Hi Gina,

I am sorry that any benefits from the treatment has been overtaken by these other complications.

I am sure the staff at the hospital and the district nurses when you get Mum home will ensure that she remains as comfortable as possible and pain free. My thought are with you and your family and especially your brave Mum at this…[Read more]

Hi Glynis

A warm welcome to the site to you and your good Husband. I wish you a good journey on this MM trip to remission (and it gets their)

Love and Huhs (())))

Tom "Onwards and Upwards" xxxx

Dear Gina

Am so sorry your Mum has been found with the chest and lung tumors, much Love and Hugs sent to you all (()))

Tom xxx

Hi Glyn
Just to say welcome from one carer to another,hubby seems to be doing very well,and long may it continue.
Good to hear good news and know there are people out there that are getting such good results,it does give the rest of us,such a boost.:-)

Hope you keep posting and let us know how it goes.Eve

Hi Gina

So Sorry to hear your news about your mum,no matter if you were expecting it,it still hits you,I do know how hard it must be for you and your sister,I hope you get your mum home soon.

Try to be strong for your mum she may have a reasonable time left,you and your sister and your mum can make the best of the coming months.
Love Eve

Hi Everyone
Sorry not in a position to comment,but I do know that in boots they do a solution called polytar ,not sure if it,s correct spelling cost £4 it is very good for people who have itchy skin,at £4 might be worth a try. Eve

Hi Ted am plesed you had a great time with the family, am not sure what you need to ask ur Doc but good Luck

Tom "Onwards and Upwards"

Well it is faster on this one he he.8-)

Hi
I play scrabble with my daughters,the one in nz is whipping me some thing awful at the moment,we do it over a period of days,

how about ARRANGEMENT

I leave you with ENT

Love Eve:-)

Hi Jim, its a welcome from me also,its my mum that has mm.
I cant offer any advice on the trial, just eat healthy, keep yourself as healthy as possible and take care of yourself.
Gina x

Hope you have a lovely holiday Min, you have the time of your life xx

Thank you all for your kind words and support at this difficult time.
When we got to the hospital yesterday the nurse gave us a number as the consultant wants to speak with us,we are waiting for them to ring us back with that appointment.we have an appointment at 4pm today with mums mm consultant,so hopefully today we will have some answers.
Mum…[Read more]

Thanks Jean,

I'll take your ION and give you:

IONOSPHERE

leaving ERE for the next player.

Dai.

Hi Jim,

I am sorry that MM found you and glad that you have found us. MM used to be regarded as an old people's disease but as someone has already suggested, testing is so much sensitive and better these days.

RCD does seem to becoming the norm… my first line treatment was CDT (Cyclophosphamide, Dexamethasone, Thalidomide). CDT worked…[Read more]

Hi Gina,

I am sorry that your Mum is going through such a rough time and that you have to carry the burden of uncertainty.

I think that the decision to take her off treatment for her MM is right while they treat her infection and then hopefully clear her lungs… but its a two edged sword regarding the question of the growths… if they…[Read more]

Ouch >:-( that's a new one on me (he says, cradling his… wooden desk). I had some of the marathon ones but never any testiculatory tenderness. I'll gladly pass on that. 😎

Dai.

And one that needs to be kept going He he

How are you doing Ted? hope all is well with you and your Grandkids 😎

Tom "Onwards and Upwards" 😀

Ye Ted I would ask Why I should stop the Longest thread On Myeloma Uk, am sure we should keep that one going strong?
Well am off to add to it now Lol

Tom "Onwards and Upwards" and wanting to keep the longest thread going 😀

Thanks ladies,mum is still in hospital at the moment.we have been told mum has pockets of fluid in her lung, they wont drain because they would have to do different drains for each pocket.they said that it would be to traumatic even in an healthy person.mum is still being treated for the infection.we have been told to make an appointment with mums…[Read more]