Saturday 6pm… the snow is creeping across the east Midlands… the Vale of Belvoir is white… a bit more icing sugar than carpet but it is due to come in a bit thicker later on. Snow is one of my guilty pleasures… I understand how troublesome it can be for so many but the sight of it falling and waking to its clean serenity is still one of…[Read more]

Hi James sorry sct is stem cell transplant too lazy to write the whole thing!! I chose not to have maintenance – Thalidomide, because I felt I needed a break from all the drugs I was diagnosed in August 06, before I could have any chemo I had to have surgical reconstruction on my spine as 3 vertebrae had been destroyed before Iwas diagnosed By…[Read more]

Hi Min safe journey put your foot down so that you beat the snow!! Apparently this evening it will creep into this part of the world and carry on all night Brrrr! love Bridget x

Hi James welcome to the ste I am sure you will get lots of replies Sorry I cant help much with the maintenance issue as I chose not to have any after my sct 4 years ago . Bridget

Hi Jet so sorry to hear you didnt get any time from your sct Hang in there good luck with the allo love Bridget

Hi Jet
you must be feeling pretty low at the moment its so hard for you that the transplant didnt work,have you got a brother or sister that could give you a good match. I am ok at the moment thats all any one can say I never had an SCT because my kidneys were so damaged. fingers crossed for a good match for you
Love and (((HUGS)))
jO X

Hi Bridget

Well it is the 4th and snow warnings are out,very cold with wind,but no snow,it would not surprise me,if this little corner misses it. Eve

HI jet
You have hit the 3 F???,see if you can work it out with out my help????

before you hit 50 the 3 F was something different.

Eve

Thank you all for replying

Slim has finished Velcade,but the complaint went in before we new he had remission,but that does not matter I am concerned for people who come after us.I wish I could put the hospitals reply on here,but I cannot not,but reading between the lines,it does not pay to go on trials,you will spend more time in the…[Read more]

Hi Eve I was on Velcade a couple of years ago whilst on the Myeloma X Trial The first treatment of each cycle took the longest , questionaires etc then blood test and a wait of about an hour and a half or two hours for drugs to be made up From the second treatment onwards they used the previous blood results to make the infusion although there…[Read more]

Dear Roisin I am so sad to hear your father-in-law has died My condolences to you and yoyr family love Bridget x

Hi Eve,

The initial infusion of each cycle took the longest because we had to have a consultancy where the level of treatment was determined. On those days a typical pattern would be:

In at 10.45am for bloods followed by consultancy at 11am. We would then either get comfortable for a few hours or even pop into town for a shop and lunch -…[Read more]

Dear Roisin

I am so sorry for your loss, its a bugger of an ilness this MM.

I send My Condolences to you all at this sad time.

Love and Hugs Tom xxxxx

Hi Graham

Just to let you know I was diagnosed in Jan 09, that was after I went to see my GP in December 08 with what can only be described as I felt that I had a rolled up towel under my lower eib (left side) I felt no pain or any distress apart from the feeling that I had a "Fat" Lower rib :-S

To cut a long story shorter (I hope) after…[Read more]

Hi Marion

The reason I mentioned cc club,is lots of there places have lodges now,so no roughing it.We have a motor home and there sites are good.Follow you own needs,do not worry about your drugs,I am sure any place will help you.

Have a good holiday Eve.

Hi Tom thanks I am checking out web sites and local shops too but I am still a bit nervous about buying a second hand one Maybe I will just have to save very hard, trouble is I am not a very patient person and I hate being without a computer !! Tell Elaine I am so impressed with her DIY skills , she puts me to shame Hope you are having a good…[Read more]

Hi Sarah I am very impressed by Henrys stem cell production!! I am one of the people who struggled to produce the minimum needed too Good luck with the next step please keep in touch love Bridget

Hi Cinzia and welcome to our group you will find lots of support here but what a shame you couldnt find anything closerto home . You had such a long hard haul to get a diagnosis it must have been a relief to find out the cause, and a huge shock at the same time Good to hear the CDT is getting good results , just dont overdo things as it does takes…[Read more]