Hi Andy

Well do you feel,you have had your hand slapped!! Lol

Andy after all these years on this site and your countless experiences of so many,many different chemo,and people with different opinions and approaches!!!

Hope you intend to go out for Sunday lunch and enjoy a pint of real ale,treat it the same way as the BT .lol.

As for…[Read more]

Hi Harmony

I do not know much about counselling as I chose not to take that root,I am a firm believer that unless you have had the same experience how an earth can you help some one,there are very good books on dealing with people who suffer a trauma.

As for telling people or not to tell is a hard one,try not to have regrets about it,people will…[Read more]

Hi Deb

Have they released any information concerning the padimac trials,because the few people who I know who were on it,it did not work for them!!!!

There is no harm in trying for the new trials if you do not get carfilzomib ,you can pull out of trials,you can also find the price of drugs by going into NHS pricing for drugs.!!

I do think you…[Read more]

Hi Sal

Welcome,I think at the beginning it is a big learning curve,your husband will just want to get on with the treatment and I think you would be a help to him if you learn,t all you could about Myeloma plus side effects of the drugs,although it’s your husband who has Myeloma it will effect the whole family,and you will have to be the strong…[Read more]

Hi Dave
And thanks am sure we will.
That sun on the back of my fat neck is gonna be real good.

Tom onwards and upwards x

Hi Izzie
Well what can I say ??

I had my SCT in December 2009 and up until 2013 was in remission and drug free, so the first transplant gave me a long and drug free four years and for that am pleased.
But did I have off days ?? Yes I was weepy and yes my head was low, lower than I wanted it to be.
How did I do I cope ??? Well I fight the myeloma…[Read more]

Hi Michele
Dont worry about it being in “Stereo” as i can only hear from one ear ha ha.

Thank you and we will, you do right working your holls that way its best you can book well in advance enjoy.

Love Tom Onwards and Upwards x

Morning San
Am sure you know Fun is my Middle name so am sure its gonna be great Thanks.
I just need you all to behave while am away,I know most of you will but am sue we have some nawty ones that will misbehave while am away ha ha.

Catcha soon

Love Tom Onwards and Upwards xxx

It’s not a problem Chris and am sure it will work out well and I wish you luck I. Your decision whatever it is.

As for the myeloma we knew it would come back it’s just a when and how, am blessed with having no bone damage (that we know of) so that’s a blessing and as always it’s onwards and upwards.

Love Tom xx

Hi Dick and Carol

Well it was few weeks I was offline packing moving then unpacking, hated not getting on here as I missed you all 🙂

The young bride and I can’t wait as we are really ready for it bit of sun on me bald head will do us both the worked of good and get us ready for the next run of drugs.

Take care and stay well you all.

Tom…[Read more]

Hi Carol

Hey a well done you and your stem cells that’s the best I have heard of 😉
I collected enough for two in 3/4 hours but they put them in three bags so they gave me them all back so have none in reserve :-/ .

Am sure whatever you wear they will ask q good luck and hope your cells are not in the freezer for long.

Love Tom onwards and…[Read more]

Hi Chris

Well done on the remission am pleased for you.
As for the Maintanance regime I was never asked if I wanted to go on it so am not sure what I would have done to be fair.

But I gad my SCT in December 2009 and I gave had four years remission drug free which was great for us all sorry to say the myeloma has become active again, but four…[Read more]

HI Jean and Frank

Sorry for delay but am now back on line 🙂
Also sorry to hear Frank is not well, I hopw he is soon sorted out and back to “Fine Fettle”
Love Tom onwards and upwards xx

Hi everyone
Sorry I have not been on for some time but I have been busy packing and moving home, nw settled in a nice two bed bungalow, renting it and have shoved the money from the sale of our old house in the bank, now no money worries ha ha.

Yes am sad I only got four years but happy that I have another treatment to move onto, Elaine (the…[Read more]

Morning Carol

Well as I recall it the more pain the better mine lasted three days, as for childbirth lol I know nothing he he.

I got enough stems out in one day took three or four hours

Good luck with yours.

Love Tom onwards and upwards xx

Hi tom, you was another that I remember from when mum was ill. I am so sorry to hear your news. Now you have to fight the bugger and stay positive. I hope everything goes well for you xxxx

I have not been on for a long while and was so saddened to hear this news. Dai was a very good listener, and giver of advice when I was going though the devastation of mum and her mm. He will be sorely missed on here and I hope he is now at peace. He is being laid to rest on the same day as my mum was 2 years ago. I am thinking of Dai’s family at…[Read more]