Hi Craig its great to hear things are looking up for Etta now , especially when those pesky numbers drop really low!! Eve has already given you good advice about getting some helpand I cant add to that except to say make sure you insist on help , you are more than entitled to it!! If you can keep working I am sure it will help you both in all sort…[Read more]

Hi Craig
Just read your post do not know if you have looked at the financial side of things,but i found this a great help,just to have someone come in and do some heavy stuff,worth looking into,Slim gets attendance allowance as over 65,but Etta at 54 should qualify for independent living allowance plus carers allowance.It means you can go to…[Read more]

Hi Eve and Sue well got it sorted today I will be starting on Bendamustine, Thalimode and Prednisalone ( just the same as Dex but reccommended with these two drugs) in a weeks time So although I am not on a trial , my consultant believed one of the trials has been stopped due to blood counts not recovering , not sure which trial ) I will be on…[Read more]

EXERCISE FOR PEOPLE OVER 6O

I,ve tried this and it really works !

Begin by standing on a comfortable surface with plenty of room either side.

With a 5 lb potato bag in each hand extend your arms straight out from your sides hold them there as long as you can.Try to reach a full minute,and then relax

Each day you,ll find that you can…[Read more]

Hi Sue
Nice to hear from you,did not think I would get any replies ,so glad you proved me wrong.Must state from the start Slims is not in this position but I have no allusions,that if the Velcade does not work,which path we will be travelling.
I am not shy,in terms what the future might hold, my attitude is the more you know, the more chances…[Read more]

Hi Mari
So sorry that you have had such an awful shock. I had a similar one a few years ago and then it went down again after a couple of months. At the time I personally put it down to the shock at the loss of my son in law in a road traffic accident (aged only 32 and Daddy to a little boy aged 5)but who knows with MM? – not sure even the…[Read more]

Hi Terry and welcome although I´m truly sorry that we are meeting here!

You really have been through it I´m afraid haven´t you? I was going to mention Revlimid (which seemed to work ok for me apart from the side effects and it brought my paraprotien level down prior to SCT but I have just read Scott talking about it to you. Might be worth as…[Read more]

Hi Ted
So glad to hear that you are continuing in fairly good health – long may it continue!
We live in Halifax and I am beginning to think that it´s going to rain forever here!

Take good care of yourself.
Love Carol xxxx

Thats funny David I am not very good at jokes but I loved this one

Keep well Jo x

Now that is funny David. I've already pinched it, changed the currency to dollars and posted it onto my songwriting site (based in Nashville). Their type of humour… or should I say humor. 🙂

Dai.

Hi Eve,

I recall my consultant's observation when she spoke at the Nottingham INFODay in March – she said that some GP's go through their entire careers without coming across a MM patient. Most will only see one case… even those who see more will not retain much knowledge because they will be so far and few between cases. As you know from…[Read more]

Hi Ted

Am pleased ur bruise free and am sorry to hear Anne is like me Bruised but pleased its over 😀

The Flu combi lasts one year and the pneumonia one last Ten Years :-/ and yes I asked if it was worth me having :-0 and she said you will be back for another one in ten years 😎 Lord I love that Nurse He he 😀

Tom "Onwards and…[Read more]

Hi Anna
You have come to a good place for Information and support,so may i say welcome to the club.
My husband is on Velcade,with the added complication of not knowing if Velcade is working until bone marrow taken,so bloods is the only way of telling us about his general health I get results at the start of each cycle,and it just helps me to…[Read more]

Hi Everyone
I would agree ,we need to talk about different hospitals and the general treatment we get concerning cancer it does vary from trust to trust also what drugs you might be entitled to depends on were you live.hence postcode lottery.
When you consider that myeloma is only 1% of cancers and bence jones kappa light chains is one of the…[Read more]

Hi Anna welcome and sorry you have found yourselves members of the mm club. Its great that you are supporting your dad , I am sure he finds it invauable , but it must be tough on you especially with a daughter who has health issue too Please dont feel guilty if you cant always keep his spirits up ,sometimes the down times happen whatever we do !…[Read more]

Hi everyone this post has really been interesting , the differences in our care and hospital resources amazes me in this day and age . I believe we all should have reasonable access to specialist cancer centres to level this out .Recently a consultant at my local hospital was surprised that Ichose to travel to London rather than be treated locally…[Read more]

Hi Jo
Nice to hear from you, yes in the camper only way I can get Slim away,only going local at the moment,mainly so I can take the car it just a change of scenery takes your mind off things.
Decided to get someone to decorate as if I start it Slim will insist on helping,so clearing thing this week,and going away for awhile,painting and new…[Read more]

hi Eve

good news slim is feeling alot better and you are able to go away for a few days it will do you both good:-) is it in the Camper
Regards to Slim

Love Jo x