MeikeWhite

  • tom replied to the topic Where Are You ? in the forum Off topic 14 years, 8 months ago

    Me I am in Scunthorpe (North Lincolnshire) Having my treatment in Scunthorpe General Hospital, but had my SCT in Castle Hill in Hull.

    And was Born in 1955 😎

    As always

    Tom "Onwards and Upwards"

  • tom started the topic Where Are You ?. in the forum Off topic 14 years, 8 months ago

    A Follow up from one of Dai's post on the old site and i think it needs bringing on here The first one Dai started can be seen ::: http://forumarchive.myeloma.org.uk/byAuthor.php?displayLetter=D&displayAuthor=Dai%20Crowther&displayThread=775

  • eve replied to the topic Treatment failed in the forum General 14 years, 8 months ago

    Hi Chrissie
    Concerning the AL,you have to help you husband to get up in the middle of the night,and at his age needs to go more frequently ,you do not have much choice because he cannot afford to fall,if he brakes his hip you will not be able to manage him at home,if you do not get the full amount appeal.it will be back dated and his position…[Read more]

  • tom replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years, 8 months ago

    Hi Jo

    Not a problem Re Email addie 😎 as they say its good to talk 😀
    Hope ur doing well and this cold snap (that we have here in Sunny Scunny) aint too much for you 😀

    Love and Hugs (()))

    Tom "Onwards and Upwards" xx

  • tom replied to the topic Posting photos in the forum Off topic 14 years, 8 months ago

    Hi Stuart followed your instrutions to the letter and do you know It worked with me Lol.

    Cheers and Many Thanks 😎

  • tom replied to the topic New Kitchen in the forum Off topic 14 years, 8 months ago

    Morning Eve

    Well I did it Posted Mins New Kitchen on this thread

    http://www.myeloma.org.uk/index.php?cID=11624&ccm_paging_p=1&time=1321778178#msg11647

    Dont know if the link will work lol :-S

    And why would anyone not want to see your "Magic" Drawers Lol, and never pay for anything up front as its bad enough getting them to come back…[Read more]

  • tom replied to the topic Min's New Kitchen in the forum Off topic 14 years, 8 months ago

    Lets try again, never say never Lol

    WoW Done it And now as you will see it Looks great

    now on "edit" lets see if I can add them all should be three photos ??

  • eve replied to the topic Treatment failed in the forum General 14 years, 8 months ago

    Hi Chrissie
    just to let you know you are entitled to Attendance Allowance plus Blue badge,you should get about £73 a week,this will help,get a care agency in or pay a friend to just come round and take some of the strain off you,this is so important,have a word with your children tell them you are not coping,may be one of them can just come up…[Read more]

  • eve replied to the topic New Kitchen in the forum Off topic 14 years, 9 months ago

    Hi Tom
    When you manage to put the picture on,let me know how you do it,because I havn,t a clue!!!,and I thought you might like like to see my magic draws lol.

    In the kitchen of course I have a very small kitchen,so space is important,did a silly thing when Slim was ill and had builder round did not finish jobs completely,just finishing off…[Read more]

  • gina45 replied to the topic bad news 🙁 in the forum General 14 years, 9 months ago

    Hi Eve thank you for thinking of us all. I havent felt up to coming on chatting as my time is filled with work family and spending what time we have left with mum.
    The wedding was lovely and everything went to plan. mum was to ill but we went from her house and had a few pics before we went. mum waved us off.
    Mums condition is deteriorating and…[Read more]

  • Hi Jo,

    If they can offer you Velcade sub-cut then demand it… there is no comparison – sub-cut has far less side-effects, is easy peasy to administer and has none of the kerfuffle about finding a vein and butchering the back of your hand with cannulas.

    Every new Velcade patient at my hospital is being treated this way – so don't 'wait and…[Read more]

  • DaiCro replied to the topic Where's Dai? in the forum Off topic 14 years, 9 months ago

    Hi all,

    Well this started as a test for the picnik software but ended up as 'Guess Who'… in any case the prize goes to Min… I am second from the left with curly hair and flyaway trousers… although I was a mature student (25) at the time of this photo there are at least 4 Phd students at or about my age in the line up… as a matter of…[Read more]

  • brocho replied to the topic Where's Dai? in the forum Off topic 14 years, 9 months ago

    I am with Helen 4th from the right is my guess love Bridget x

  • brocho replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 9 months ago

    Hi Mvis that was a great brainwave! Your idea about recording our symptoms etc would be a good one perhaps our moderators will read your post and suggest something I am getting expert at doing the injections now and most of the time it doesnt hurt at all !!The other plus factor is I dont have any bruising when I do it whereas my tummy was black…[Read more]

  • brocho replied to the topic Treatment failed in the forum General 14 years, 9 months ago

    Hi Chrissie it did take several months before I felt the benefit , I was diagnosed in August 2006 I then had induction chemo before having a stem cell transplant in April 2007 It took most of that year to feel well again and then I had to have a hip replacement as the steroids had destroyed my hip joint! I agree with Eve one day at a time helps…[Read more]

  • 😎 Hi Tom

    thanks for the mail address that was a (((sooper))) thought 🙂
    Love Jo8-)

  • Dear Mavis

    they are treating my MM early because of my kidneys on failure last time I had 22% bench jones which was a major factor in the failure so although my PP's are low the bench jones is rising so they thought better early intervention would be better I am having velcade infusion at my local hospital in Hertfordshire but UCH have said if…[Read more]

  • eve replied to the topic Treatment failed in the forum General 14 years, 9 months ago

    Hi Chrissie
    My name is Eve and I have watched my husband go from a very health man to someone who lost 4 st and lost 5inches in height,and yes I thought I was going to lose him.CTD did not work,Velcade is working for him.so I do have some idea how you feel.

    You have to take it one day at a time,and when the good days are there enjoy them.his…[Read more]

  • brocho replied to the topic Treatment failed in the forum General 14 years, 9 months ago

    Hi Chrissie I know its awful when you first hear the words that tell you your loved one has myeloma At the moment I am sure everything seems very scary with all the drugs and terminology But things will get easier as he carries on with his treatment and you will see him looking and feeling better . It sounds as if his doctors are being cautious…[Read more]

  • tom replied to the topic New Kitchen in the forum Off topic 14 years, 9 months ago

    well lets see if mins kitchen will join mine ha ha

    photo attached :-/

    well it aint gone ???

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