Hi |Girls
If i may call you that.My kids are terrified when I drive because if they talk to me,I have to take my eyes of the road,even my son-in-laws are scared.LOL.
I wish I could wave a magic wand and take all your pain away,but it,s not going to happen.
Life will go on and each day you will find some thing to smile about,I hope you will all…[Read more]

Hi Everybody
Zometa is known to be very effective on bone damage,usually administered once a month to strengthen bone with Adcal-D3 once a day.This has worked wonders on Slim,who could not even lift a carry bag with one item in.
Now he is on Velcade he has Zometa every three weeks,but Myeloma is 80% in marrow,
I can only say doing research on…[Read more]

Ho Dai I am so pleased for you,I hope tonight you are sitting there with a big grin on your face,must feel like winning the lottery.
Only this is far more important,and more worth while.
May you enjoy the freedom this gives you.Love Eve

WOOHOO BRILLIANT NEWS!! Dai its wonderful to hear you have been given freedom from the beast I really hope its for a very long time. Now you can both have fun and live life to the max again Thank goodness you made the journey from Wales and away from that awful doctor , when you did. I was so upset when I read your first post on here, its a…[Read more]

Hi Etta and husband, Its my mum with myeloma and you doe get the highs and the lows. i stuck to this website when we found out that mum had it. This site is a godsend and the people on it are full of wonderful advice and support.
Gina x

Hi David,

I am on 'Bonefos' – a Sodium Clodronate, of which I take 600mg (300mg twice a day).

I had 1x bag of Zometa at the beginning of my cancer journey, when they were treating me for secondary bone cancer, primary unknown. My mate, the ill-famed Welsh consultant, stopped me continuing with Zometa because he was convinced that I would…[Read more]

Hi Debs
I do feel for you,they treat you like you are thick as two short planks,and wonder why patients loose there respect for doctors.
I had a problem,with a doctor last week,in the end I told him I was standing my ground,as i new when Slim was not well did not go down well:-P but worked.

Same doctor couple of hours later could not have…[Read more]

Hello Gill

its the rows that keep us going:-P
Regards to Stephen
Love Jox

Hi Eve
yes he did take me out for a nice steak and I do get flowers now and again
we manage to row a lot but we laugh a lot as well and thats important
Geoff doesn't plan ahead but he manages to remember at the last minute 🙂
but I do drop a few hints;-)
Regards to Slim
Love Jo x

Hello Ettas Husband
When I had CDT i felt terrible all the time I was on the DEX no sleep but tired all the time it also makes you very irritable or it did me so bare with her if this happens I wasn't
sick which was lucky my consultant also said never mind about what stage I never did find out. I didnt have zometa but premidrinate same sort of…[Read more]

Hi Debs if ever a rant was needed that one was ! How infuriating for you and why dont they listen to us the people who are on the sharp end of their service . I had problems after seeing a pain consultant , between him and my gp it took weeks to get my morphine and pregablin sorted out Actually I dont take the pregablin anymore it made me very…[Read more]

Hi Ettas hubby I hope she is feeling better by now . I agree its good to let someone look after you now and again but sometimes its hard to let them do it A lot of doctors dont agree with staging now we have so many new drugs and treatments its not as relevant as it used to be so try not to worry love Bridget

Hi Bridget am sure you will love the hot spells when they are back they say its gonna be a long cold winter 🙁

And Min I nearly wet my pants reading your post ha ha and am not that old yet 😎 I hope we dont come across it on "You Tube" from some one else walking their dog he he

Love and Hugs to you all

TOm "Onwards and Upwards"…

Hi Etta's Hubby

Sounds like the symptoms I had flu like but i got used to that.

Tell Etta from me that she needs to let people fuss over her the more the better:-D

Just a reminder keep your eye on Etta's temperture and dont let it get too high.

Tom "Onwards and Upwards"

Hi Mike

Sorry to read about another one that has run out of optians on the drug front.

Tom

Hi Etta

A warm welcome to the site, and you will soon settle in (its like a old pair of slippers to me warm and cosy)

Now what to say? well I was on CDT as a first response to My MM in Feb 2009, yep loads and loads of pills:-( as for the reaction I was very very tired during the CDT that I had to go on the sick:-/ I was on the sick for…[Read more]

Hi All
I love all this glorious weather we are having,it is a real bonus,it makes so much difference to our days,people walking round with a smile on there faces , i just wish it would not end.8-)
I love that Slim has decided he wants to go out as a family for his birthday,one daughter will be missing in NZ.to me it means he is feeling…[Read more]

Hi All
Nice simply one
STICK

ICK next love Eve

Hi Min
I can just see Daisy telling everyone about you wetting yourself,LOL,You made my day,
The dogs will get you out of the bed in the mornings,just take it a day at a time.Love Eve