Hi Helen
🙁 I do envy you I know its wrong but it will be at least 7 months from now before we can go out,to the land of the long white cloud,It will be 3 years I have not seen 2 of my grandchildren and when there young they grow up so fast
We talk on Skype,and have kisses and hugs,my computer has never had such affection before.:-)

Helen…[Read more]

Hi Ted
How are you doing its a long time since I have seen post from you,one minute you are going on holiday,then no Ted about.:-)

I hope you remain in smouldering for many years,Love Eve

Great News David 😎 and am sure when you are all worked up at your Home you could visit mine am sure we have lots of stuff that needs fixing Lol

"Onwards and Upwards" My Friend 😀

Hi Jet,

I think you may be right concerning this treatment, I can't see it being licensed for at least three years, what with trials results to be collected and collated and approved, plus the licensing process which will mean America then Europe… it is more likely to stretch to five. Unless of course they hand their findings and research…[Read more]

Hi Helen

My mind is just trying to get round the fact that your Dad must have been a older Dad with a young heart,if your the eldest 🙂

I can see were you are coming from ,specially when you finish chemo and you do not have to go to the hospital as much,you become normal and no one wishes to go backward,but if you were the carer!!!.
Think…[Read more]

Thanks Jet
have been reading up on this for a few weeks sounds very promising,talking about world trials.

Slims managed to get to SCT stage after CTD then Velcade so fingers crossed.
Going to Kings 23 April told 4 to 6 weeks in hospital.

Good luck for the future with your Allo SCT.Eve

Hi Jet

how are you not heard from you for a while, thanks for the link

Regards Jo x

Hi Jet
Sorry cannot get the link,are you talking about this new one just coming out of Israel!!!
Cannot get the Dailmail link.
How is life treating you !! Eve

Hi Jet

Great link and I for one would be up for that if I ever need it 😀

Tom "Onwards and Upwards" xxx

Hi David

Well cough's and cold's :-/ I have to admite from having my SCT I have never coughed nor had as many poorly chest's that I can remember :-S and I used to smoke but am sure the gunge that built up in my lungs must have gone by now Lol 😉

But if all I suffer is the bloomin cough and the odd bad chest then am sure I will cope with…[Read more]

Hi Dai
I agree with Janet,none of us knows what is round the corner,on a practical basis,we have tried to sought out our lives so that no one has that burden,but must admit it is now with the knowledge that Slim has MM,.

As for loving someone,I feel love can be painful,but would we be without it,I do feel everything has been worth the last 30…[Read more]

I can't begin to imagine what it must be like to lose a true love. I have been so fixed on the idea that I will be going first that all my emotional energy has been directed on my going and those I leave behind… but Janet has often said that she could go quite suddenly, through illness or accident… we have had five friends go in just those…[Read more]

Hi David,

There's a large part of me that wants to say yes, hopefully.;-)

Not that I'm wishing you ills but if you can cope with the usual, expected winter and summer coughs, colds and chills then it shows that your immune system is working as normally as it is possible to be normal with MM. If these ailments were making your neutrofils…[Read more]

Hi Stephen

I could not reply to you E mail as you do not have an email address on your profile,but thank you for sending me a reply .

Stephen you will not get any quick relieve,everyday you will wake up,and be aware that Dawn is not there.
Min who lost her husband,found by making her world a bit bigger the pain was the same,but easier to…[Read more]

Hi Teresa

Well like Dai, Peter,s pain has been resolved,and as usual the carers have to stand watch and worry,it,s a place we have all been in,you have to ask yourself who you are angry with,the hospital or the hubby.Mine was both,for not taking on board my view.You are the one that shares this burden,sleepless nights,worring that they do too…[Read more]

Hi jean.

I've made a full report under treatments – but I have two fractures… finally getting my request for an x-ray. But they are dealing with it now including referrals and a flexible sling.

Janet likes Angels too but she only likes to display those items which are useful or beautiful…After (William Morris).

Dai.

Hi Dai

Well your last post made me chuckle Lol, am not sure how you could have a "Elegant Sling" you must post a photo :-).

But I am very pleased you are well on the way to being sorted.
I am sure that's what I would miss the driving so your not bad as you can take the sling off to drive, just dont alter the rear veiw mirror.

Its great…[Read more]

Hi Jill

I am pleased your Mum is doing good on the velcade 😀 and i hope it stays that way.

All the best to you and give your Mum a cuddle from me xxxx

Love Tom "Onwards and Upwards" xxx

Hi jean,

They are real poppets and at that age I am sure that they would be really happy that they had the same dress. 😀 😎

I have got to say that I love your art-deco lady in the fire place… Janet adores art-deco and I love statuettes.:-D

Dai.

Hi Jill,

I am so glad that your Mum is receiving her Velcade by subcut.:-D

The procedure is so simple with no battling for entry for a cannula which can be both painful and stressful… also the side-efects are lessened by up to 50% or so I am told.:-) 😎

I wish her well and you peace of mind.:-)

Dai.