Hi Tom,

No bads about it… I thought the same at first… I am angry that no one was listening to me at the beginning… if a simple x-ray had been offered when I first flagged my problem the second fracture would not have occurred… because the strain of one begot the other (so I was informed today).
🙁
Still, now I know I am happy.…[Read more]

Aww Dai

You have been Janet's "brave little soldier", and I remember saying it could be "An age Thing" sorry M8:-/ and I know its a strange thing to say but at least you now know its a fracture and I bet your "well being " is better as you now know what you have to fight and you just might get less pain.

Good Luck with the "Coller and cuff"…[Read more]

Hi Helen

I had my SCT in December 09 but I went on sick in May 09:-( I was due to have one but they cancled it after they found out mine was "Reminal" (sorry folks for those word's :-S )

I wanted to go back to work its what kept me going on BAD Days, but all My Consultants and lead Nurses said I shouldn't go back to my work again as its too…[Read more]

I have been called in this morning for a collar and cuff fitting.. the doctors are concerned that the fracture might move… it did! Nine weeks ago it was just my arm.

I do know that my arm and shoulder are getting much better… but I'll go along with them… as I push for a shot of radiotherapy.

Dai.

I have received a form about my ESA… I have got to prove that I'm not fit for work or they will stop my benefits… Hey Ho and here we go.;-)

[b][i]'I have a terminal illness, I'm now in the later stages and I understand from my consultant (all referrals and contacts attached) that I will never be fit again to go out to…[Read more]

Hi Dai

I tend to think its the not knowing with all the anxiety and the inner knowledge,that even though you have MM,you know in yourself that something is not right,but when the experts say your ok,doubting Thomas comes in.
I have to ask what would a X ray have cost 9 weeks ago!!!!.Even if they thought you were wrong,what about your peace of…[Read more]

Hi Helen

I thought every employer had a duty of care,so one can only assume,they are looking to see if your fit or may be a big fat pension.I suppose it depends what your job was and how long you have been off.

I know someone on here worked for the NHS although she returned to work,her general treatment seemed so unfair.i think a few on here…[Read more]

Thanks Helen… but as I said, my shoulder felt better today than it has for weeks, despite all my physical exertions, driving both ways etc.. stupid, I know. but it still feels good now.

Dai.

Hi Teresa and all,

Ah so… Janet took a few spare shirts and I was forced into quick changes when I got to the Haematology Centre and again after bloods. The phlebotomist was concerned because I was literally dripping with sweat throughout and a nurse stopped me on my way out and asked if I was okay… to which I said, 'Dex'… she looked…[Read more]

Hi Ian glad your ankle problem wss sorted out quickly and simply It sounds as if you have a really good doctor which makes such a difference When I have had unexplained pain, such as you have under your arm, my doctor always offers an mri to reassure me which I think shows they see us a whole person not just a set of symptoms . Heres to your CR…[Read more]

David
I am glad I met you too
😉
Love Jox

Hello Jean

what lovely girls you have I have a cheeky monkey of a grandson but have not yet managed to uplaod a piccy hope easter went well for you it was wet and freezing cold here:-(
Love Jo x

Blimey Dai you dont do things by half!!Thank goodness you have Janet watching out for you she must have been so worried . I think the sweats are likely to be Revlimid , when I was on it I would pour with sweat at the least exertion and I still have the same problem now I am on Thalidomide. It does get very embarassing but I suppose there are worse…[Read more]

Hi Jean well thats a coincidence , they probably wouldnt be too chuffed if it happened in ten years time ! They are both so beautiful such lovely eyes Hope you are having a lovely Easter love Bridget x

Well my day has been like the curate's egg… good in parts. The good part was that I woke feeling quite alert and with it. The foggy 'out of this world' feeling had been lifted after a decent, tablet free, night.

I got up and decided to shave… having had a very neat and tidy 'goatee' for a few weeks I went with the flow and had a clean…[Read more]

Hi Everyone

I put IMMUCINE vaccine and got all the gen from the net,it does sound promising, they were talking about it going on world trials,so uk may be in with a chance.At the moment it is on trial 3,in the main hospital.

Lets hope there is a good response love Eve

Di
I always enjoy the closeness of friends:-) I really appreciate this site I dont always have loads to say but I have felt so much care from strangers
I have needed the support on many times so I feel I will always add my thoughts if they can help others when I was diagnose I nowhere else to turn to it saved my sanity 😉
Love Jo

Hi Kieth
lets hope its not 6 years and they accelerate the trail so many new things
coming on stream much more hope theses days I hope you are still well after your SCT
regards jO X

Well Dia
Its a good job you have nurse Janet at your side I bet she knows as much about these drugs side effects and what effect have on you as anybody does
Stay well and good luck for tomorrow
Love Jox

Hi Stephen

I am so sorry to read about your Wife I send My Condolences to you and your Family.

And well done to you all for raising that ammount of money for us all.

Stay Strong and remember the good days

Regards

Tom x