Dear Mari I am so sorry to hear Steves pp have risen But as Gill said hang in there they may yet go back down It sounds as if your doctor is quite laid back about it too Mari you are so good at supporting others on here please dont ever feel you are a burden , it couldnt be further from the truth and we are all here for you and Steve whenever you…[Read more]

Hi Gill

Daily mail Wednesday Money Mail you look for Page 55
E mail asktony@dailymail.co.uk
daytime phone number postal address and separate not addressed to the .offending organisation:-)
Hope this helps. Eve

Hi Gill I cannot believe the arrogance of these banks!! No wonder you are spitting feathers how dare they treat you like that after years of being loyal customers! If I remember rightly HSBC are runnning a tv ad campaign based on meeting local needs Perhaps you could start with your local paer and radio station stressing the local angle They may…[Read more]

Hi Sandra

A warm welcome home I have to say you done well out on day 13 😀 If i remember correctly i was out on day 16:-/ I think lol.

Good Luck with your forthcomming recovery, and dont forget one day at a time and when you need to sleep sleep 😎

Love
Tom "Onwards and Upwards" xx

Hi Dai
Have done it again haven,t I,Dai i am not talking about your ignorance far from it i look to you for advice support and anything else you can throw my way to help me understand this dreadful MM,and what is available, so very very sorry,its my ignorance of every thing,that,s in front of us.
So accept my apology .Eve

Thank you David, Gill and Liz,

If positive thinking has anything to do with it I will live forever. 🙂

I really am going to try and enjoy every day of my remission… however long or short it may be. I have a book to write, a series of albums to record and some serious down-time to enjoy with Janet. As I have said else-thread, this…[Read more]

Hi Eve,

I don't need reminding of how ignorant I am regarding the processes and procedures of MM, however much I read or research… at the end of the day I can only refer to my own experience and information that I have gleaned along the way.

What I don't understand… and personally find unacceptable… is the parameters and limitations…[Read more]

Hi Terry,

I agree with Bridget, you have certainly been through the mill, several times by the sound of it.

My SCT failed after 10 months (I was told to expect 3 – 5 years) so I do understand how hard a relapse can hit you. I relapsed in February/March this year, confirmed in April (on my wife's birthday) with an accompanying Myeloma…[Read more]

Hi Gill

Just found the post were you ignored me!!!!,how dare you 😛 LOL, some one forgot to tell you scousers are thick skinned but are softies in side 🙂
Seem to be missing post these days,but what I have noticed is that you are taking Stephen,s results very calmly.
Gill you must be worried,I have noticed those early morning post when you…[Read more]

HI Sharon
You have not been on site for a while is ever thing ok i know you do not post much,but you must have finished Velcade now.How are things going:-S?

Slim on 3 cycle and a bit in Limbo as,no results coming through as decided bone marrow to be taken after 4 cycle.

Slim has not got the pain in his chest any more,and except for the odd…[Read more]

Hi Everyone
I will not bore you with general details except to say,husband started on ctd,now on velcade and looks if he will not be offered sct.

My point on this,is we were told he had Myeloma told about Myeloma trials and felt we had no options,asked if we had any questions,how can you ask questions if you do not know what to…[Read more]

Hi Everyone
How about

HENPECKED
I know I leave you with the same end but Slim tells me i keep doing that:-) :-/ :-S
KED

Love Eve

Rant away Debs… and good luck with the NICE/local health board issue.

Funnily enough I might have a similar problem… I rang the hospital today to enquire about my Clexane injections… whether I had to carry on with them long term or be referred to the warfarin clinic. After consulting with my consultant one of the lead nurses instructed…[Read more]

Thanks Debs,

I am allowing myself a couple of days to adjust and then we are going to make some flexible plans. I need to be able to write each day – for a set period… a couple of hours or so. I have found that treatment and side-effects has severely restricted my creative pursuits because while you can get your body to persevere you really…[Read more]

Well done you!

You are an inspiration to us all… especially in your refusal to be defined or restricted by your condition.8-)

I am really looking forward to seeing any photographs… and especially any videos.

Brilliant! 😀

Dai.

Well done that Nutty Nettie
Wow aint you the brave one:-D I might have cussed for you also if I watched you go over the rail:-S

Once again Nettie a Well done from iccle ole me 😎

Tom "Onwards and Now Upwards" xxxx

Hi Shir
Nice to see you keeping your chin up,would drive me mad too,Do not know if your are on face book,but they have scrabble on there ,and now i find myself
in the house more ,I play alot,also Slim plays to keep his mind active,I agree completely would not be without my lap top,use it to skype a lot,shows when friends are on line,so pop in…[Read more]

Thank you friends.

My remission period has come at me six weeks early, I had no reason to suspect that I wouldn't complete all 8 cycles… but it seems that 6 will suffice.

I am happy but also a little scared… I feel a heavy responsibility to achieve so much in an unknown amount of time. I only produced the bare minimum of stem cells, so…[Read more]

Hi Mike,

During my consultant's meeting yesterday I raised the question of a mini-allo as a possibility for the future… (wanting to know if my age – 57 – would stand against me) and she surprised me by saying that they are being phased out very quickly across the UK and most likely will not form part of the MM treatment planning at all within…[Read more]

Hi Mike, I'm on Facebook and Give Blood Scotland have a page that gives updates of where they will be visiting regularly, I'm sure its the same for the UK, perhaps we could ask them to feature this on one of there Facebook posts? It certainly has many members, I am one if them and was'nt aware that this option is available I'm sure there are…[Read more]