Hi G
So sorry you had to join us but there are lots of good people on this site who have lots of experience of just about every emotional and practical aspect of coping with MM.
It´s nice to know that you can always come on here and ask/say the things that maybe arn´t quite so easy with family and friends. I really have found it a real s…[Read more]

Hi and a warm welcome to you both, although I´m really sorry that you had to join us.

Your quite right to be positive there are lots and lots of new and exciting things coming on line and much more developing.

I had my sct last February 2011 and I won´t say that recovery has been quick I am certainly improving all the time. Today I have b…[Read more]

Hi Vicky and Colin

A warm welcome to the site 😀

I am the one with the MM and My Young Bride (Elaine) is the watcher (dont like the word carer) and I also have been a "Wathcer" as well as a MM'er as Elaine had Breast Cancer i 2008 and as you now know I got MM near as one year to the day Jan 2009 so we have both been patient and watcher's…[Read more]

Hi Gail

Reading your post,it could me writing it,only the year would change to January 2011.So you are not alone,you have joined many other people on this journey,because the carer has no choice,and some times is forgotten,because everyone worries about the person who is ill.

I use to worry about my husband,being very confused,plus lots of…[Read more]

Hi Jerry

Your English is just fine, you will get help/advice and comfort on here.

As for your Father's treatment? well with Myeloma all Patient's are not on same treatment, what works for one may not work for another.

Regards

Tom "Onwards and Upwards"

Hi Susan
Thank you for posting about Sharon,i have been trying to find out how Sharon was as she was on Velcade the same as Slim,and i was wondering was it working for her,she helped me a lot with information.
Thanks again for posting,I wish her husband and young family all the best,Eve

Hi Pete

Am pleased you got it sorted out 😀

Tom

Hi Eve and Slim

I will be thinking of you all on the 8th May. Am sure it will be a good Celebration of Matt's Life I dont need to say "Think of the good times" as am sure you will be.

Love and ((hugs)) to you all.

Tom xx

Hi Ann

I have been trying to attach a copy of my drug regime so as you could look at it but it wont let me?? but as has been said phone hospital up it should be open 24/7 as they need to dispense Meds all the time 🙂

Good Luck

Hi Andy
Well done on the Bloods M8, and am sure the rev/dex will soon sort it out.

Keep strong and fit

Tom "Onwards and Upwards"

Hi Jerry

Sorry to hear your Father is poorly, I wish him well on his road to recovery.

Where Is your Father getting his treatment ?

Tom "Onwards and Upwards"

Hi Ron And Christine

I am pleased to read Christine continues to improve 😀 and as i am in remission I now only go to see the Dr every four months 😎

This Myeloma is a strange oneas I went through Zometa for 24 months post SCT. But as we all differ in treatmentr/side effects I should not be too surprised.

Keep strong

Love…[Read more]

Hi Bridget,

Just a quick hello in case you look in…. I hope that you are feeling a little better today. As Helen said, infections are so draining… on the body and on the spirit. If they can find an anti-biotic to clear the dreaded lurgy's up then you will feel much more like facing up to the medics and their search for some sort of…[Read more]

[quote]Many thanks to all of you for the warm welcome. I am afraid all the terminology is still quite new to me but I will attempt to tell you where I am with my journey.

I was diagnosed with stage 2 IgA MM and multiple lytic lesions. I had been limping around all summer having been told I had mild osteo-arthritis. In fact, I had a fractured…[Read more]

Thank you so much Eva for letting us know.

Could you send her lots and lots of love and best wishes and let her know we shall be thinking of her over the next couple of weeks and sending cybernet "hugs". Hope all goes well as possible

Love Carol xxxx

Hi everyone 🙂

I do hope you will understand if I say a big blanket THANK YOU for the lovely replies I have received. I have tried to find all those who have contacted me apart from Andy (will try today). I don't seem to be having too much luck but have to admit it could be that concentration is not really up to much as I am struggling to…[Read more]

Hi Tina,

Dex will certainly energise you, as well as doing its job of killing off the cancer cells, it does its fair share of the donkey work but you have to remember that the 'energy' supplied by the Dex is a forced energy and while it might boost your energy levels it will not boost your spirit.

Engendering a positive attitude is the only…[Read more]

Hi Bridget,

Sounds like its been tough for you recently… hang on in there, and may every day see you get some strength and with it positivity and hope.8-)

Much love petal.:-)

Dai.

Hi Eva

Thank You for this, and I have posted it on Sue's Page so her contacts can see it.

When you next talk to Sue give her My Best and a Little hug from us all.

Thank You again Eva

Love
Tom xxx