Hello Mavis

so glad things are going in the right direction at least they seem to have got on top of your pain the wheel chair might well be a temporary measure at least I hope so My prayers will be with you this Easter time
A BIG (((HUG)) From Jox

Hi Helen & Jo.

Thank you for your support… I was wondering the same thing Helen, that I could have fractured it by over-stretching etc., although I can't remember any particular occasion where I might have done so.

I was sent by my haematologist consultant to see an orthopaedic consultant at the Queen's Medical Centre, Nottingham… not…[Read more]

Hello Dia
I will be keeping my fingers crossed for you on tuesday I really hope the pain in your shoulder is not MM related it sounds good that paracetamols help as they are not the best for severe pain lots of luck
Love Jo x

Hi Bridget & Tom,

Thank you for your encouraging words… I have sort of convinced myself that it is 'normal' damage… or that if it is by way of mm disease, that the pain is due to the residual damage caused by the disease which has now been dealt with by R&D.:-)

Otherwise I feel okay… good appetite, PN bearable, look okay… ah,…[Read more]

Morning Dai

I have had same over the months and told my Consultant and he checked me over and put it down to 1)Old age ((ish)) and 2) just doing too much and he tells me its not MM related so I will go with that. same symptoms as you Dai that bad toothache but in shoulder (right one) and down the arm, if I stretch the arm I get a sharp pain…[Read more]

Hi Nicola lovely to hear from you Wow what a wonderful turnout for your dad you must have felt so proud of him. When I was very young I was scandalised at people smiling and laughing after a funeral its only as I got older I realised its such a necessary part of the grief process Those laughs and stories told at your dads wake are more precious…[Read more]

Morning Dai no wonder you have been losing sleep there is nothing worse than having a pain you dont know the cause of . I must admit I am very surprised your doctor dismissed your concern without even doing an x-ray . I think you are right to insist on examination of your shoulder as soon as !If it is mm then it does not necessarily mean your…[Read more]

Hi Kay I agree with whats already been said , you need to be kinder to your body !! Your determination is incredible but you have been through the most challenging treament and your body does need time to recover If you push yourself too hard now you could delay you recovery rather than speed it up so please listen to your body and rest when you…[Read more]

HI Gina its so good to hear from you although I think we would all have understood if you felt unable to post again. You and your family are doing brilliantly as you have all the way through your mums battle with myeloma The memories will get easier with time and there will be more smiles than tears just hang in there. I thought of your mum last…[Read more]

Hi
Just wanted to welcome you to the site although sad for you and your Dad that you have to be here.
Hope things improve soon.
Thinking of you and hoping for the very best.
Love Carol

Hi Gina

Great to hear from you 😀 and am very pleased you are all doing OK 😎 yes am sure the "Crying Days" will get less and less over time, but thats not to say your memory of your Mum will get less you will just remember the good days 😎

Keep going strong, you are doing a great Job

Love and Hugs Tom xxxx

Hi Ozzey

I was type 2 diabetic before I was diagnosed with MM I was very well managed but since all the steriods during CDT and now a small dose because of the renal failure they have put me on insulin as steriods raise the sugar levels so much this could be what has happened in your case I'm manageing quite well but its not ideal but all these…[Read more]

Hi Eve and Dai thought I would join your conversation about morphine! Like you Dai I have been on it constantly for 5 years now The dose has increased from the early days as my pain has increased I have always worried about being so reliant on it but Iknow I cannot manage without it . I take 165mg of slow release Oxycontin twice a day, no need…[Read more]

Hi Eve,

Its either amazing, or an amazing coincidence… but 2 nights of one small dose Amitryptiline and 2 nights of at least 6 hours solid sleep… sans sweats and directly on the back of a Dexday tm…. I'm impressed and hoping for more of the same. I have woke early both days (6ish) and stayed awake but so much more refreshed than with the…[Read more]

[quote] I feel that we are dealing with our loss really well although we still have our crying days, as we call them. Mum fought myeloma every day and we are very proud of how she dealt with it.

We go to the crem and put flowers down(especially roses, mums favourite) and we have now started to remember the good times before mum was ill and…[Read more]

Ha ha 🙂 thanks Dai. I feel like I have been well told off. I needed it too. Think I am still in denial that I even had myeloma and the treatment. But as they say "denial is not a river in Egypt". It's a powerful feeling. Will take note and slow down. Think I just needed reassurance that I was not imagining my tiredness. Thanks Tom for your…[Read more]

hi Kay

Wow you are a wonder woman I am so glad you can go to work it must be a real milestone for you Steriod are good for pain killing but can play havac with you in other ways I havnt had joint pain but take predisilone for my chronic renal trouble I am diabetic and it puts my sugars up a lot which is a real problem but its better than DEX. I…[Read more]

Hi Sarah and Henry

A well done to you both, keep it up and Henry will soon be (near) back to his old self.

Love and Hugs

Tom "Onwards and Upwards" xxxx