Thank you Ellen
For taking the time to give me a general explanation,I do realise you can not comment on an individual case,what you said I found very helpful,but brought a few more questions to mind.

The hospital my husband attends does have a PET scan also MRI,if some one had MRI scan on his spinal column only.How would it compare to having…[Read more]

hi all, thank you for your replies i know i can always rely on you all for your support. Mum is hopefully coming home tomorrow. they have to deliver the equipment to allow her to do this.
There is definitely nothing they can do and mum isnt very well. But we just want to get her home. It is really hard at the moment but we have to be strong for…[Read more]

I will settle for RED just remember it was a LIVERPUDLIAN who lives in the south and loves red wine and the colour red

IAN

LOL EVE

Hi
I have the same problem with expensive wine, I tend to drink the bottle instead of savouring it any wine snob would say I DESECRATED It
leaving TED

Hi Everyone
Slim does have a few marks on his tummy with needles,,he has to pinch the flesh as not much there to put needle into,I do not think I could do it day after day.Over six months now have been told that,s the least he would be on them,specially now he is on Velcade and the damage to his lungs although cat scan showed his lungs have…[Read more]

Hi Helen sorry but I dozed off last night and didnt see your last post My daughter copes really well I am very proud of her She lives alone and does all her IVs herself plus night feeds as and when she needs them Until this year she worked full time but it really was having a bad effect on her health, her weight dropped and she had a lot of IVs…[Read more]

Hi Sharon
Its now November when do you have PET scan and results.
Slim had bmb expect results in next 10 days 1/2 way mark for Slim.
Eve

Hi Gina
how is it going have you managed to get your mum home.
just wondering how you are getting on. love Eve

Hi Min thankyou They did ask if I had a sharps box , which I did but a few years ago I was left without one for a week ! Its so good to hear you are sleeping well , it really makes a difference Are you getting a good tan? Dubai sounds like a lot of fun , makes me quite envious!! love Bridget x

Hi David welcome to the crazy gang! Glad you made it in the end. This site is brilliant for all sorts of reasons , support , information and sometimes a good laugh As you pointed out we are all different and there are times when being lighthearted is good for the soul whilst not ignoring the serious side . Heres to you being fit and healthy for a…[Read more]

Hi David
its just so nice to hear from a person who has gone through the mm journey,and come out the other side and has got his life back.

A big welcome to the site and I do hope you continue to post.

As you say everyone is different and some people have a longer and harder journey,which in its self creates more problems.
I have found this…[Read more]

hi Sue
You want to waffle go ahead,it does you good sometimes and helps when things go wrong,this site makes you realise how so many hospitals are different concerning treatment.
Slim is on Myeloma X1 trials ,so we do have to stick to a certain treatment,but who every devised how it was to be taken never considered the patient.
EG:VELCADE DAY…[Read more]

Hi Bridget and Helen
Defo late birds,was like that myself afew months ago, working hard to try to make sure I am not still buzzing in the early hours.:-/

Slim has been injecting himself for over 6 months now,no bruising but area less pliable,chose to do it himself as scared I would use him like a dart board:-P
To be honest I would be able to…[Read more]

Hi Helen I am on Domperidone , they give me a dose of IV anti-sickness before the Bendamustibe as well Thankyou for the tip I will ask about it on Friday love Bridget x

Hi Helen thankyou for making me feel less alone , I wont breathe a word!! I dont think I could ever inject someone else though , that has to be worse! My youngest daughter has Cystic Fibrosis and for years I did her IVs but only after someone else put the port-a- cath needle in, she always said she didnt trust me anyway!! Stay well love Bridget x

Hi Ted its good to hear you can relax for another few months without worrying about your results ! I hope that it stays the same for a very long time It used to be said that you knew you were getting old when policemen looked young but I find its doctors , nurses , teachers ( the list is endless!) so I guess I must be ancient Teehee love Bridget

Hi Keith great to hear you are doing so well Long may it last !! I hope you get your itchy rash sorted soon it must be so annoying love Bridget x

Hi Sue
just to tell you about point 2 of your questions?
Slim has Velcade twice a week dose has always been 2.3

We had appointments at 9 for bloods and 1 o clock for Velcade.
leaving at 8 in morning bloods taken then stayed in city,went back for Velcade by 3 o clock often no velcade getting treatment at 4.30,if we are lucky home by 6.We…[Read more]

Hi Jo
Sorry you have been poorly 🙁 BUT you also know how to make a young man "Blush" or is it cos my Commie is too close to the heater 🙂 and as for the Next to you am sure you wont need me nor anyone else for many a year to come 😀 al keep on keeping you all cheered up if you keep on keeping fit 🙂 love and Bigger Hugs ((((())))

Tom…[Read more]