And your Hairdresser has done a great Job you did and still do look very pretty 😀

As for the dry skin I still have that every now and then 🙁 bath in oillatem or wot ever its called the have to get young bride (elaine) to put the cream on me 🙂 so its good 🙂

Love
Tom "Onwards and Upwards" xx

Hi
Only just catching up with posts but wanted to say a belated welcome.
Hope you are both coping and coming to terms with everything (and there is such a lot isn´t there?).
It has been such a relief to be able to talk to people in the same boat – they are so supportive and sensible that it makes even the most difficult times seem much…[Read more]

Me and Tom are fb mates but I only read the text… open a photo and invariably he has got a pint in his mitt… lucky b***er.

Dai.

Well, come on then… where's the picture proof?:-D

Dai.

Hi Jean,

I ended up in hospital 3 times last year with infections and they like to give their anti-biotics intravenously because they can use a really strong general dose to attack the infection while taking cultures to try and find the specific problem. They have never found my specific yet through cultures but the intravenous anti-biotic has…[Read more]

Hi David
You know what they say "love is blind" LOL Eve

Hi Helen

Re the "Blue Badge" am sure all people that have A terminal Cancer get it.
Trust me am fit (ish) and got it when I was fit (ish) just took a few weeks longer as I didn't have a Mac Nurse so it was a letter to my own GP who then told them that No he aint lying he has MM and walla Blue badge got 😀

So off you go and fill in the…[Read more]

you know you can never miss the boat Lynda 😎 no soone said than done 🙂 xx

Hi Tina

Yes its a long haul I know and it seems to take ages BUT you will get it done soon so keep fit and keep strong

Love

Tom "Onwards and Upwards" xxx

Hi You all yes I will send your Best wishes on to Bridget as you know there is "Strenth In Numbers" 😀
Hi Tom Thanks for that, I am on facebook but dont go on there very often either, will give it a go

Love
Suex
I would be grateful if you would pass on my very best wishes to Bridget. John

Hi – this is Eva. I don't go on Facebook but…[Read more]

Hi Teresa

My thought are with you,do not bother replying individually unless it helps you,we all have some idea what you are going through at this time.

This is a very sad time for you and your family,enjoy ever day as much as you can,and any time you feel like unburdening yourself,if you do not want to do it through the site,lots of us have…[Read more]

Hi Phil,

I assume that you have had a full skeletal survey, MRI and CTScan?

My lower back spasms turned out to be a tumour which was crushing two vertebrae… if you know it is not skeletal or bone related then acupuncture seems a straightforward therapy which I have found useful in the past.

If you haven't had the 'works' then I'd…[Read more]

Hi Helen,

I am on ESA… this is one of those random checks where they call in 50% of a selected group and get the other 50% to fill out the forms as a precursor to being called in if they think you are fit for work. The penalty for not complying is an instant suspension of benefits. 😛

My brother is a senior in the JobCentre world and…[Read more]

Hi Jean
It looks if hubby has a bit of man flue bugs,if you feel worried about them before having a good holiday,for your own peace of mind,go to the doctor,s

Jean if you have an infection your pp go hay wire,
I would press for an early scan,I still find it hard to understand why a PET scan in not used in Myeloma,that shows any activity…[Read more]

Hi Carol
Were have you been??? not heard from you for awhile .Hope it was sunny were ever you were.8-)

Hi Mari
Have nothing to add about Velcade.
Did Steve only get enough stem cells for one chance,from what I can see for allo SCT,you would have to convince them its viable.They like a back to back ,your own sc then a few months later a donor .Eve

Hi Kirsty

Sorry that I am only just catching up on the latest news on the site and so didn´t welcome you earlier. Anyway, hope things are sinking in a bit now and that you are being well looked after.
Keep calm about the transplant (easier said than done I know). As others have said not pleasant but mostly it´s just tiring and you will be v…[Read more]

Hi Jean

I know how worrying this can be but can only hope that they are sorting things out for you about the scan.

I don´t have much else to add but just wanted to know I wish you well and hope things improve soon.

Love Carol xxx

Hi David
Just read your good news and am so pleased for you – phew what a relief! I bet you feel like a new lease of life has begun.
Thank you for letting us all know and so good to hear that you are not in pain. Long may it continue!
Best wishes
Carol xxxx

Hi Jean,

I know that the magic number for Neutrofils is 0.5 after a SCT… on the up and allowed home to recover, with care. I was neutropenic 0.1 when my Hickman line got infected and spent a hairy week waiting for it to rise. I am told that if my Neutrofils drop under 1.0 I have to be admitted… it seems to be the policy at my hospital.…[Read more]