Hello Michelle, we lost our mum on nov 30th this year, mum knew there was nothing that could be done so she told us she wanted to be home. we made that happen for her and she was happy to be with the people she held so dear
We made sure that we spent all the time we could together and talked about all the good times.
Mum passed peacefully in her…[Read more]

Hi Ed,

Thank you for your open and honest post.

I am sorry that you have had the need to find us but given your circumstances I am glad that you have. The information highway has a lot of wrong turns and confusing roundabouts… this site and this forum should supply you with all that you need regarding information and empathetic…[Read more]

Dear Michelle

So So Sorry that the Bloody MM has fought off everything and left you and your Husband in Limbo.

Its a Bugger that you are both waiting for a trial to start? lord knows why they dont start one for you NOW ? am sure it wont harm but it may help.

Keep strong the team will be having talks about the what next treatment at the…[Read more]

Hi Dai sorry I missed your birthday post but good to hear you enjoyed yourself , I wouldnt expect any less of you! Sorry cant help with the pn problem although mine did go away after a few months of stopping Velcade and I remember thinking it was taking forever too I really enjoyed christmas and having 2 daughters ,grandson and dog to stay but…[Read more]

Dear Michelle I can only imagine the pain you are going through as Min said this bl–dy awful illness! Dont give up yet I was on Velcade and Revlimid neither one worked but my doctors have put me on Bendamustine and Thalidomide I am not on a trial but apparently these drugs can be applied for under special circumstances Ask your husbands doctors…[Read more]

Hi Chris welcome Although it has been 5 years since I was diagnosed I can remember feeling very confused , angry , sad and at other times flippant and off- hand about it, I imagine a lot of people would also recognise your description too so you are not alone. Believe it or not things will get easier as you get your head around the treatment and…[Read more]

Al Match you with that Dai you and I and also many others have great Partners (dont like the word carer)

So al say Happy New Year to Elaine and all the other Partners out there helping and coping Bloomin well.

Love and Hugs to you all xxxx

Hi Linda and Pete

Like the others A warm welcome to our little group.

Yes its a daunting thing being told you have MM then told it is a Cancer:-( but take notice of the new treatments that are on the way every month we seem to hear about this and that new treatment

May I just say never ever feel guilty about your tears or feeling down…[Read more]

Hi you all

I forgot to answer this one he he.

As for me I used to (and am sure it will come back) have a great memory and after noticing that I would forget things I asked My Cancer Nurse (Helen) and she said it is "Chemo Brain" it says it all realy :-S make me better:-D by giving me stuff that makes me forget I was poorly:-0 Cant beat it…[Read more]

Hi Helen

Yes we had a great time Thanks, and you done a great job cooking for 14 :-0 me if I have to feed myself can I get it all to be ready at the same time? not on your nelly thank the lord for Microwaves to reheat the stuff that was ready 10/20 mins before the rest lol BUT I have a great Cook in my young Bride Elaine so dont have to worry…[Read more]

Hi Chris

A warm welcome to this great site am sure Like i you did not want to join? but here you/I and many more are here.

I was told in Jan 2009 that I was part of the MM mob, started on CDT then a Stem Cell Transplant in December 2009, doing good so far and still in remission and only having Zometa Infusions evry four weeks.

For me…[Read more]

Hi Roz

And your welcome and a good sob is good for you am sure.

Are you on F Book then Roz? If so you can find me lurking on their fairly often Lol.

Have a great week and catch you soon

Love and Hugs ((()))

Tom "Onwards and Upwards" xxx

Hi Jean and Frank

Great Photo's of the Lovely Coupls and the one of the Grandkids, I know that a wedding will do anyone in and make them tired and want to sleep all next day so a Well Done Frank 🙂

enjoy the rest when they have all gone 🙂

Love
Tom xxxx

Hi Dai
Well you seem to be doing well getting out and about,happy belated birthday wishers,are you one of these people who only get one present instead of two because your birthday is close to christmas?????

Slims sleep patten was all over the place awake in the early hours and tired and cat napping in the day,doctor gave him a very mild…[Read more]

Hi Eve,

My Birthday was on Xmas Eve and I spent most of the day out… the same for Xmas Day and Boxing Day. I enjoyed the first two but was glad to get home on Boxing Day… I had had enough.:-)

A big plus has been my appetite which is as good now as at any time since I first fell ill. I too have felt very tired since coming off Velcade…[Read more]

Hi Eve

glad you had a good christmas and Slim managed to enjoy it as you lets hope next year is a good year for us all:-)
Happy nand a healthy new year to you and SLIM
lOVE Jo x8-)

Hello Shirls

glad you had a super christmas its nice to be spoiled isnt it we had the family over two girls and thier husband and our grandson who doent srop talking my husband cooked a lovely dinner we had a quiet boxing day but we are going out new years eve hope I can stand the pace!
I would like to wish you both a Happy and Healthy New…[Read more]

Hello Jean

what a lovely picture I am glad you had a happy day it must have been a lovely time glad Frank was ok now its the summer to look forward to and some sunshine Happy New year to you and frank
Love Jo x

Hi Jean I am so glad you had a good time it sounds wonderful especially having all the family together . I am sure Frank thinks its worth a few extra hours sleep .I couldnt open the photo but I will try again later Wishing you all a healthy happy new year love Bridget x

Hi Everyone
So glad everyone had a lovely Christmas,
We went to one of my daughters who,s husband cooked a lovely meal,Slim managed a sip of champagne,and some christmas dinner,then went to the land of nod,decided to take him home as everyone was tip toeing round him,was in bed by 5 pm.,Boxing day came and went for Slim,but I had a lovely walk…[Read more]