A Warm Welcome Terry you wil find the folk on here a great Help…… Tom Onwards and Upwards….

Hi Peter
You do not mention Diana,s age or back ground of MM,and this is important because the symptoms could be connected to her general health,I think when you come off Chemo you think you will feel better,and it comes as a surprise to find you have all these symptoms,you start thinking,are you in remission.

CTD the dreaded DEX also gives…[Read more]

Hi Dai I found it yesterday and loggged in to have emails from here http://jetblackliving.wordpress.com/?blogsub=confirming#blog_subscription-4

Hope that Link works for you I got it from the where are you thread here

http://www.myeloma.org.uk/patient-services/discussion-board/off-topic/who-the-heck-are-you/re-who-the-heck-are-you3/

Hope…[Read more]

Hi David
I think it,s great,it does get rid of the elephant too,must ask you??? is that a garden with a lovely lake at the bottom?????

Slim and I talk very openly about his illness,with grandchildren around,so if they have any questions,it can be talked about as a family.
Lets see some more pictures as you go on,must say you look if your many…[Read more]

Has anyone got a link to Jet's blog?:-)

Dai.

My Dear Jet

I am so sorry you didn't any time out of your sct after all you went through.

Now lets go see if I can find your Blogg (bear with me am a iccle bit daft at times 🙂

Love and Hugs

Tom xxx

Hi Craig and Etta

Good Luck in your task to get what you are legaly entitiled to have, although you should get it they make it hard for you to get it without a bloody fight.

I am not on Beifits as I still work full time but I have the Blue Badge and thats worth its weight in gold (except in Scunthorpe General Hospital who has done their best…[Read more]

Hi James

I hope that you get the best one for you as you know not one size fits all in this deck of MM

All the best

Tom"Onwards and Upwards"

Hi Mal And Bruce

Well thats great news all round, getting to grips with your own life and not having to worry about getting to hospital.

Like your thoughts re a few more cheeky late ones at the local :-D.

Love and Hugs

Tomm "Onwards and Upwards" xx

Hi Graham

Well Good with it all I know its an uphill struggle but it has to be done, the xray wont hurt but you will be in a long time so after the Nurse has forced you to rush you can have a nice long lie in.

Good Luck for thos two days and please keep us posted.

Regards

Tom "Onwards and Upwards"

hello Mal and Bruce

so glad everything has gone well for you its good news you can have the dialysis at home you will soon be rocking down the pub:-) 😀
Love Jo

Hello David

it is something todo with the filtration of the kidneys so I expect they were checking to make sure yours were not being affected
Keep well:-)
love jo

So far, so perfect around here. The snow remains in gardens and fields but the roads, from A to B, back-lanes and side-streets are clear.. allowing those that need to move around free access to do so while the kids of all ages can enjoy themselves rotten. 😀

No fresh fall since Sat PM.

Dai.

Hi Craig

Well I am shocked,sorry you have to get people on board and start ruffling a few feathers,if you cannot get help from macmillan nurses go to local papers specially now as the lords have just thrown out a bill concerning disabled people.

No one gets Myeloma over night,you have to get your doctor on board,to put it bluntly this is out…[Read more]

Hi Min that sounds wonderful I can just picture it! I bet the children loved you joining in and dogs are hilarious in the snow My hairy grandson has been here for 2 weeks and he loves the snow , had me in stitches this morning his face was saying woohoo!! love Bridget x

Hi Craig your post really shocked me !! How the heck can they treat you like that it beggars belief . I strongly recommend getting a Macmillan benefit advisor on board , you need someone who knows the system If there is not Mac advisor try the hospital who usually have a benefits advice dept Dont give up you are entitled to help during the most…[Read more]

Hi Craig and Etta

Sounds if you have been through the mill a bit,I can only tell you Slim was in this position,in may last year,in a wheelchair,at this present moment he is out walking the dog.!!!!!

As you say with food a little and often,as much as you can Slim has now put on 1st 8ib,after loosing 4 st.so getting there.I found buying small…[Read more]

Hi Everyone
Well the garden of England has become a white garden over night.

Woke up and the ground is white and the sky dark grey plenty more on the way.Hard to say how much has fallen as its drifted and looks lots in some places.Eve

Hi Min glad you made it before the white stuff!! We have a smattering of snow now my grandson managed to make small snowball. I will try not to moan for Dais sake but brrr!!! Stay warm love Bridget x

Hi James
Welcome to the site.
It,s my husband with Myeloma,he is in remission after ctd then vcd,and going to Kings this month to see if sct is possible,because he is on Myeloma X1 trials,he will be randomised either for treatment or no treatment.

At the moment we do not think SCT will be the solution,as his lungs were damaged with pneumonia…[Read more]