Hi Amelie,

Unfortunately I had a battle to produce enough stem cells for even one SCT… despite five full days on the harvester and two very expensive 'booster' injections during the week. So just the one, which failed after ten months. 😐

But here I am and here I aim to stay for as long as I can.8-)

Dai.

Hi Julie,

I am so sorry to hear that your Mum has passed on. I am glad that you and your Dad were there with her at the end as she wanted. Remember your Mum as she was before MM but also remember how brave she was throughout her illness and how inspirational and helpful she was to others.

Dai.

Please accept our sympathy and very best wishes at this very difficult time.
Carol Bradley

I can see from others experiences that we are spoilt rotten at the City Hospital, Nottingham. We are fortunate to have a specialist Day-Case Unit, complete with a Harvesting room (that also has similar equipment that cleans/treats blood) next to an adjoining general consulting waiting room with a central phlebotomy unit and a consultation area…[Read more]

Dear Julie

I am so sorry your mum has lost her fight with this terrible disease she was a real inspiration to me

Much love Jo x

I am sad to hear your mum has passed away but at least she was with her family She will always be in your hearts and memories love Bridget x

Hi Gina what a relief for you to know its not her lungs causing the breathlessness Hopefully mum will be feeling a lot brighter today and you can all enjoy the weekend love Bridget x

Hi and thank you for your replies. Mum was breathless and we were worried that it was her lungs but we now know it was because of her blood levels being low. I spoke to mum last night and she wasnt feeling as breathless. I will speak to her later and hopefully she will feel much better in herself.
Gina x

I am so sorry on the loss of your mum. I am so glad that she had her family with her as she passed. I will be thinking of you and your family at this sad time
Gina xx

Good morning everyone a very interesting topic this not sure I can add much except to relay my own experience . From the initial consultation at UCH I have felt they are at the forefront of any new treatments With referwence to their hands being tied by NICE guidelines I have never felt that was the case.When I asked about the Velcade rules on…[Read more]

Hi Gina
Nice to hear from you,sorry it is not better news with your mum,how are her lungs,are they any better after the treatment.
It does seem to be one thing after the other,hope she begins to feel better now she has had some blood ,do not know much about revimide except in trials as the other side of CTD.
Hope it works and you can keep your…[Read more]

Hi Everyone
Once more in to the breach,and hoping to clarify and expand this discussion.

The hospital i go to has a specialised haematology dept that is taking part in Myeloma Trials which Slim is on.
When on trials you have to follow the pathway,but you can come off trials any time,and you can be removed of trials if they think you are no…[Read more]

Thats brilliant news dai, its always good to hear something positive. you enjoy your 6 weeks break, and here is to a long remission .
Gina x

well done dia
u
I know you would do it and not give up I will be praying for you to have reaaaaaalllyy!!! long remmission

Big ((((HuGS))))));-)

lOVE jO XX

Whoa lovely lady…

I wasn't referring to you in any way, shape or form poppet, I was stating my ignorance because I am increasingly aware that the more I get to know about MM and all its processes and procedures, the more I realise that I am just scratching around on the surface.

Looking back at my post it was a clumsy introduction and I…[Read more]

Thank you Mary,

Please pass on my best wishes to Theresa and your family.

I often think of Patrick, remembering when we were both having our SCT's and exchanging news and views via Theresa. The Cheltenham Festival was on at the time and I was aware that your Dad enjoyed the racing, so I studied the form via the internet and had a few small…[Read more]

Thank you Sharon and I wish you all the best with your results… I hope you achieve the CR bracket and 0 across the board if possible.

A question – if you finish C8 tomorrow then why do you have to wait until mid-November? The longest I have had to wait is 2 weeks. Eve & Slim have also had these long gaps between treatment and results and it…[Read more]

Hi Mari,

First of all you have to allow the hope that this is a 'glitch' in the readings… it has been shown that these do occur. Secondly your consultant will want to see 3 readings on an upward curve before declaring relapse… and even then only if the trend shows a significant rise (5 to 6 to 10 etc). I met someone at the Nottingham…[Read more]

Hi
Good to know you are ok,hope everything goes well on the last cycle.Let us know how you get on 🙂
My beautiful white carpet did not enjoy Slim being sick on it,have used bleach but still looks iffy,helped make my mind up,so hall and lounge will be replaced with laminated looking like oak.
Could do without this,but when you are stuck in…[Read more]