Well I think you are all brave,you all deserve blue peter badgers just for going through this treatment,It takes guts,and to remain so cheerful and make people laugh,if you could bottle it,it would be a sell out. Eve

PS Tom;-) I am thinking he might like some of my fat

Hi That Brave Bridget 😀

First of all I thought I had replied to this thread a couple of days ago :-S Lord knows where its gone?? so if you find a strange reply from me on ANOTHER thread Just Tut he he 😀 .

Bridget you are so Brave 😎 when i was having to have My GCSV inj I said I could not do it:-( so this big Hairy A S S Docker took…[Read more]

Well I accept defeat Min , after I stopped laughing at your story!! I was in HYSTERICS which leaves ICS love Bridget x

Hi Roz I am so pleased you got an appointment after all this time Now you can begin to heal Take care and be kind to yourself love Bridgetx

Hi Sue I am sorry to hear that Bendamustine isnt doing the trick for Michael what a disappointment Have they said whats next for him yet? The side-effects sound awful and make me feel ashamed for moaning about being sick and losy headache for just one day ! As Tina and Eve said at least his pps are the same , hopefully you will get some good news…[Read more]

Hi Jo thankyou you always make me feel good You have my admiration for doing your own jabs all this time ! I hope you are fully over the food poisoning now , it sounds as if it was really horrible poor you Have a good weekend lots of love Bridget x

Hi Sarah and Henry, welcome I see you have already had lots of great info I pop in and out of the discussion forum from time to time and find it is a great place for info and advice. My Dad was diagnosed with Myeloma at the start of the year worked through CTD until cycle 4 and then he was just too tired. He wasnt suitable for STC as he has…[Read more]

Hi Sue and Tina
I have also been wondering how you have been getting on with these trials,and wondering about a few other people on here who are not posting at present.I think it is sad,that you feel you do not like to post with news that is not so good,this to me is what this site is about,be it good or bad,people are on here for help and to…[Read more]

Hi Bridget
scary at first I know but ever since I have been put on steriods first off DEX then prednisolone for the kidneys my sugars have been too high so have had to inject insulin daily a real pain as it bruises me all the time the bruising is caused by the steriods apparantly its another side effect of them but hey ho we still here and…[Read more]

Hi Jo
Sorry for not replying before,been a bit busy ,with trying to get soft furnishings as decorating finished,only trouble is shows up rest of it:-P

I would like a copy,thought they might put something on here about it,Debs went but she sounds very busy.It would be a GOOD idea if Myeloma UK did videos of INFO days,for people like us who…[Read more]

Hi Sarah and Henry

Hope all is going well ? for you Both, as for the urine infection I used to get that when I was on my CDT 🙁 but it was soon cleared up and I think it was because I didn't drink enough Water we need at least 3 Ltr a day :-0 and i found that hard work to start with :-S especially on my Off days :-/

Good Luck

Love…[Read more]

Hi everyone the swedish chef would have had me in fits too Min! I once worked in a factory with a woman whose dad made wine from anything he could lay his hands on! Needless to say there were quite a few night when we were three shhets to the wind ! My favourite was ELDERFLOWER , this leaves WER love Bridget x

Hi Dai
IT looks if Craig is the man that gets bits of my husbands body:-/more than I get at the moment LOL.

On a serious note I got the impression,that bone marrow bloods and urine go to Birmingham,which does the testing on Mm samples could be wrong!!!
If you want to speak to him look at third posting down on old correspondence will give…[Read more]

Thank you all, especially Eve for getting the ball rolling and keeping it going. 🙂

You have certainly given me food for thought and I shall re-read all your comments, suggestions, opinions and experiences. From what I can tell from Craig's original post and the agenda of the conference he/they want to know how their work can be of help to…[Read more]

Great news Ted

It will be nice for you to get a few months break from appointments as for the docter looking 14 mine looks like father christmas without the beard a rolly poly he has a cuddly manner as well with me we must stike the right chemistry with each other keep in touch

Love Jo xx:-)

Hey Ted

Am sure like me you knew that was gonna be the outcome 😀 but a well done from me, roll on old age hehe and he aint realy 14 ha ha 😎
Keep up the good work Ted

From another "Onwards and Upwards" Guy 😎

Na then David

Great to have you on Board and a warm welcome from iccle ole me 😀

You are a little in front of me I was diagnosed Jan 2009 transplant dec 09 and as they say the rest is History, well as I am hanging on to your tail coat just you keep on that running "Onwards and Upwards" and dont let me catch you cos I can Run (well used to…[Read more]

Hi Gina

I hope all goes well with getting the stuff for your Mum so she can be at home.
And great advice Eve thats worth a thought hope all runs smooth for your forthcoming wedding Gina am sure your new hubby to be knows he has a good un in you:-D

Love and Many Hugs sent to you all (((((((((((())))))))))

Tom xxxxx

Gina
just to say good luck with the wedding,hope you have your wish come true.
If it is any help,A friend of mine,who,s husband had been told no more treatment,wanted to go on a cruise all though very ill,just wanted last holiday,doctor,s gave him steroids and he managed to have that holiday .just a thought? Eve