Hi Everyone
I can understand how you ladies feel about the menopause,I had it forced on me,they had to remove my ovaries although I was older,Did not like the idea but as I had trouble with one said the other one could get a growth on it,once i got the all clear never looked back,Lot of the tiredness went away so its not all bad,gave me a new…[Read more]

Hi
Nice to see you are doing well Bridget,ans to see that you Sharon have finished your Velcade,just looking at the way people have responded to Velcade, Dai not sleeping you Sharon tired out Slim not sleeping and no side effects,what makes the same treatment re act differently on people.
Waiting till November for a PET scan is a long time,when…[Read more]

Hi Debs,

I am reading this thread with a towel wrapped around my neck because I have been sweating so much. Once I have cooled down I will change my shirt. I am no longer on treatment and my meds are my normal quadruple of MST, Gabapentin, B6 and Bonefos (Plus a chewable Calcium tablet and a Lansaprole anti-acid tablet in the mornings…[Read more]

Hi Everyone
Yes Dai it is a postcode lottery for treatment ,and from what I am hearing Nottingham does seem to come out tops.
East Kent is lacking lots of things,some patients with other forms of Cancer have to travel as far as Maidstone for specialised treatment around 65 miles one way,A friend of mine had to do it every day for a week,
The…[Read more]

Dear Julie
May I add my condolences to you and your dad.
Thank you for letting us know as so many people just go off site and we never know what has happened to them.
So glad you mum had the passing she wanted in her own home with her family with her,it must be a comfort to you both that your mum passed peacefully.
Kind Regards Eve

Hi Sharon hopefully you wont have to wait too long before you feel ok again Thats such a long wait for PET scan though, mind you I have never had one I dont think UCH has access to PET scanner I wish they did if reports about their accuracy are true! I know what you mean about having to wait for RT I used to despair after getting the district…[Read more]

hI Donna

thanks for letting us know please keep in touch and let us now how they are Regards to mum and Dad

Love Jo

Hello Bridget

I am so glad the RT treatment has got rid of that tumer and your pain I have been really worrying about you I am also glad you didnt need to go into the hospice I hope you are now feeling well
Keep well

Big ((((HUGS))))

lOVE jo x

Hi Tom

I can just picture you in a big nappy wet your pants indeed and your not that old either just a big spring chicken and a jolly one at that
Keep Well
Big (((((Hug)));-)
Lots of love Jox

Thanks for letting us know Donna, please pass on my best wishes to your Mum and Dad and tell them I look forward to their return online and the next steps towards rattling the teeth of the HSBC. 😀

Dai.

Hi Mari

Trust me girl you are and never will be a "Burden" on here or anywhere else 😀

And I am pleased that the pp;s for Steve were looking glum? but hey we all have little blips and need to get them tweaked 😎

Love and Hugs ((()))

Tom "Onwards and Upwards" xx

Dear Julie

Our sincere condolences, to you and your Family at this sad time.

Am sure you will have plenty of great memories to cherish over the coming months.

Love and Hugs

Tom and Elaine xxxx

Hi Terry great Photo you have added and am pleased you are doing Ok

Tom "Onwards and Upwards"

Well you all am all jabbed up both arms :-S swine flu and a double mainstream type of flu thing in one jab and pneumonia in another 😀 but today I feel a ic:-/ cle bit washed out.

Hope you all get your in on time 😎

Tom "Onwards and Upwards" x

Hi Craig

Am Pleased Etta is over the flue symptoms re the Zometa 😀

I am like Bridget in saying Make time for yourself along this journey you will need it.

My Young Bride (Elaine) looked after me when I was going through the Mill with treatment and I insisted that she Made time for herself even on Xmas day Elaine went round Family and…[Read more]

Hi Craig I am glad Etta is over the worst You two will get through these times as you seem like a very strong partnership, I know I couldnt manage without my husband Just a word of caution though try and make some time for yourself that has nothing to do with myeloma or hospitals as it can take over your life , so try and have some fun too love Bridget x

Hi Gill,

The i, its big sister The Independent, The Guardian, the Telegraph… are the papers for this sort of story. They all have online versions and every one of them has contact details listed online. Either ring the news-desk or perhaps better still (it is easier to collect and collate your thoughts in writing) send an email with your…[Read more]

Hello Etta and Hubby,

I'm sorry that I missed your initial post but I thought I'd say hello and offer a guarded welcome to the forum… guarded inasmuch as I wish that you never had reason to seek us out.

I am sure that you are both in shock right now and desperate to find out more about MM and its treatments, processes and procedures……[Read more]

Hi Sharon thankyou . Its such bliss to have got rid of that awful pain at last !! Now I dont have to feel pressured to go into the hospice for methadone trial either , I really did not want to do that. I hadnt realised until last year , when radiotherapy got rid of the last tumour on my spine, just how precise and effective it was these days ,…[Read more]

Hi Mari,

You are right in saying that there are people in worse positions than you and Steve but that has nothing to do with your immediate world when you are faced with the possibility of bad news and the agony of waiting for the consultations that confirm or deny your worst fears.

We know exactly where you are and we know exactly how you…[Read more]