brocho replied to the topic Just Made It in the forum Treatment 14 years, 4 months ago
WooHoo Well done Slim thats the way to do it !! Worth being shattered for . Like you we have quite a journey to the hospital . as you say its cost as well as time so the team at UCH always try and schedule as many tests in one day as they can Although you get home exhausted at least you havent got to face it all again the next day. Well not too…[Read more]
DaiCro replied to the topic Just Made It in the forum Treatment 14 years, 4 months ago
Hi Eve,
How I managed to get through five full days on the harvester without needing a No.2 still escapes me. I am usually quite regular, (one of the things Janet found attractive about me when we first started courting – well, bless her, there wasn't a lot of choices) – I am convinced it was mind over matter (similar to miners who smoke a…[Read more]
brocho replied to the topic Another 3 months in the forum General 14 years, 4 months ago
Hi David it always makes my day to read a post like yours. Heres to many more posts like it and hopefully they might give you a longer time between clinic appointments Go and enjoy yourselves lots of love Bridget x
BADGER replied to the topic Just Giving… in the forum Off topic 14 years, 4 months ago
Dia
she sounds a brilliant daughter I wish her good luck on the day:-)
Love Jo x
BADGER replied to the topic Just Made It in the forum Treatment 14 years, 4 months ago
Well done Slim
dear Eve
hope the other tests are fine very sensible to get all appoinments on the same day it may be tiring but it will be over in a day
Good luck
Love Jo x
BADGER replied to the topic Another 3 months in the forum General 14 years, 4 months ago
Great news David
you can now relax and enjoy the next three months you are doing so well long may it last:-)
Regards Jo x
eve replied to the topic Just Made It in the forum Treatment 14 years, 4 months ago
Thanks Tom Eliz and Dai
It did take 2 days Tom as the first bloods came in at only 19%,the man next to Slim came in with88%,the first day they got 1.9,so Slim injected him self at 7pm and 7am,that seem to do the trick.4.02 overall .They rang up the same night each time to let us know.which I though was very thoughtful of them.
I have been…[Read more]
DaiCro started the topic Just Giving…. in the forum Off topic 14 years, 4 months ago
I went to my eldest daughter Becky for lunch yesterday… with a couple of hours before she went to work to chill…. but we ended up discussing her 'Just Giving' day.
Bless her… she has secured a function centre wedding suite, complete with a fully licensed bar and separate coffee bar for an evening of fundraising events and has already…[Read more]
DaiCro replied to the topic Timely reminder – me on YouTube… in the forum Off topic 14 years, 4 months ago
Thank you Jean… I will check the link… May 27th 2008… perhaps an update is in order but it is part of my plan to upload a whole album's worth of my all-time favourite self-penned/collaboration songs.;-)
The process was quite easy on this occasion.. Neil sent me his basic lyric… I 'tidied' it up, wrote the bridge and the main part of…[Read more]
DaiCro replied to the topic Just Made It in the forum Treatment 14 years, 4 months ago
Excellent news Eve & Slim… at last something positive has come your way… enough for 2 SCT's.
I started my harvest schedule with a squeaky bum… by the end of the week, after 5 days on the m/c and 2 midnight returns for Pleraxifor (sp) injections, I just scraped in with 2.1m… and I had to wait until Monday am to find out! I was so…[Read more]
tom replied to the topic Just Made It in the forum Treatment 14 years, 4 months ago
Way to Go Slim, thats great news, I also done all mine in one day 🙂
And its about time they sorted the appoitments out to run all in one day, yes Eve its an early start and it will be a long day but worth it:-)
Keep Strong you two and hope it aint long now.
Love and (((hugs)))
Tom "Onwards and Upwards" xxxx
eve replied to the topic Another 3 months in the forum General 14 years, 4 months ago
Hi David
All good news,must admit was getting a bit worried as you seem to be putting your house in order,I suppose this Myeloma lives with us all the time,and its presents is felt when the time comes to see the consultants.!!!
So what have you planned another cruise,or just a good summer in good old blighty.???
What ever is just enjoy.love Eve
eve replied to the topic Another newbie in the forum Newcomers 14 years, 4 months ago
Hi Steph
Welcome as a carer you will have different concerns so i hope this site gives you some in sight,any time your worried or just need a bit of a boost it is worth coming on,so do not be a stranger,this myeloma affects people in different ways this is why they say its such an individual illness.
It is hard at first because you are…[Read more]
eve started the topic Just Made It. in the forum Treatment 14 years, 4 months ago
Hi Everyone
After two days harvest managed to get 4.02 so scrapped in without having to do another day again very impressed with Kings,but glad it is over,and I am just the carer LOL.so you can guess how Slim feels
Next Thursday a full day of test starting at 8.30am.!!!
After first consultation with doctor nothing has happened as he…[Read more]
tom replied to the topic Another 3 months in the forum General 14 years, 4 months ago
Drum Roll :::::: A Well Done That Man 😎
Well Done David am pleased you have sailed through it, keep it up M8 and you can lay off that box for a bit aint no rush to finish it 😀
Tom "Onwards and Upwards" x
tom replied to the topic Will anything work? in the forum Treatment 14 years, 4 months ago
Hi Andy
Well you have some stubborn pp's aint you?
I hope you soon get the pesky things sorted asapget in and get that SCT underway, you know amsending you great vibes for it all to happen, hang in there Andy its an uphill struggle but you will do it:-)
Tom "Onwards and Upwards" x
eve replied to the topic A traumatic start to my CDT! in the forum Treatment 14 years, 4 months ago
Hi Mavis
The things you do,to land your self in hospital,I hope they are waiting on you hand and foot,LOL only joking it,s a scary time for you,but the good news no compression on the spine,that must be a huge relief for you,you are in the best place as the main thing is to get you a good pain relieve,plus get you on your pins.
It amazes me…[Read more]
eve replied to the topic Will anything work? in the forum Treatment 14 years, 4 months ago
Hi Andy
Sorry to here your news,this just might be some help to you!!!!
In the under fifty ,s there is a chap called Mike Barker who,if i am correct has SCT when his PP were high,again if i read about it correctly,he decided with his consultant to go ahead with SCT.
It might be worth checking his post!!! I do not think he has posted for some…[Read more]
DaiCro replied to the topic Will anything work? in the forum Treatment 14 years, 4 months ago
What's your pp score Andy? Any movement at all since diagnosis? Have the medics indicated a figure for going ahead? Its good that there's no upward movement anyway… it sounds like your pp's need some sort of a kickstart in the right direction… perhaps you can get them to lick the equivalent of a PP3 battery.;-)
Let's hope the Rev & Dex…[Read more]
DaiCro replied to the topic Another 3 months in the forum General 14 years, 4 months ago
Good for you David… now put mm out of your mind until the few days before your next consult and enjoy your strength and health.8-)
Regards:-)
Dai.