Hi All
Well if there is a link Slims must be from his Slavakien side,and we have no history there.
I do not know if I am bitter,but Slims mum died last year age 84,she was not a very nice person,so it does seem a little unfair,but that sums up life sometimes.
I know we worry about our partners David, managing, worrying about what the future…[Read more]

I totally agree, its hard to think positive although you have to do for the sake of the children
Gina xx

Hi Terry
Yes they are the same thing,I use that reference,as to me it is a biopsy because it looks at cells in the bone marrow,and it is the one test they can confirm myeloma and the only way of telling what is going on inside the bones.
I agree failure is not an option,it,s important to be positive.Eve

Hi David
I think everyone judges there own life span on there parents,Slim and I were talking about it today,I said after the initial shock of being told you have Cancer,you become more acceptant,Slim answer was,he was the one with Cancer not me,and he never looked at it as a shock,his father was a soldier who died in the 2WW age 28,and Slim was…[Read more]

Hi hope everyone is doing ok. Mums funeral was lovely , im sure she would have loved what was done for her. We have more or less got all the affairs in order.
Its still very hard we miss her so much feel like a part of us is missing. But mum would not want us to be crying all the time, we have to remember mum when she was well and happy. We also…[Read more]

Hi Gary
Welcome to the site,as a carer i and others,have been standing,just were your standing and feeling the same as you,no matter what we say you are going to worry,but welcome to the roller coaster.Do not feel embarrassed,just feel glad you are not alone,and everyone on here knows how you feel.:-)

Please get your sister to join the under…[Read more]

Hi Terry
Come on just to tell you what BMB is,it,s Bone Marrow Biopsy.
Slim has to have them as other results do not show true readings and the only way to tell if Chemo is effective is by BMB,and general health.
Slims on a three week cycle of Velcade 2 weeks on one week off a combination of VCD on different days,just finished 6 cycle waiting…[Read more]

Hi Min
I read that article too.
I think it has long been accepted that we all hold the ingredients within our bodies that can be cancer related,how it multiplies to full blown cancer related illness is not known,otherwise we would have an answer to Cancer.

I would like to see more research relating to the individual person,considering how…[Read more]

Well done Debs
were did you find the energy!!I want some.I agree you should take it a bit easier,you must have worked very hard.have a good Christmas Deb.Eve

Day + 12

Just got back from hospital, dad still not getting any better. His bloods are still down, and he's had 2 lots of platelets but they havn't come up yet. He's having blood transfusion for his iron levels. His neutrphils have been at no value for 6 days now…..shouldn't they start to be coming up now????

Can't help but worry that he…[Read more]

And so say all of us Thanks glynis am sure it will be many a prty that is thrown He he

Love
Tom "Onwards and Upwards" xx

Well thats the Tooth the whole tooth and nothing but the tooth 😀

Hi Min
Thanks for that its an Interesting read, but am sure my Sons aint gonne be best pleased with me when I tell them Today 🙁

I asked when I was told I had MM if it is in the fanily and was told No but am hearing more and more folk telling us Dad/Uncle Brother had it 🙁

A Well as long as Kids have got a "Heads Up" on it

Tom xxx

Hi Sarah
She is lovely Eve

Hi Eve,
I had a tooth extracted pre-SCT… it was carried out at Queen's Nottingham by a Surgeon/Dentist. The extraction was quite straightforward and I had to wait an hour for a post-op check and then was sent home with a course of preventative anti-biotics.

No further problems encountered but I was told that all future tooth work would be…[Read more]

Hi Jean Tom and Min
Thank you for the advice about the tooth,Slim went to the dentist the other day,was called in and sent out to fill in forms on previous illnesses and medication.in that time 4 other patients went in as slim was filling in forms.LOL.
Went in needed tooth extracting,sent to hospital for xray ,these days they give you your own…[Read more]

Hi Glynj I have not had radiotherapy to reduce the myeloma cells as such but I have had it twice for pain relief and to shrink tumours. It was painless very quick , the first session takes about an hour to set it all up but each session afterwards was about 15mins In my case it was completely successful , especially the last time when I had…[Read more]

Hi Glynj,

Many of us have had radiotherapy as part of our treatment… tumours on and around the spine seem to be the most common but elsewhere as well. Where do they plan John's radiotherapy?

Dai.

Hi Eve
I hope you have been informed about having teeth out whilst on Zometa / dont want to scare you but its best to check up as its bad for the jaw (or so am told)

And yep after what you have gone through the Little bits left are nothing you both will do it Easy Peasy (as my big brother says)

Enjoy the week end

Love and Hugs

Tom…[Read more]