Hi Clare
You must be worried after 6 courses of CTD then a rise in light chains,best to ring hospital tell them your worries,you will be able to see your dads consultant early.

Slim had 6 cycles of CTD seems to be on path for remission,when they took bone marrow found MM had gone up,but light chains were down:-S,left us shocked,spoke to nurse…[Read more]

Hi Jo
Well come on tell us,did he wine and dine you!!:-)
As much as i love Slim he cannot even remember my birthday with out my daughters telling him,so not holding much hope for first wedding aniversery.

Saying that he did buy me a bunch of flowers twice in thirty years not bad,and not from a garage forecourt,sainsbury,s more up market…[Read more]

Well said Mavis I agree,Eve

Hi Roz
Sorry if i got it wrong,I know how hard it can be to live alone,specially at weekends,the door shuts on friday and thats it till Monday .
I am not very good at explaining myself,I myself have my own isolation,because I am deaf,I am suppose to were hearing aids,but I hate them,so it,s not so much physical as mental isolation that I was…[Read more]

Good morning Min thank you so much for starting my day with a giggle The image of you emptying the water out of your wellies like that is priceless , I bet the dogs thought you had lost it Watch out though as I bet Daisy will be bursting to tell the world how her nan wet herself!! Tee-hee Shame about the racy sportscar , dont suppose it would be…[Read more]

Hi Dai what rotten luck to pick up an infectionnits so maddening isnt it ! Heres hoping the anti -biotics do the trick sooner rather than later so you can get on with your next velcade. LAots of love Dai feel better soon Bridget x

Hi Etta welcome No wonder you are in a spin , at first it all seems so hard to take in but it will get easier in a short time as you get used to the routines of taking all those meds You have already been given good advice as to anti-sickness tablets and I agree that Zometa can affect you but it tends to be temporary The main thing is to let the…[Read more]

HI Etta
Mind blowing,but do not worry you are not alone,Slim my husband did 6 cycles of ctd and there are lots more people on this site just like you.
Love Eve

Hi Gill
No not that good looking LOL:-P
Tried reducing pictures but not having much luck,eldest daughter tried,she could not do it.
But at least i have managed to get a photo up,no way am I going to put one up of me that close up LOL,its bad enough looking in the mirror.:-D
Love Eve

Hi Dai
here,s to today a new day,and Velcade 7,good luck.
Love Eve

Hi Mike
In full agreement with you,think its very important for MM people with no siblings,but were do you start,even I do not know the basic and I try to keep myself well informed.
So the people without MM it must not even cross there minds.
Would take Myeloma UK to start information on this one.Regard Eve

Hi David
Wonderful news,I hope you have a couple of holidays planned,and enjoy this new found freedom,no visit to hospital until end of year that in it,s self would have me dancing . love Eve

Hi Mavis,

Well I'd like to say that I'm still on a high… but… I started my week's 'rest' – the third week of the cycle – feeling in good spirits but I started feeling unwell with dodgy waterworks last Sunday and ended up with a high temperature. So I made the 40 minute journey into the day-care unit of my hospital on the Tuesday…[Read more]

Hi Min,

All I've got to say is:

🙂 🙂 🙂 🙂 😀 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 😀 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 😀 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 😀 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 😀 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 😀 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 😀 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 😀 🙂 🙂 :-)…[Read more]

Hi Jet!

So glad to hear your great news, Clara x

Hi Etta
Welcome to the site,and to your journey,one that no one wants to be on,but we are,Yes it is all a bit mind blowing,so much to take in and learn it will get easier as time goes on,treat it like a big learn ing curve, any questions ask away,

You do not say what chemo you are on,and it can effect you!!
You should have some sickness pills…[Read more]

Hi Terry
All the chemo differ in how you take it right across the country except if you are a part of a trial,Slim is on Myeloma M1 trials.So it is closely monited and you basically cannot divert treatment.so now on CVD.

Peter had a course of Velcade and then 3 years remission and still going strong.
Slim is doing full 8cycles as light chain…[Read more]

Hi Terry crikey you have certainly been through the mill in the last few years yet you sound so positive and upbeat which I am sure has a lot to do with keeping well I was diagnosed 5 years ago after a year of agonising back pain which meant 3 vertebrae were eaten up Amazingly I did not have any problems walking much to my doctors astonishment…[Read more]

Hi Tom thanks your good wishes keep me going . Funny you like the heat now I am still not happy in very hot weather and have to stay in the shade But heres to many more sunny days to cheer us up love Bridget x