Hi Sandy

Am pleased you are avin the spots sorted 😎 I had a Rash after my SCT but no one seemed to worried about it and it went away on its own :-D.

After My SCT I never stayed away from people just made sre they had no Illness and I sailed through the Post sc bit.

Love to you all

Tom "Onwards and Upwards" xx

Hi Deedee

How are things going these days? I have not been on for a bit so am just doing a "Catch Up"

Love

Tom "Onwards and upwards" xx

Na then Jim

A warm Welcome to this great site, it has some great folk on here8-)

All I can add is Good Luck M8 as I have not been on any trail, just ctd then stem cell transplant:-D all in 2009 and am a young (ish) 56 😎 Keep fit.

Hi Michelle
Am using one post instead of two (saving Ink 😛 )

I also wish your Dad well with his…[Read more]

Hi Jim
Just to say welcome.

Myeloma X1
Husband started trials February this year,allocated CTD side,did 6 cycles with a small blip in between had septic pneumonia 22 days in hospital not very nice,with hindsight,should have been on Clexany,from day one,this is not automatic,but would have saved a lot of problems with blood clots.
ON trails…[Read more]

Ooh la la Jean !! I will follow that with SERENDIPITY , which leaves ITY for the next one love Bridget x

Dear Gina I am so sorry mum is going through a rough time again , you must be worried sick The news about the growths must have been a terrible shock , I hope they can give you more information about them soon and hopfully they will be able to treat them . Sending you lots of love and hugs and please give mum a hi from me , tell her we are all…[Read more]

Hi Jim welcome to our little club that no-one wants to be in! It must have been a huge shock for you , in fact it is for us all I was 51 , but 40 does seem too young The advantages are that your physical fitness will stand you in good stead when it comes to treatment and hopefully you will get to a point where you are in complete remission, so…[Read more]

Thanks Min and Wendy. Paracetemol seem to help. I also have been told my feet hurt due to the velcade, I only hope it does wear off. I think I just want to feel better yesterday, even though the consultant told me it will be 3-6 months. Patience has never been my strong point. Sorry to hear you are going through the same Wendy, but nice to know it…[Read more]

Hi Jim sorry you have to come here, but the people here offer lots of support. I was 44 and extremely fit too. I was completely shocked, but I think we are going to here more and more younger people being diagnosed as they can pick it up earlier and that I am so pleased about. I was on the XI trial. There are lots of pills to take, but you soon…[Read more]

hI Bet you both stir crazy by now half a cider sounds great my favourite drink I bet the cats are missing you too do you sleep in the hospital glad mal kept his dinner down must be a good sign
Big ((((HUGS)))
Love Jo x

Thankyou David this is so wonderfully funny its made my day! I shall pass it on to all the crumblies I know too love Bridget x

Hi Peggy so sorry to hear about what has happened and I sincerely hope that you are on the mend. I also had an allergy to allopurinol and ended up in hospital with the rash from neck to toes and shivery. They pumped antibiotics into me and sent me home with lots of antibiotics which thankfully cleared it up. My best wishes to you.
Kay x

Glad that you are home Dai look after yourself and take care. Hope Janet is ok xx

Hi Gilly
Nothing surprises me these days,they have got in touch with there legal side before they approached you,I take it this stemmed from a written warning and a consultation,Well to put it bluntly they want you out,
I do not know your circumstances,or how much you need to live,but you can either fight them,but do you need all the hassle,they…[Read more]

Hi Christine
Cannot help you much on this one,except to say,Velcade did create a feeling of anxiety and general accident prone moments,not sure if it was Velcade,but put it down to doing to much and not drinking enough fluids.

Your dad must be feeling pretty bored not being able to do much,and being so young and active,surprised you cannot get…[Read more]

Hi Mal & Bruce
When I first read your posting,I thought,sct with kidney failure,that takes a very brave man,and you are just showing us it can be done.
I am so glad it,s going so well for you and wish you a speedy recovery and long remission:-)
Hope you are both home soon drinking a glass of bubbly to celebrate life.
Best wishes Eve&Slim
PS…[Read more]

Thank you all you lovely people for your messages of support,

I got home this afternoon with 2 lots of anti-biotics… 1 for my chest infection and 1 for anything else that might be lurking. 😀

I was admitted at 6:30pm last nigh with a temperature of 38.8 and feeling rather grotty all round. They gave me a new super-duper anti-biotic (the…[Read more]

Hi Min so sorry for getting mixed up its what happens when I answer posts late at night when my poor old brain has gone to sleep. You will have a great time with your son let alone all the other stuff like sun etc! Great to hear you are feeling better and probably worth stiking with those little wonder tablets ! Min I think you are amazing with…[Read more]