brocho replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 14 years, 9 months ago
This just what I need ENERGISATION leaving ION Sorry I know we have had this before love Bridget x
brocho replied to the topic Peripheral Neuropathy in the forum Side-effects 14 years, 9 months ago
Hi Wendy thankyou the article was very interesting . I dont have any pn symptoms at the moment but I will certainly mention this treatment next time I am in clinic love Bridget x
brocho replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 9 months ago
Hi Sue sorry I was convinced I had replied to your post the other day. Gaga! Sorry Michael is having more problems with his pn, it really is a horrible side-effect, I hope it eases off soon My mystery rash seems to be fading now and the doctors arent worried about it so I am ignoring it! The tiredness , I think Thalidomide is the culprit , is…[Read more]
brocho replied to the topic Not New to the Forum in the forum General 14 years, 9 months ago
Hi Ted good to hear from you and very glad to hear you are well . I think we all get a little bit anxious about catching bugs at this time of year, I certainly do after having pneumonia twice! So heres to a winter of being as well we can and no coughs or colds !! love Bridget
tom replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years, 9 months ago
Awww Jo
Sorry am late in this one 🙁 and also sorry to hear The Devil is back the (B A S T A R D } (((bet i get away with that one he he)))
And your remission after CDT was good and with that in mind they say that if your first line of treatment gives you a good remission then the follow up will be as good if not better8-)
And sorry your…[Read more]
tom replied to the topic New Kitchen in the forum Off topic 14 years, 9 months ago
Hi Min
Yep thats correct the world wide web has good cheap stuff 🙂 I bought all (cept wall tiles) New Bathroom from "Next Bathrooms" ((other stores also sell bathrooms)) about three years ago and got a local plumber to install it. now it might be time to sell the house and enjoy the money ha ha.
Love and Hugs
Tom "Onwards and Upwards"…
eve replied to the topic Inappropriate language in the forum Off topic 14 years, 9 months ago
Hi Everyone
I agree completely some times I read it again and again,thinking what the h-e-l-l have I said,you could almost say heaven should be made offensive as both can be used in the wrong way.for eg: for heavens sake,is on a par with what the h-e-l-l-.and lets face it Tom told us all how to get round it,so if we wanted to swear away we could…[Read more]
DaiCro replied to the topic Inappropriate language in the forum Off topic 14 years, 9 months ago
It is very frustrating to be pulled up by something taken out of context and like David I have sat scratching my nose wondering where I have c*cked up. :-/
Personally I would rather that there was no such software applied… while I understand that people could be genuinely offended by coarse and inappropriate language I don't think that it…[Read more]
DaiCro replied to the topic Peripheral Neuropathy in the forum Side-effects 14 years, 9 months ago
Thanks for that Wendy – it certainly sounds the part and it was interesting that the test case they chose just happened to be connected to the feet. 🙂
I'll certainly mention this to my consultant… in fact I think I'll ring my lead nurse tomorrow and ask her to chase it up. 😎 My life would be totally different if I could get a 50%…[Read more]
eve replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years, 9 months ago
Hi David
I think you are a very wise man:-)
Does the number 4 bus run outside your house!!!! LOL
It is worth some planning David,just for the fact that relatives are so upset,and I often think taken advantage of at undertakers,I am not religious,but find it hard that the person who takes the service,gets paid £150 for less than 20 min work,and…[Read more]
brocho replied to the topic Inappropriate language in the forum Off topic 14 years, 9 months ago
Hi Stuart I have had similiar problems posting inappropriate words in the past and it does get frustrating so any changes you can make to the list would be great Thanks Bridget
brocho replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years, 9 months ago
Dear David I am so sorry for your loss To lose someone young and full of life seems very cruel and unfair. love Bridget x
tom replied to the topic New Kitchen in the forum Off topic 14 years, 9 months ago
Hi Stuart
Thanks for the info 😀 and Thanks to Ben for getting it back cos am sure i aint doing ANOTHER New Kitchen Lol.
But Like Gill says you are the "A" Team for the Myeloma Team and for that I thank you all 😎
Tom "Onwards and Upwards"
BADGER replied to the topic revlimid cyclophosphamide dexamethasone in the forum Treatment 14 years, 9 months ago
Hi Gill and Stephen
sorry the second SCT failed but the new thinking is now drug therapy its the new big thing in America and when I was at UCH they said Dr Yong is the lead here I really hope this new regime works and gives stephen a long remmission I know about the dexitude I am also on a lower dose now but I feel a bit grumpy but trying hard…[Read more]
brocho replied to the topic revlimid cyclophosphamide dexamethasone in the forum Treatment 14 years, 9 months ago
Hi Gill I have been cracking up since reading Dais post and I will definitely check who is behind mme in future ! However since being on Revlimid I have been lumbered with squeaky bum syndrome so any tips to ease the embarrassment are very welcome , there are only so many times you can cough without giving the game away!My grandson thinks it is…[Read more]
DaiCro replied to the topic Fingers Crossed in the forum General 14 years, 9 months ago
Hi Eve,
I am certain that the staff's unease will soon go away but the benefits of your complaint will last much longer, hopefully permanently.
Without being too simplistic I do believe that if you feel better and look better you generally are better – after such a long and drawn out period Slim deserves to look feel and be better – and I am…[Read more]
DaiCro replied to the topic Outdoors Paul- Pennine Life & nice bit of good news in the forum Under 50s 14 years, 9 months ago
Hi Paul,
I make a point of trying very hard not to long for past abilities… my bone damage and PN limit my mobility although I walk unaided and generally 'look the part'… I accept and I am grateful for this existence and treat it as phase 2 of living.
Saying that I can quite happily reminisce about happy times and achievements in or…[Read more]
DaiCro replied to the topic revlimid cyclophosphamide dexamethasone in the forum Treatment 14 years, 9 months ago
Hi Gill & Stephen,
I can't help with this combo… but on the subject of wind, which is often thought of as somehow comical but in reality is not funny at all.
A strategy I find helpful in public places, particularly supermarkets, is to find a little old lady (I find that you are spoilt for choice with little old ladies in supermarkets,…[Read more]
eve replied to the topic Outdoors Paul- Pennine Life & nice bit of good news in the forum Under 50s 14 years, 9 months ago
Hi Paul
Believe it or not in my miss spent youth as a scouser I spent a lot of time,walking hiking and climbing the only way to meet fit male bodies.
Live in the south now more sedate,nearest I get is the white cliffs of Dover,or the Saxon way but still very beautiful.
My Son-in-law Rob is the walker for charity and pleasure,did the three…[Read more]
eve replied to the topic Fingers Crossed in the forum General 14 years, 9 months ago
Hi Dai
Well Tuesday was another day,bit frosty,but I did point out to a sister again it is no reflection on this department,went back again in afternoon for Velcade and things did seem a little bit better.
Slim is getting tired as he is half way through 5 cycle,it does show but still looks better than a few months ago(death warmed up)I know…[Read more]