sorry you are not getting on well with your Dr 🙁 but i think that MM might scare them (i know tel me about it lol)

But I am blessed with a Consultant that told me I dont need to go to the Dr for MM if I feel I have a problem I just have to phone the Ward up for advice or help, and that is what I have done.

Good Luck on your…[Read more]

Hello Antionette

Its ok to cry your life has been turned upside down Why me! I am still asking that I still cry sometimes, mostly at night that seems to be the darkest times
you are still young and there are now so many new treatment being discoved my consultant is hopeful that in the not to distant future MM will become a chronic illness that…[Read more]

Hi Pilgrim,

Your GP is vital to maintaining a link between home and the haematology team at your hospital… for drugs, home-help (when needed) and general communication if or when you apply for benefits.

But… the main players in your diagnosis and medical development are you and your haematology consultant. The consultant will keep your…[Read more]

Hi Scott,

I followed the whole day with interest… even though none of my teams were involved this year.

It was a great match with Chelsea, and Drogba in particular, providing a Man City type comic book ending… unbelievable.

A truly remarkable year for football in the UK, full of incidents, comebacks and fantastic melt-downs and…[Read more]

Hi Roz
So glad to see you are moving on with your life,it is hard when there is so many things around you,but it,s true what they say life goes on,children seem to bounce back,they have there own friends they can talk to about it and it is hard for anyone to take on anyone,s grieve .

Although i am here to help with my daughters grieve,we do…[Read more]

Hi Antoinette

I am really sorry that I have to welcome you to this site – but a very sympathetic hello anyway.

I understand that you are absolutely shocked to your core but you have found here a very good site where you will find lots of the information, help and support your going to need.

If it helps, I was diagnosed with this rotten…[Read more]

Hi Michelle,

I am so sorry that the time had to come to say goodbye to your Mum but I am glad that she was surrounded by love and had a peaceful end. Our best wishes to you and all your family for next Thursday and beyond.

With fond regards:-)

Dai & Janet.

Hi Sarah and Henry

Well done on doing the race for life, I remember my young Bride (Elaine)doing it the year after she had her op for breast cancer and the year i was told I had MM it was a very emotional time seeing the Number on her back with the words "I race for My Husband and Myself" gosh i can feel tears as I write this bugger…[Read more]

Hi Antoinette

Hey am Sorry you are teary 🙁 go my way girl (it works for me) cry in shower you dont notice so much and more important I felt that if I have this MM it wont take me so I told my Consultant I dont want to wait (he did say we could pospone treatment) and i want to throw whatever he could while I was still young and fit (ish lol)…[Read more]

Hi Antoinette

A Warm welcome to your site :-D.
Sorry you have got MM I was told in 2009 had 5 courses of CTD then stem cell transplant December 2009 am now in remission and doing well, am a iccle bit older than you am 56 soon to be 57 😎

The Harvest and return of my Stem cells was all done through my Femoral line, and to be honest all…[Read more]

Hi Antoinette

Welcome to this site,we will help you all we can,there are lots of people on here who have been through the same thing as you,or who are carers to those people,it is very scary all the information you have to take in,medical jargon and worry.
Try not to look to far ahead and take one day at a time,forget SCT for now just try to…[Read more]

Hi Jean and Frank

I can Copy what Deb's has said its the start to remission, and with that I wish you Luck it will happen but along they way you will feel a bit? rough, fingers crossed that you go through it as well as I did 😀 uphill but with a smile 🙂

Love and Hugs

Tom "Onwards and Upwards" xx

Hi Eve

nice to hear from you is slim ok I have planned a week in the IOW with our daughter and grandson we are going in july
Love Jo x

Hi Andy
fingers crossed this is only a blip they do happen sometimes then things settle down
Love Jo x

Hi Eve and slim

Well I for one (as a mere male) feels real sorry for Slim and his cough cough problem.

Onwards and upwards Tom xxx see the thought of it made me writ the end back to front lol xxxx

Hi Gill

Trust me girl we wait for no apologies from you 😎 and am sure our moderators understand the words sometimes need to be said to vent our frustation I for one aint got a problem with it 🙂

Love and (((HUGS))

Tom xxxx

Hi Keith

Well I have my fingers crossed for you also and lets hope its just a blip M8

Tom "Onwards and Upwards"

Hi Jean and Frank

Well its here now and am sure you will get through it.

Advice? ? well take it one day at a time and rst when The body tells you yes Jean you because as the "Watcher" its hard too so both of you take it easy no rush for anything and it will all fall into place 🙂

Good Luck in the road to Remission.

Love
Tom "Onwards…[Read more]

Hi John

Yes it is way down the list of side effects,and as you say may be men do not like to mention
It.Slims never been shy in that department.
Once Slim had antibiotics he was fine,he started bad P&N after he came off Velcade,but when he came to Kings they upped Amitryptiline and now his legs are fine.
Doing well at Kings I am having…[Read more]

Hi Jean

I think no matter if you are expecting it,everything seems like a bit of a blow as you have said 6 years is good. Every day is a new learning curve, in time it will just seem normal. So try not to worry,we have all been there before you and will help. You on this journey.

Frank has been caught early,so he does not have much bone…[Read more]