tom replied to the topic P3 in the forum Treatment 14 years, 5 months ago
Good Luck with your P Dai and hope you soon get told you can have what you want and need. Keep up the good work Dai and dont spill ur P
Tom "Onwards and Upwards" x
tom replied to the topic Advice required in the forum General 14 years, 5 months ago
Hi Jean
I would take a run up to A/E and get it checked out best be safe than sorry
I did with my arm told them am not sure what I have done but I have MM and would like it Xrayed they were brill done me first in and out in an hour 🙂
Good Luck and hope its soon sorted
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Shingles in the forum General 14 years, 5 months ago
Hi Gill and Stephen
Sorry to read bout the chicken pox, we have just had two grandsons down with it it aint good but worse in the nether regions (double bless)
Hope all better soon xxx
tom replied to the topic New comer to site in the forum Newcomers 14 years, 5 months ago
Hi Dave a warm welcome to the site, pleased you found us, only had one SCT and just a mere Baby at 56 😀
Good Luck with whatever you get 🙂
Tom "Onwards and Upwards"
eve replied to the topic Treatment Free 🙂 in the forum Treatment 14 years, 5 months ago
Hi Tom,
I am so pleased for you.I hope we are not going to loose you,now your fighting fit and officially stamped to be first class condition.:-(
We need more people like you on this site,to tell us the good side,it gives a lot of people hope,so don,t think about loosing us,still cannot find you or your breakfast on FB,or Mins.
Love Eve
eve replied to the topic Starting Chemo in the forum Treatment 14 years, 5 months ago
Hi Tina
My husband was on the myeloma X1 trials had 6 cycles of CDT with a few hiccups in between,It is a 3 week cycle of tablets which you will take home with you nurses will go over all the tablets with you,there will be extra tablets to stop you feeling sick plus others.You need to write out a chart or get a dairy from Ellen its a must for…[Read more]
tom replied to the topic Treatment Free 🙂 in the forum Treatment 14 years, 5 months ago
Thanks Jean yes I am well we are over the moon to be Drug and bleach free Lol And Long may it continue as you say xxx
Hi Bridget, Am sure you are correct we all need Good news as we travel along the MM route to remission.
And Jo Many Thanks for the BIG Hug ((hug)) and you know am sending one Back (((((((HUG))))))
And Dai am real pleased I…[Read more]
DaiCro replied to the topic Treatment Free 🙂 in the forum Treatment 14 years, 5 months ago
Good on you Tom,
It's good to hear really positive news… and your continued presence and positivity are well regarded and personally speaking always gives me a smile and a boost.
Thank you.:-)
Dai.
BADGER replied to the topic Treatment Free 🙂 in the forum Treatment 14 years, 5 months ago
Yippee Tom
just the news we need to cheer us up keep going onwards and upwards
Big ((((hug)));-)
Jo x
brocho replied to the topic Treatment Free 🙂 in the forum Treatment 14 years, 5 months ago
Whooppee!! Thats the sort of news that cheers us all up Tom !! Enjoy yourself love Bridgetx
tom started the topic Treatment Free :-). in the forum Treatment 14 years, 5 months ago
Yep as the subject says "Treatment Free" I have been to see the Consultant Today 23/02/2012 and he tells me My bloods are all spot on so am on a four month visit for the next time 😉 and no Zometa infusions no tablets to take no Bleach to shove into me Nothing zilch8-)
its the way to go these days ye I still feel tired but do I try and do too…[Read more]
tom replied to the topic Starting Chemo in the forum Treatment 14 years, 5 months ago
Hi Tina
Cant offer advice as I have never been on a "Trial" but wish you Luck, I have had SCT in 2009 and will say it has been worth it 🙂
Love Tom "Onwards and upwards" xxx
tom replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 5 months ago
Aww Bridget
You are in the wars aint you bless. its a bugger to have this keep popping up, its great to have had it all done on the same day as its over and done with but am sure they could have found you a side room so you could dribble in peace:-D I hope the cold/fever and shivers you had are not the onset of flu?
Hope its soon sorted…[Read more]
eve replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 5 months ago
Hi Bridget
Sorry to hear your having a hard time,i can understand you not wanting to go back another day for treatment,but all that time at hospital must have left you exhausted:-S lets hope it works.Eve
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 5 months ago
Hi everyone just a little update Today I saw the radiotherapist and their decision was that I could have have one dose of radiotherapy on the tumour I think they would have preferred to do more but because I have had treatment on the same site before they were unable to They were very good though as I was able to have the scan and treatment…[Read more]
brocho replied to the topic P3 in the forum Treatment 14 years, 5 months ago
Hi Dai blimey you are going to have a full on day Monday ! Still it will be worth it if you get on the trial All fingers toes etc are crossed for you love Bridget x
brocho replied to the topic Same old same old (ish)… in the forum Treatment 14 years, 5 months ago
Hi Sylvia good to hear from you but sorry you are back on treatment Eloquent seems an unusual name for a trial made me chuckle! When I was on Rev and Dex the fatigue was a bit overwheming but you do get used to it Constipation can also be a problem , my docs reccommended using 3 different types of laxatives regularly eg Movicol , Senna and…[Read more]
brocho replied to the topic help with dealing with the nausea from CDT please in the forum Treatment 14 years, 5 months ago
Hi Cinzia poor you sickness is really horrible . I have founf Odansetron to be the best ant-sickness meds , it can be given as IV before your chemo Have a chat with the nurses I am sure they can come up with something love Bridget x
brocho replied to the topic Starting stem cell harvest next Monday. in the forum General 14 years, 5 months ago
Hi Terry it seems wrong in this age of wireless technology that wifi access isnt available especially when you are stuck in hospital. If your home broadband is with BT they have wifi access all over the place and its free , you can download a map to see which is the nearest London has loads Good luck on the 5th you will be home before you know…[Read more]
DaiCro replied to the topic P3 in the forum Treatment 14 years, 5 months ago
Thanks Folks…
I took the bottle in and paid for the testing with some bloods.
While I was waiting for my bloods test my consultant came past and collared me. She said that she had had an email from 'Onxy' the manufacturers and leaders of the 'Aspire' trial and they want all screening results in now!
I have been consented but not…[Read more]