Hi Tina

A warm welcome to Dex and am sure your good spirits will return 🙂 its worth the orf days to get into remission.

Dex is an evil little begger but worth its weight in gold if they could take out the side effects it would be Magic 🙂

Keep with it Tina and in no time you will forget you had to take it 🙂

Love
Tom "Onwards…[Read more]

Hi Bridget

Am pleased to see your doing "Well" you are going through the wars so am sending you a great big cyber ((((HUG)))

You should ask if you can have an Energy drink on scrip if you are struggling to eat.

I hope you are better before you go to clinic and wont need to use the bag 🙂

Love and loads of hugs ((hugs))

Tom xxxxx

Hi Deb's

Hugs to you its not easy putting a post like this.

Penny was an inspiration for me with the way she coped with her illness.

I did not know Penny aside from being an "Online Friend" and Like you all I am pleased to have Known Penny for such a short time.

RIP Dear Penny, The Lord has another Angel watching over us.

Tom…

Oh Bridget
so glad to hear from you, you had me so worried it sounds like you are on the mend a bit now so keep it up
Love and a big big ((((hug)))):-) 😀 🙂 😛
fROM jO XXXXX

Hi All

Thank you all for your kindness it has helped over the last few days,as we have found it difficult even to mention it.So this did help.

We are going to have a celebration of Matty,s life on the 8th of May My daughter from NZ has come home,so although it is a time of sadness,there is a great deal of love and happiness around us as…[Read more]

Hi Lexi

I am up at this terrible hour,so i thought I would reply to your posting.

First may I welcome you,we are usually a happy bunch on here,who have either got Myeloma or are carers.

May i say,Smouldering Myeloma may never go into Myeloma,also some people have it for many many years,Ted on here is in his eighties and although his…[Read more]

Hi Helen and everyone for your kind wishes, I didnt end up in hospital but with another course of oral anti-biotics. B I can honestly say they have only made a minmal difference so I will be taking a bag to clinic this week Most days I cant stay awake for longer than 5 minutes, waliking upstairs is very scary as I am so weak now, probably due to…[Read more]

Hi Terry,

Two things. 🙂

One in common with you re: the pulmonary embolism… I had one quite early in my journey, only four weeks or so after receiving high dose radiotherapy for a tumour on my spine (directly related or so I am told) of which I too was lucky to survive and received enoxaparin for 6 months, followed by Warfarin for 12…[Read more]

Hi Tina trapped wind is awful so painful!! Try peppermint cordial with freshly boiled water and rink it as hot as you can You might have to look in the drinks department at supermarket or an off-licence as its not so popular as it was Good luck hope it works it does for me love Bridgetxx

Hi Pete

Well am sorry you had to start your treatment 🙁 to start with I will say listen to your body? yes it was only a couple of days ago you could run burn the candle at both ends and lift more than the other bloke at work BUT to be honest your treatment will take it out of you (but you will get through it) rest when your body tells you…[Read more]

Dear Eve and Slim my thoughts and wishes are with you and all of your family To lose someone so special to you all must be devastating , stay strong together and remember the love you gave and were given Lots of love Bridget xx

Aww Bless Tina

Am sure that its not nice? But as My young bride can tell you I just suffer wind and its not trapped ha ha, but on a serious note I dont know what you would need to take to solve it.

Good Luck on the Burp side and burp away

Love Tom windy But "Onwards and Upwards" xxx

Hi Andy

Am sure its a worry but I like Dai hope its just a blip. Its a worry at times like this but am hoping it soon settles.

Keep Strong

Tom "Onwards and Upwards"

Hi Jacqui

A warm welcome, I know we all will understand that its all new to you and you have gone through some of the post on here? then am sure you know we have great Folk on here that have and are going through treatment and am sure that what ever treatment you get/having some of us will have had it or be just in front of you, so when your…[Read more]

Hi Andy

sorry you have been unwell glad you are back now good luck with the rev /dex Keep well:-D
Regards Jo

hi welcome to the forum not something you would want to do but welcome have you started chemo yet or are they just monitoring you. You will get so much help and support here and a solution to a lot of your questions dont forget Myeloma uk help line they are so good and will give you good advice
Keep well:-)
Regards Jo x

Hi Andy,

I am sorry that Revlimid has not had the required effect but surely they will give it at least three cycles before calling a day with it? I am on Cycle 3 of Revlimid & Dex… my light chains started at 311… went down to 156 and then a fortnight later went back up to 206… I was ready to be devastated but my lead nurse said that…[Read more]

Well what can I say my skin aint been the best I have dry skin (always have) so cant comment on it but I did have more of a body rash after sct?

Hope Henry is soon sorted.

Love
Tom "Onwards and Upwards" xxx

Hi Andy

Welcome Back M8 I have had that twice Infection but nothing ever found?? strange thing this MM.

Kepp strong and away from the hight temps

Tom "Onwards and Upwards"