Hi Nicki,

We are so glad to hear that Sam is doing so well… Janet sends her love and hopes that you are well and enjoying seeing Sam go from strength to strength.8-)

Hope to bump into you soon.:-D

Dai & Janet

That is good news Tina. 😀

You might get away with only 4 Cycles at this rate.

Well done, keep positive.8-)

Dai.

Hi Gail,

I'm sorry if I came across as advising too simplistically. I understand that some people find it harder than others to acceptance of this damned disease… and that depression can take hold and dominate. It may be that the medics might have to look at the dosage of his Dex… but the stamping of the feet might indicate some problem…[Read more]

Thank you all… your support is very much appreciated.:-)

Apart from my CDT my other processes and treatments – SCT and Velcade – relapsed very quickly… [b]but[/b] I have always done well while actually on treatment… so therein lies my hope… the American way will be my guide and I am going to request another 3 cycles of Rev & Dex before…[Read more]

[quote]'My PP's have been hovering around the 5 mark then 2,months ago doubled to 10.26 and then 10.98 at the last check 2 weeks ago'[/quote]

Fingers crossed indeed Keith… let's hope that this is a blip… the doubling must have been a shock but the next movement is very small so it could well be just a bit of movement within normal…[Read more]

Hi Andy

Do you know am sure I replied to this once??? hell I bet its gone on another post Lol

So Again am pleased your test were goodand if you need to take Banana's and a few pills that aint too bad is it (love banana's I do)

Good Luck with your BMB and Zometa I have just finished my Zometa treatment.

I am with you Andy to beat that…[Read more]

Hi Jacqui

I hope your still doing good, and trust me the crying is good for you it has been for me over the years (best in shower for the crying) but to be fair I think am all cried out 😐 am now the "Onwards and Upwards"

Love and Hugs

Tom "Onwards and Upwards" xxxx

Hi Roz

I am pleased you are doing good and yes i bet its hard work to be on your own 24/7 but i think it was Min who said open up your life make your life larger/bigger and your loss will seem smaller although your loss is still the same it feels smaller as your world gets larger. (well i think that how it went?)

Say Hi and Thank your two…[Read more]

Dai you my friend are one that I know will crack it you are the one that will push your dr and consultants into your way of thinking unless they prove to you that what they want for you is better for you, you are no one's fool we can all see that, so good luck with it all.

And Mari I found this on You Tube…[Read more]

Hi Michelle

I hope all goes well on thursday, our thoughts and love are with you and your Family.

Love and Hugs

Tom and Elaine xxxx

Way To Go That Tina, well done girl now you keep it up the fight i mean and your pp down 😎

And Gill you my girl can moan all you want cos thats whayt we are here for 🙂

Love and Hugs to you all

Tom "Onwards and Upwards" xxx

Hi Nicki

Its not a problem but you know we are here for (and I hope you dont need it)you both when you feel you need it.

Tell Sam not to worry too much about the tests as I am three years and four months or their abouts 🙂 and am still going strong 🙂

The green tea I did not read about that but googled it today and am going to get some…[Read more]

Hi Eve and Slim

Yep the smell is different am pleased Slim is doing good, I was given Anti Sickness pills when i had my transplant and was on them for about two months after.

I hope you get to Matty's Memorial Service and as for the wicked sense of humour I know where that comes from 😀

And Eve dont talk about the "Runs" just yet I…[Read more]

Hi Jo

Glad to see things are going well for you,sounds if you had a lovely time.

Better get planning another holiday as you have another 2 months clear.Love Eve

Hello Jean

sorry Franks results were not good this time but I think deep down you might have been expecting it with all the rib pain he has been having
CDT will probably stop you going abroad but you could probably get short breaks here but he will have to be careful of infections as for gin and tonics I had them all the time only one a day…[Read more]

Dia
fight your corner I know you will not give up I have every faith in you
I agree they dont give up at the first hurdle in america they try and get over what they call blips I think in this country to many doctors are tinkering around the edge where in america they are much more focused on myeloma and specialise much more
Big hug Jo xxxx:-)

Thankyou all for the kind thoughts

Yes TOM the heating is on I am used to the injections as i had to go on insulin for my diabeties as i could no longer take the tablets and thats twice a day
David I have got some geraniums in the green house but still not sure wether to plant them out or not we had a light frost yesterday
Jean I will keep…[Read more]

Gail,

You need to get Howard to talk… negative thought begets negative results… plain simple truth.

He has to find positivity and positive actions, especially so early in the illness…. there are treatments and therapies that can knock back MM for years and years… so why not him?

I have had a succession of relative quick failures…[Read more]

Hi Gill & Stephen,

I am so sorry to hear that Rev & Dex failed to take… I might be heading the same way, next Monday will determine that… but they have lined up a Benamustine trial 'just in case'… which was put more like 'it looks pretty certain'. Have they not offered Stephen anything else? If the Rev has caused secondary cancers and I…[Read more]