Bloomin heck Dai I bet that was scary :-0 I am pleased Janet was on the ball 😎

I have always been told if I feel Unwell then I should phone the ward up and talk to them and they will make the decision whether to pop up or stay at home, I have used that adout three times so far and it works for us 😎

Hope all goes well for Tomorrow Dai…[Read more]

Hi All,

I hope it doesn't come across that I am decrying people's contributions, far from it. I understand just how easy it would be for me to withdraw quietly and fight my corner… with Janet and those I love beside and behind me.

The MUK discussion forum is just that… a forum… it doesn't say which direction the forum should take or…[Read more]

[i][b]' hello to everyone & jean who i have spoken to.

I'm stephen im 47 years old. We have 2 kids joe who is 24 & jade who is 17. I'm writing this now & I'm crying like a baby. My wife dawn had al amyloidosis myeloma.she was diagnosed in aug 2010.sadly she passed away on 29/01/12. She was trying to be so strong, she was so very brave……[Read more]

Hi Eve yes my eldest daughter is fast becoming just like me but she cant see it ! I realised years ago that I sounded more and more like my mum, although Idont want to end up saying the strange things she does since her stroke!! Still thats what makes the world go round and keeps history alive which I am glad to be part of love Bridgetx

Hi Bridget
I come out with things all the time,and my kids think I am daft as a brush,I put it down to me being a Liverpudlian ,and my children are Southeners.

They do say I am sounding more like my late mother every day,having three girls I get the last laugh as slowly they are all sounding like me,specially my oldest Ruth who has two…[Read more]

Hi Gina and sister
Lovely to hear from you,and to see you are moving on with your lives,that,s what your mum would have wanted,lets hope this less crying days as as this is also what your mum would want.
I think you feel it more on days like mothers Day and birthdays,the knowledge you can no longer pick up the phone and have a chat.

As you…[Read more]

Hi Stephen I relied on the newcomers page Bridget

Dear Mavis I have not been up to speed on here lately as I have been a bit unwell so sorry I havent sent you a message. You have really been through the mill yetr your "smile" shines through still . I am glad you are getting your pain sorted even if the juggling does take a bit of time. It sounds as if the hospital is good at getting you the…[Read more]

Hi Keith thankyou that does sound very promising, hope it gets the green light even if it takes 6 years. As you say if it came to it whats a flight to Israel compared to a good result. I knew I should buy a Proper Newspaper on Sundays then I wouldnt miss gems like that But those Sunday Trashies are hard to resist !!!! Take care and hope you are…[Read more]

Hi Ian swollen ankles does sound like water retention , worth getting it checked out. I always get swollen ankles and calves when on Dex or Prednisalone . Ferusamide tablets are used to get rid of excess water and you should put your feet up as high as possible when sitting, doesnt mean you get to bew fed peeled grapes though!! Keep drinking lots…[Read more]

H i Stephen I am so sorry for your loss Dawn must be missed by all who loved her but for you it must be like losing the other half of you As Eve said hang on to the good times and talk with the children about Dawn a lot it will help you all. How very generous of all your friends and family to have raised all that money for M.M.U.K I for one am…[Read more]

Hi Stephen

My heart goes out to you,mainly selfish because I know one day I am going to be in the same position as you,I hope that does not seem unkind,why has it taken you so long to find this site,people on hear understand exactly what you are going through,some have already been there,and others are preparing themselves,but hoping there is a…[Read more]

Hi Mavis,

As Tom says, you are definitely going through the wars… but if they can sort you out and get you going forward then all well and good. 😎

Keep us posted and chin up.:-)

Dai.

Hi Ian,

I first encountered PN with my frontline treatment CDT.. the 'T' being Thalidomide.. but it only really became a problem when I was on Velcade… where as well as galloping PN I also developed a DVT complete with legs like an elephant and badly swollen ankles. I am now on Revlimid (2nd Cycle) and I am wary but my consultant told me…[Read more]

Hi Ian

Swollen ankles,sounds like water retention ,Slims ankles became very swollen on Velcade,had to buy socks with loose fitting at the top.only just managed to fit into his boots,I use to massage his feet and legs which gave him some relieve.
He did not have PN until he finished Velcade,he only has it sometime,s I think it is just a…[Read more]

Hi Teresa

I would say lots of deep breaths are needed,you do not say if you have any support from children or friends,this is a time for some help.even if you can just have a few hours break ,to recharge your batteries.If you just need to chat come on here,someone will all ways reply:-)

Lets hope for some new treatment soon.Love Eve

Morning Mavis

My we are going through the wars 🙁 but going the correct way 😎

I wont be In Chapel today But I will say a prayer for us [u]all[/u] Today and hope that it helps us all am sure today is the day he will listen 🙂

Tell Gordon that you are correct its a temporary loan you are having with the stuff.

Mavis I was on CDT…[Read more]

Hi Dai

I think you have said what a lot of people feel,you see so many people coming on here for advise help or just to explain how they feel,some never to be heard from again,and some just can not cope with the whole process,and as we have both said some who cope for years and then just post. I would not pretend to know why they post and we…[Read more]