DaiCro replied to the topic Board activity in the forum Off topic 14 years, 4 months ago
Bridget,
You have been an absolute rock to so many of us for so long and yet you always manage to make us smile and feel relaxed… you do more than your part to make such an intrinsically morbid place to be into a delight at times.:-)
God bless you, I love you.8-)
Dai.
brocho replied to the topic FUEL BILLS in the forum Off topic 14 years, 4 months ago
Hi Paul well we all need to claim what we are entitled to these days, I am still looking for the letter with the name of the scheme on it though!! So pleased you got sorted at least thats one less worry for you and Rachel Scotland sounds good have a great time and post some pics to make us jealous love to you both Bridget x
brocho replied to the topic New bird(ish) in the forum General 14 years, 4 months ago
Hi Kirsty a big welcome to you although this site must be the last place you thought you would need. I am glad you found it though as it will help you get your head around being diagnosed with myeloma Try not to look elsewhere on the internet as a lot of the info is out of date and some of it is just plain scaremongering You must still feel…[Read more]
tom replied to the topic Mini Allo Update in the forum Treatment 14 years, 4 months ago
Hi Ian
Well done M8 am pleased that all is going well for you 🙂 and am sure the side effects will get better as time moves on.
I never (touching wood) never suffered with GVHD? and if i did then I didn't know about it 🙂 you do right keeping fit and away from the hospital, Long may it continue 🙂
Thanks for the Good News Ian it's…[Read more]
tom replied to the topic Relapse after 5 years in the forum Newcomers 14 years, 4 months ago
Hi Janet
Its a Bugger but I have had a cough and (forgive me) a lot of flem (uck) since i found out I had MM :-/ so it might be one of the symptom's when I think about it? anyways with my cough Elaine (the young bride) knows where I am in the shop lol.
Hope your soon better
Love and cough treatment
Tom "Onwards and Upwards" xxx
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 14 years, 4 months ago
Hi Dai
Janet sounds a very lovely Lady and that am not surprised nor shocked as am sure you are a true gentelman and would only marry a Lovely Lady 😀
We know how you and Janet feel about Kids (gran or own) and you know how Elaine (the young bride) and I feel about ours what with all the photo's i have posted on F/B 😀
Our three…[Read more]
tom replied to the topic New bird(ish) in the forum General 14 years, 4 months ago
Hi Kirsty
Like the others a warm welcome to this great site?
Sorry you had to join us but as away now you have opened the doors 🙂
As for your first one the advice i can give so far is take it slowly and one day at a time, lots of members here going and gone through what you are about to do.
I cant advice YOU what to do but I can…[Read more]
tom replied to the topic Will there be anything else? in the forum Treatment 14 years, 4 months ago
Lol Dai as am sure you know I am (or was) a hairy ass docker so am now up to speed on that Lol.
And same goes for you Dai if you feel with the help of your brother that you could do the trip then I for one (and you for two) would say go on lad get on with it, you will enjoy it, it might be better to hire a Cmper van as you could stop and sleep…[Read more]
BADGER replied to the topic Will there be anything else? in the forum Treatment 14 years, 4 months ago
Wonderful news Gill:-P
I hope you have a marvellous holiday:-)
Love JO
brocho replied to the topic Board activity in the forum Off topic 14 years, 4 months ago
Hi Dai funnily enough I have been thinking the same thing lately I really miss the chatty lighthearted moments on here This board is brilliant for finding out facts re mm and even more so for support but its so nice to be amongst like minded people and relax too. I probably have been a bit quiet lately si I will get back to normal I think love Bridget x
DaiCro replied to the topic Will there be anything else? in the forum Treatment 14 years, 4 months ago
If you know what I meant then you are right to pretend that you don't… if you genuinely don't know what I meant then you don't need to pretend… best not really.:-D
But it was good wishes of the 'thank heaven for that' variety… I am sure that Stephen can translate.;-)
Go girl, pack now and go… and enjoy every single minute of your…[Read more]
DaiCro replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 14 years, 4 months ago
Ha, you are right there Tom.
Min has explained to me that I can't make plans for Janet after I have gone… she is unique to herself and will deal with my passing as she fits, or as the occasion takes her… but I can't help looking at how our friends have dealt with loss and grief… from Roz, Tina, Sarah and Min and wonder which path will be…[Read more]
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 14 years, 4 months ago
Ditto to that Dai, and it looks like she is very active and keeping herslf busy.
tom replied to the topic Will there be anything else? in the forum Treatment 14 years, 4 months ago
Well A well done you lot, and a well deserved trip to france I must say 🙂
Now I can uncross my fingers Have a great time and just give us a little thought when you are away 😎
Love and Hugs
Tom "Onwards and Upwards" xxxx
Ps Am not sure what Dai Means??:-P
DaiCro started the topic Board activity. in the forum Off topic 14 years, 4 months ago
It it just me or has the board become inordinately quiet recently?:-S
I know we all take small breaks and holidays for myriad reasons and there has always been a fine mix of regular, semi-regular and intermittent contributors… daily chatters, shakers and movers, information givers, responders to such information and those that lurk, reading…[Read more]
DaiCro replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 14 years, 4 months ago
Hi Gill,
A few weeks ago Min decided it was time to move on from being an active member of the forum, although she may well look in from time to time.
I don't know if you have a facebook account but you can find her (and many of us) there. Look for Min Cato and request friendship.. if she is in a good mood she might sign you up.:-0…[Read more]
DaiCro replied to the topic Will there be anything else? in the forum Treatment 14 years, 4 months ago
TFFT;-)
😀 😎 🙂
Dai.
DaiCro replied to the topic Rev & Dex – Cycle 2 & Holding in the forum Treatment 14 years, 4 months ago
Hi Tom 🙂 ,
In a nutshell my bloods have to be monitored closely to ensure that they do not drop to the point where either the prescription has to be [b]A[/b] altered (downward) or worse still, [b]B[/b] discontinued.:-(
After Cycle 1 there is a discernible drop but not to the point of either [b]A[/b] or [b]B[/b]… because of the nature of…[Read more]
tom replied to the topic Moving at last in the forum General 14 years, 4 months ago
Well Eve you certainly aint any of the above 😀
As I said in Last post I had mine all done prior to SCT some at the start of treatment some nearer my SCT , but am not sure anyone can say whats Normal with our Consultants (as good as the are) they all work in a different way.
Good Luck and hope you and Slim dont have anymore Hiccups…[Read more]
tom replied to the topic Rev & Dex – Cycle 2 & Holding in the forum Treatment 14 years, 4 months ago
A Well done that Dai and his new Friends. Its looking good dai and am sure your (The next comment will be copied and pasted :-0 ) Red Blood Cells (HGB) have dropped a full point from 10.7 to 9.8 and my Neutros are down a bit from 4.0 to 2.6 since my interim bloods a fortnight ago but my White Blood Cells (WBC's) at 5.0 and my Platelets at 147 are…[Read more]