Dear Mavis thankyou for your kind words you always put things so well from the heart. I am lucky in being mobile still but that causes the medics to panic as I dont react the way they expect me to!! When I was diagnosed they couldnt work out how I was able to walk when 3 vertebrae had been destroyed and this time they are really anxious as the…[Read more]

Hi Nikki
Your Auntie maggie seems to be one tough cookie to not realise she had a broken jaw, lesions are often there in advanced myeloma they should respond to treatment sounds if Maggie is on CTD which which is first line treatment.

The issue seems more to do with your aunties lung situation,swelling when people are bed ridden is usually…[Read more]

Hi Terry good luck for Monday it wont be a walk in the park butit doesnt last for ever and to be drug free and have a long remission makes it worthwhile. I agree with David a laptop and phone are essential to stop boredom and you wont feel so isolated Perhaps you could ask if you can take your own pillow in hospital pillows are horrible npoisy…[Read more]

Hi Pilgrim
Well lets start as we mean to go on,plasma cells,every person has up to 5% in there bone marrow,this is normal,I wish that my husband had that.
Who needs a left arm,any person that does not have the use of one.
I hope you are breaking open the champagne as I type,or may I suggest walking a mile in some ones shoes who has a disability…[Read more]

Dear Sue I can only imagine how tough the last few months have been for you both , it really seems so bloody unfair after all you have been through . I hope that radiotherapy does the trick , as you say its been caught early and from what I have read the success rate is pretty high. I can understand how poerless you must feel when there is no…[Read more]

Hi Geri

Yes I found you On F/B and am pleased you will be gentle 😀

Yes am doing great its been well worth the bad bits and bobs to be in Remission and have NO ongoing treatment needed nor needing to be planned 😎

I wouldn't shove the books or mags to the back of the wardrobe I had mine on table in living room and would use them if I…[Read more]

Hi and welcome
I think everyone has said it all at present but just wanted to add my very best wishes to you.
This is such a frightening time and my heart goes out to you having been through the mill myself since 2005. I have had the chimo and SCT and at the moment am enjoying a period of relative good health so hang in there! There is so much…[Read more]

Hi Tina
So sorry that we are meeting because of your bad news you must be reeling at the moment. At least you have come to the right place for some support – ask anything at all as anything that worries you is important.
I had my SCT in Feb of 2011 and although my recovery has been slower than I would have liked I am sure that is because I am a…[Read more]

Hello Kerry
Sorry you have both had to join us and that your having such a rotten time at present. I think everyone has said just about everything – thats the big thing about this site, having lovely people share their knowledge and practical advice is such a support.
Hope that the pain is now getting sorted out and that things are a bit calmer…[Read more]

HI Zoe,

There are a great band of carers here… like buses you might have to wait awhile but then they will all turn up together.:-)

Right now you must feel like someone has pulled the carpet from under your world… the shock and coming to terms with MM must seem overwhelming… but it does start to ease as you find out about the medic's…[Read more]

Hi Min,

Its great to see that life in general is keeping you upbeat and busy… you are surrounded by love… most of it unconditional, excepting perhaps a few doggy treats and their favourite dinners.

I'm glad you made a friend, even if the 'commonality' was the least expected and the last wanted.. ife really is 'like hat' at times.

I…[Read more]

Hi Kerry and Melvin

A warm welcome to the site and sorry it seems to have hit fast and hard, take it in that when they find what helps Melvyn everything will fall in place, keep srtong its an uphill fight.

Tom "Onwards and Upwards" xx

Oh Sue

I am so sorry to read about your Cancer its a bloody bugger. I hope you soon get that one sorted out and the treatment you have is not as evasive as MM treatment is.

I know its not much of a help but we also have Double Cancer in our Home 🙁 Eliane (the young bride) was diagnosed with Breast Cancer In Jan 2008 and I was told I had…[Read more]

Hello Kerry
So sorry to hear about Melvin it must have been such a shock as it is for us all I have been lucky not had bone damage but my kidneys have been badly damaged. This is such a good site for support help and advise and the myeloma help line can be invaluable they are so kind and informed
love to Melvin
Rgards Jo x

Hi Bridget
Sorry to hear your news,lets hope they can treat the area with Radiotherapy again,lets hope you can go on one of the new trials coming out.

Hope you are enjoying your new computer,and enjoying your days .Eve

Hi Tina
As Mavis says there are lots of trials and treatments.
my husband is on MX1 trial,but trial or no trial some were along the treatment you will get the offer of SCT if you are fit,but that is usually way down the line.

You need to find out all the information about the trial offered and if you need some answers from the patient or…[Read more]

Hi Kerry
Welcome to this site,i will not even try to tell you not to worry,but advise you to learn all you can and things will not seem so scary,ask for booklets at the hospital or phone Ellen who will send you some.

Blood clots not very nice but once treated and on going treatment for them during Chemo solves the problem.they can be part of…[Read more]

Hi Geri

Not a problem Girl ask away and you will have answeres 🙂

As for me (56 years young) was told in Jan 2009 that I have MM since then I have had CDT and a stem cell transplant in December 2009, and am still in remission and having NO treatment nowt zilch nothing, and that Geri Feels Great.
Anymore Q's feel free to ask

Love and…[Read more]

Hi Kerry no wonder you are scaredits so bewildering and frightening at first but it will get better The plasmacytoma can be treated with steroids initially to reduce it and then radiotherapy is amazing at getting rid of tumours , I dont know if thats appropriate for your partner but I am sure his doctors will be looking at the best and quickest…[Read more]

Hi Tina

A Warm Welcome to the site and I hope your road to remission is a good one.

I had my SCT in December 2009 and am still in remission and doing pretty good.

Keep us posted and ask away

Love Tom "Onwards and Upwards" xxx