Hi Steph & Andy, may I wish you both a 'wish you didn't need to be here' welcome… but here you are and so are we but in no time at all it will be just 'us'.:-D

It's never 'only me', there is nothing new, from the most personal of side-effects (toilet troubles etc.,) to major procedures… there is always someone just ahead of you and soon…[Read more]

Hello Steph and Andy

this is not a place most people think they would have to join but welcome
everyone here is so supportive and helpful there is usually an answer to any questions you might have and Myeloma help line is priceless
Keep well
Regards Jo x

Hi Jean

how are you and Frank is he behaving himself like most men I suspect not
looks like you have had a bit of good weather in NI lets hope it lasts have you booked a get away yet for this year
Love Jo x

Thank you Nettie,

Like your sterling and exciting jump, which left me breathless, it shows that we are more than the sum of this damned disease… that we have interests and skill-sets and achievements beyond those of suffering stoically.
😐
I wish we could get more people to use the off-topic to share their interests etc… 😎

Dai.

Hi Mavis

so sorry you are having such a bad time I managed quite well with cdt and my kidney function improved they thought it was all the extra steriods which helped the kidneys I do hope they can manage your pain when they do that you will be able to think more clearly. There are lots of new treatments down the line I read about something new…[Read more]

Hi Steph

A Warm Welcome to the group, am sure you know by now that this "Mob" will help you get out of any Low Ebb that the MM has and will cause you and Andy to have we tell them to keep chin up (chins in my case)

As you know we tell people carers and MM'ers to take it one day at a time.

Not forgetting to rant and rave on here if the…[Read more]

Now Mavis look what you have gone and done? I leave you for a few days and you go and throw yourself in the Hospital :-0.

But seriously I am so sory to hear that you have done a decline, but trust me Girl you are one that will throw that rope up high and drag yourself back up to top form (well mm top form) again.

You are in the correct place…[Read more]

Hi all,

Well we have all heard the term 'frozen to the marrow'… and what have we all got in common? A cancer of the plasma cells in that very marrow… I know that I have virtually no regenerating marrow in my right arm, my upper left arm and my left femur… + my ribcage, which apparently looks like a pin cushion, with holes made by…[Read more]

Gill you certainly arent the only one !! We all have our way of handling things . I know that if Jeff ever said that I would freak out , yet its ok for me to say it !! love Bridfget x

Ouch…

Sorry to hear you are having such a hard time of it Mavis… but you are in the right place and every test they do now will stand you in good stead once they have you balanced and going forward.

I too found that I was/am riddled. With a starting block stat of 3,600 Kappa Light Chains I am not surprised but although I was sent to see…[Read more]

Hi Terry

I also have been sat at a window when the sun has been throwing itself and its heat straight at me an had a "Snugglr Blanket" "other brands are aslo available lol) wrapped around me. yes i have (and still do) used a thermal vest in cold days (works a treat) as i cant see any point of feeling cold when you can buy borrow or nick( please…[Read more]

[b]Debs wrote and I quote:[/b]

[i]'Each site offers slightly different things…here you get a wider breadth of experience from lots of people that care very much, on the other site you can let rip in a way that this site won't let you unless you use lots of stars and hash signs!!!'[/i]

No longer the case people… I had a word with admin a…[Read more]

Jean

I am so pleased that the day went well and the service was what Derick would have wanted.

Take Care and am sending (((Hugs))))

Love and Hugs

Tom xxx

I was declared in full remission after my course of Velcade… my expected 5 year SCT remission turned out to have lasted just 10 months.. and so I hoped for a year or so from Velcade after a miserable 6 months of bad side-effects… after three days in remission I came down with a cold (6th October, 2011) and still had it when I was declared…[Read more]

Hi Kirsty,

I wish you as warm a welcome as can be expected… an unwelcome welcome if you like… an opposite, like the old TV programme, 'I Wish You Were(n't) Here'. But here you are so welcome.:-D

This is the only place on the net that you will ever need or ever need to be. 😎 🙂

There are a few American blogs and newsletters…[Read more]

It was untimely but I am so pleased for you that the farewell was both fair and well. Billy sounds like the sort of person you would like to lead you out… as for me I am opting for a DIY… on CD with pauses for whoever `i choose as my frontman… most likely my daughter Amy, a professional singer and used to the tech. I have included brief…[Read more]

Hi Teresa (my Irish Grandmother-In-Law had your spelling but was called Thirza):-)

Good luck with the trial, it sounds pretty powerful (I've been down the Velcade route). It sounds like a double whammy because Velcade has similar properties.8-)

I relapsed in January (confirmed January 9th) and was sent home with Revlimid and…[Read more]

Thanks Gill,

Given half the chance (and after a private word with my lead nurse) I will make it happen… although I won't play the mm card with Janet, I just need to assuage her fears and convince her that with Roy and Angie's support it is very doalble.:-)

On another matter, I recall the problems you were both having with Stephen's…[Read more]