Hi Eve and Slim

Am pleased that things are moving along at last 😀 , Its good to have the treatment near home am sure all the travel isn't that good when you arn't feeling 100%

The train sound a good idea, and could Slim use his Blue badge to make less costly?.

Good Luck for it all and Give my regards to Slim.

Love
Tom "Onwards and…[Read more]

Hi Everybody
Well things are moving fast now,all dates have been moved forward.

Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P

Off…[Read more]

Hi Debs thankyou and please dont be sorry for not seeing the post I have seen your facebook posts and its great to see you are getting back in the swing of things and feeling beeter than a few months ago So I am glad that you havent got time to come on here You are doing amazingly with your ball preparations I am totally in awe as I wouldnt know…[Read more]

Hi Zoe I am so sorry you and Dan are having to go through the nightmare that a diagnosis of myeloma brings especially as he is so young, I was 52 and still felt it was too young to have cancer It is a rollercoaster in the beginning because its all foreign even the words used sound strange but it will get easier I promise As Dans treatment gets…[Read more]

Dear Nicola,

You must feel desperately cheated that your Dad has not had the chance to fight his way through the available treatments… and your Dad will be feeling the same. I am sure that there are many of us here who know that there were times of touch and go for us… but we got the chance to move on.

Even at this seemingly late stage…[Read more]

Dear Nicola

I am so sorry your Dad has got to this stage so fast, My thought's are with you and your Family at this sad Time.

Please Take Care

Love and Hugs to you all
Tom xxxx

Dear Nicola I am so sorry it seems so unfair that you are going to lose him to this rotten illness after swuch a short time. I hope you can get him home but if you cant he will have the most important people in his life with him and will know how how much he is loved Your dad will never leave you , he will always be in your heart , wherever you…[Read more]

The very best of luck Andy… it sounds like a determined blast from the medics to get those pp's down a bit more… enough to set a plateau for your SCT (20 ish?).8-)

Although your pp's are resisting the treatments they are not moving either… so it sounds like a stand off. I am sure this rather drastic set too will do the job… and you…[Read more]

Hi Nicola

I am sure Micky will be soon sorted out, and I know that Hospitals aint that good for the rest and relaxing but it will be better for Micky as they can sort his problems out as they go along rather than re book another out paitants.

Give my regards to Micky and please tell him that I and others have been through it and came up…[Read more]

Hi Amelie,

They don't collect stem cells for a specific number of transplants… 2 is usually the maximum and that is determined by how may cells get harvested.

They usually hope for approx. 5 million = 2.5 per transplant. I, for instance struggled over 5 days on the harvesting machines, including two late night dashes back into the…[Read more]

Hi Tina we are in a similiar position I also have a tumour on my spine which is very close to causing spinal compression Because I have already had radiotherapy on that site I was only able to have one dose this time . So back on Dex and hoping it keeps it at bay Hope the pain gets sorted soon, make sure they know how bad it is love Bridget x

Hi Andy
Am sorry to hear the treatment is not doing its job 🙁 But Good Luck for the DT Pace? I also have not heard of that.

Tom "Onwards and Upwards"

Hi Andy sorry Velcade didnt do the trick hopefully DT Pace will . I had this a few years ago and its fine whilst you are having it but watch out when you get home it can knock you for six!! You will need to check your temperature regularly as it can set off an infection which needs very prompt treatment Fingers crossed it will be fine for you ,…[Read more]

Hi Andy

sorry the meds have not worked for you so far thats a bit od a bummer I have not heard of the regime you are about to start but i wish the the best of luck
Kind regards Jo

Many commiserations on that score Tina.. that's how I started… but they failed to diagnose MM at the time and blasted the tumour with several high doses of radiotherapy over a six day period (A double dose on the Saturday, Sunday to rest and then single high doses Monday to Friday inclusive).

It did the job.. but fried nearly every stem…[Read more]

Hi Amelie,

I am glad that John is going to receive his 2nd SCT. They will use Velcade because it has a good chance of getting him to the right level but its effects last far less than Revlimid, which is a long term therapy (rather than a short term knock back). Revlimid will more than likely be John's next treatment… but the good news is…[Read more]

Hi Keith,

I trained on the early Macs (very basic computing skills) circa 1990/92 and fell in ove with them but settled for a PC at home.

My big dilemma came in 1998…. when I finally went for a custom built Gateway PC… which was a wonderfully easy to use machine, over a Mac. I finally switched to Macs (desktop and laptop in 2006 and I…[Read more]

Hi Paul

IT took me a long time to get Slim to claim benefits,his thinking, was he was retired.he would not get anything.
All though it was costing us a lot of money on petrol, parking,and general things that I would not normally buy,all his clothes were to big for him,plus lots of extra washing,not to mention the carpet that was ruined.

I…[Read more]

Hi Paul glad you got hold of someone at last and I hope it gets sorted quickly for you love Bridget x

Hi Tina

Am sorry to hear you are having to delay your treatment 🙁 because if you are like me I want it all to start "Yesterday" but am sure its for the best, get shoulder all better then you can start again 🙂

Good Luck and roll on April 11th, its not long now xxx

Love