Hi Dai

Well you have had some good thinking out loud time my Friend as for my treatment I think it was a great shock and i told him "You dont want me to decide what treatment I want are you?" when he gave me lots of leaflets/books :-/ where i was told that he and his team would decide the best road for me so I followed his lead and have to say…[Read more]

Hi Jorge

A warm welcome to you.

As for a Carer? my young bride say's she has been my carer long before I got MM Lol, as for you returning to your Native Ireland for your "Final Days" am sure it will be years before that happens 😎

Keep fit and stay strong

Tom "Onwards and Upwards"

Hi Tony

Welcome to[u][b] your [/b][/u]new group

I am same as David nowt special just MM 😀 CTD front line leading to SCT Dec 09 now fit (ish) and well 😀

Keep strong and this is the place when it gets a bit too much to have a moan and groan we all know what its like

Tom "Onwards and Upwards"

Dai

We know there is not any choice,
One because at the start no one tells you your options,it is only after a sharp learning curve,it becomes apparent there just might have been better options,but when the word Cancer is mentioned ,with no cure,your just grateful for any treatment.:-/

Most of the European Countries start on Velcade,Looking…[Read more]

Hi Jo
Must admit would give a lot,just to be in a warm place in the Motor Home,but have been told no travelling abroad for 6 months, as they are spending so much money trying to help Slim,I feel we must obey there rules.

Have you any nice trips planned??
Lets just hope that England has a glorious summer,just this second had a small hail stone…[Read more]

Hello Eve

how are things progressing for slim will his SCT be soon and are you ok its been a long long year for you both perhaps now you can look forward to more holidays in the camper hope the sun keeps shineing for you regards to Slim
Love JO X

Hi Mavis,

Great news that you have managed to get home.. now just stay there.8-) 😀

Dai.

Hi Jorge
You are correct,not bad going for a man who considers he is old at 66 years LOL.Eve

Hello Mavis
so glad you are home at last that will make you feel a bit better both my daughters are doing the race for life in Bedford they are walking it, both of them have done it for the last couple of years
Well CDT i had four lots of CDT which put me into a good part remission or plateau stage when I finished that I took thalidomide 100mg…[Read more]

Hi Andy
53 is young enough to consider a back to back SCT,So in some ways you are a lucky guy,it is surppose to be very effective at keeping the dreaded MM at bay.I mean lucky in MM and age terms if that makes sense.
Not many people go through 3 treatments in such a short time,at this rate,you will be having SCT in no time.I think why they like…[Read more]

Hi Dai
I can only comment on Zometa,and reading up on it,as Mavis says it,s suppose to help with Myeloma,although I have to say a dentist told us,it is more effective in the first few months!!!:-P
I am not like you Dai,I know I should have confidence in the experts,but it,s not there life,and there views differ so much,,so I will go on…[Read more]

Hi Mari
The long post just makes up for you not posting for awhile:-)

We all have are ups and downs on this rocky journey,some times I feel only the world of myeloma exsit,and then I have to remind myself there are lots of people struggling with different things,so I tell myself to snap out of it and be grateful.(:-) 🙂 🙂 smiley face comes…[Read more]

Hi Mavis,

It turns out that I do have two fractures.. one in the top of my arm and one in my shoulder blade. I have been given a sling to force rest but I have been told to use it normally for the rest of the time, including driving. I have to avoid stretching up and out but apart from that I believe its just a matter of time and natural…[Read more]

Hi Jo and Mavis
|Glad to hear,the new Cancer Centre at UCH is good,as both of you say,so much time spent in hospitals!!!
Mavis also glad to see you have escaped,must feel great to be home,the summer will not be long coming,and should help to get you back on your pins.
SS Bradford have come up to scratch,nice to see someone pulling out all the…[Read more]

Hi mari

Last we heard,Stephen was going on Velcade I do not know if I have missed any post,but did the Velcade work,it has worked for Slim and he goes for SCTend of month. If I am correct Stephen did not get a lot of remission last time.!!!!

Hope things are good with you both.Eve

Hi Jorge
Nice to here from you old man,if I called my hubby that he would read me the riot act. LOL
You seem to have God in your life ,so may be he is the only carer you need,you seem to be doing very well on it.Do not right yourself off to soon,people are getting past a 10 year remission and with new drugs in the pipe line,you might live to be…[Read more]

Best of luck Helen lets hope you find your way though all this paper work and it will all go smoothly for you I cannot advise you about benefits as I am retired and on a pension
Regards Jo x

Hi Teresa
Yes Slim goes 23 of this month,after a year on treatment,and septic pneumonia in the middle,been a hard slog to get here.|They say he is fit enough,and he can not be any worst than when he was in ITU for 9 Days and 11 days in general ward,with months after recovering while on treatment.

They will keep him in for at least4 weeks,and…[Read more]