Hi Helen,

That's alright then.;-)

On my second week, with my second Dexday yesterday… so feeling tired but not much sleep.:-/

My shoulder is improving slowly, so I am hoping that that is the Rev doing its work 😎 . I have also felt a little sore in the areas of my ribs where pain was recurring, so once again I hope that that is the…[Read more]

Hi Mavis,

I just checked in and looked up and down this thread a few times because I know I answered earlier… ???

Still, it's either in the ether or otherwise I binned instead of sending… its 'Dexday' TM, so nothing would surprise me.;-)

CDT was not exactly pleasant… putting chemo-chemicals into your body and asking them to seek…[Read more]

Hi Nicola

First and formost am with you on the Wine "Red" and next I know its hard to see a loved one feel and look ill its not good to watch, but on the bright side we have a lot of people on here that went to nearly bottom then something that was tried kicked in and worked as Dai says Keep your Dad as strong as you can and keep dad as…[Read more]

Hi Nicola,

Velcade worked brilliantly for me… I had six infusions but nearly all the good work was done in the first 2 or 3 cycles… including bringing my kappa light chains (Bence Jones Myeloma) to 0 and deleting a secondary tumour on my sternum on the way.

The downside was that as soon as they took me off the treatment my myeloma…[Read more]

Hi Bridget just been reading all your posts. Like everyone I can't find the words but wanted to let u know I am thinking of you and will be praying that they find something that will help you. You are so positive and an inspiration to us all. You are always their with a kind word for others. Keep that positive attitude. Day at a time Love kay x

Hi Mavis I was on CDT and thalidomide gave me lovely night sleeps. Dex kept me awake and made me irritable when I came off them each time. But all in all I still continued to work 4days a week. I injected myself each day and I found it was ok but I agree with others don't do it if u don't feel comfortable with it. All the best kay x

Everyone is different. It will be up to your consultant. But whatever they say they know what they are doing and it will be for the best. Have another chat with them and ask the question. I just wrote down questions as they popped into my head. There is light at the end of the tunnel now. Best wishes kay x

Hi Mavis
Lets hope this is just a blip and your BMB and your test comes back negative,Giving your condition you will not go on the intensive pathway,so should have a break in treatment.Slims has injected himself for over 6 months,because of blood clots,so you will soon learn

He did not loose his hair,but it got very thin,and blocked plug…[Read more]

Hi Nicola sorry to hear Velcade didnt work for your dad but as Keith said you never can tell Its very possible that Revlimid will work for him even though Velcade didnt Hang in there hopefully he will start to improve with a new treatment plan Dont forget we are here if you need us love Bridget x

Hi Shirley
Just replied to a post on treatment you might be able to answer a few questions???? sorry to put this on you .Eve

Hi Penny

First may I say I cannot help you,but I have replied to boost you up to the top again ,otherwise some post get lost

I think I am correct in saying Shirley has had one from a sibling and there are a few people in the process,I know Shirley does not post much,so look out for a girl in a cowboy hat LOL.I think she is based in…[Read more]

Dear Mavis so sad to hear you need to start treatment but hopefully CDT will knock the little blighter back !! I remember feeling exhausted and very weak after the first 2 cycles One bit of advice dont force yourself to do things because you feel you should be able to do them , rest when your body tells you . I didnt lose my hair either One of the…[Read more]

Hi Mavis

Well am sorry the Honeymoon is over.

I was on CDT prior to my SCT, so Bad news is it made me tired and weak:-/ Good News It was the start of putting me into remission:-D (still no hair loss) then SCT I had that December 2009 it was OK Ish?

Would I go through it again? well it has to be a big yes. oh and lost my hair when in…[Read more]

Hi Paul some hospitals have Macmillan advice centres based there pop in and see them If not ask your specialist nurse to refer you to Macmillan for help with benefits Someone will come and see you at home and go through it all with you . I think your GP could also refer you . Let us know how you get on . You will get backdated payments too which…[Read more]

Hi Paul I am sure you arent the only one to delay filling in those forms. I was like it too at first My advice is to get a Macmillan benefits advisor to help check your entitlement and fill in the forms with you If Macmillan arent avaialable try the hospital social worker Good luck love Bridget x

hi Chris

glad you are doing well and your PPs are coming down all be it slowly congratulations on your forth coming wedding I know St Audries its a lovely place:-) I hope you have a wonderful day Keep well and strong
Love Jo x

Hi Chris,

I'm glad to see that your pp's are dropping steadily… the more i see and hear about mm the more convinced I am in the 'sure but steady' aspect of treatment and response. In America the medics seem to follow the 'little but often' approach and they are getting much, much better results than us… + they are also not slaves to the…[Read more]

Hi Mavis,

My consultant hasn't ordered any new scans etc., saying that while it might be a coincidence, where myeloma is a factor she doesn't believe in coincidences. Remembering that this is not in isolation… I do have other, older areas that have flared up at this time, specifically in my ribs.

I go back next Monday (week tomorrow) for…[Read more]

Hi Keith thankyou for the info but I did get a laptop , no patience at all !! In the end I got a decent one in the sale at PC World It was advertised at £520 before the sale and reduced to £310 Whilst I dont believe their pre-sdale price was that high I have seen the same one for over £400 so am quite pleased It does everything I need it to and I…[Read more]

Hi Chris
Congratulations on your forth coming wedding,you can say one thing about this B—-y Myeloma,it does put every thing into perspective.

Slim and I lived together for 30 years decided to get married before mm came along just never got round to it,finally set a date,but never made it as he ended up in ITU,so are marrage took place in…[Read more]