Hi Marion

Just to answer your query ,I use to have a B&B,and have had all sought from guest in my fridge and freezer,most will help you out just ask on booking,if they say no,you would not stay anyway.
What is Aranesp EPO!!!!!!

If you like the Camping,have you thought about,booking through the Camping and Caravan Club,I would look at there…[Read more]

Hello Peggy
We have been away to a B&B twice this year one in Scotland and one in Swanage both times people have asked to keep medication in the fridge if you phone some of these b&b's or hotels they will tell you in advance if it is possible or you could hire a cottage they always have a fridge if you want to go abroad there is a cold pack…[Read more]

Hello dear Tom

I am glad you are well and I hope your transplant goes on for years and years so you will not need the extra bag
Love and ((hugs))
Jo x

hello Caz
glad you had a good christmas so sorry you have not been well cellulitis
is a horrid thing and can be so painfull i wish you every success for the SCT may it all go well
Love Jo x

Hi Cinzia from Australia

I found you post in the middle of old post,so people might miss it.If I was you I would post on related illnesses more people will see it,start your own posting:-)

Any way welcome to the site,every one on here will help you all they can,there are people from different countries,so do not feel like an outsider.

I…[Read more]

Hi Bridget

Sorry to hear your right arm is starting to go haywire lol yep they (laptops) feel like our right arm at time oh and my mobile lol. a good computer repair shop might have some second hand ones for you.

And I am saying nowt on the home painting and wallpapering except my young bride (Elaine) is one top notch decorator 😎 and she…[Read more]

Well you two aint we done well 😀 reading this today has made me warm and smiley on this cold dank Sunday (sat here on my own) and long may it continue to get better:-D

Love and Hugs to you both (((h)))) xxxx

Tom "Onwards and Upwards" xx

Hi Sarah and Henry

A well done on the collection 😀 I also done mine in one sitting 😀 and enough for two transplants 😎 but and its a big but they put them into THREE bags :-/ yes three so one bag isn't enough so they gave me all three bags and that as you know leaves nothing in the bank (lord i know how that feels lol) but hey ho am sure I…[Read more]

Hi Carol

Am pleased to read your Xmas washectic 😀 yep ours was also, what with three sons with wifes/Girl friends and 5 Grandchildren aged from 10 months up to 8 years it was bedlam(in a good way lol)

Good Luck for the stem cell capture and hope its as good as mine was (enough for two on the first sitting) but at the bagging dept when…[Read more]

And I also it has made me smile in many of your thoughts he he.
Keep up the Good Fight and keep on Prattling 🙂

Tom "Onwards and Upwards"

Hello Jean

many thanks for the link
love Jo x

Hi Everyone
I know what your talking about Bridget with computers,hated them when I was at work now I could not survive with out one.my daughters use to give me there old ones,bit slow but worked last year got my own lap top,this year I Pad,Slim uses that more because it,s not heavy and good for games.

I am decorating the bedroom at the…[Read more]

Hi Min thankyou for those ideas, I knew there would be someone with good ideas! I have a secret vice though ( I play the Sims on my laptop) which means fairly poerful laptop , mind you perhaps I could look for a support group to cure my Sims addiction , it would be much cheaper!! I got a local firm I trust to make sure my laptop was beyond repair…[Read more]

Hi Nadine,

I was in a similar position to your Mum… my CDT was very successful and I went through the prelims for my SCT but developed an infection in my Hickman Line the day before my harvest was due to start which put everything back by 3 months in the end.

I questioned the SCT at that time… I felt well after the CDT and it held well…[Read more]

My Dear Chrissie,

I can fully understand your feeling cheated… the rationale from the medics that MM is an individual disease is proven by the seeming inequality of prognosis treatments and outcomes. The UK funding body 'NICE', lays down the rules for treatments – i.e…

1) Frontline treatment (CDT – RCD etc.,)
2) SCT 1
3)…[Read more]

Dear Chrissie

I am pleased that it was a beautiful funeral for David and you were surrounded by good family and friends, Its such a sad time ans I for one always am not sure what to say but am sure the words of comfort and Love that you have and are getting is a great help to you at this sad time.

I send My Love and Hugs to you and your…[Read more]

Hi Gill
Such good news you both must be very pleased,Stephen should be a little bit better on the lower dose of Dex,and this might be the time to have those conversations :-)I believe the kidneys can regenerate,so any damage can repair.One day at a time Gill and you will soon be in France again.8-)

Slim was trying to reduce his dose of pain…[Read more]

😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 🙂 😎 😀 :-)…[Read more]

Hello Jean
I am so surprised that some of these good shows dont come to Belfast its a nice city and now the troubles are over I am sure they would be well attended some one should but in a suggestion .I hope you and Frank are keeping well
Love JO X