Hi Min lovely to hear from you and it sounds as if your visit to your daughter has helped restore your spirits Yes I will be starting Bendamustine as soon as each member of the team has agreed to it . I am not eligible for a trial as my pps are immeasurable Fingers crossed it will put the beast back in its box for a while longer !! Have a safe…[Read more]

Hi Terry, My mum was on velcade but only had 2 lots of treatment but it affected her heart and kidneys so it was not right for her. But i have spoken to others and its done them really well, so it all does depend on the individual person
Gina x

Hi Liz and Kev

Well I wonder why the Hickmen Line? I had a femerol line when I had my Harvest and SCT am told its less invasive and less likely to get an infection in it???

But when I have my Four Weekly Zometa it is like "Chase the tube" lol and yep Angie gets the "Hot Towel" for my hand but its not working all the time (but it feels…[Read more]

And a Good evening to you Bridget:-D

And am I pleased your pain has gone 😀 gosh I wish i could hug you ((())) bless that R/T 😎

And hey we can cope with the tiredness and NO pain 😀 and long may it continue.

Elaine and I are doing great in this weather And I Love it::: dont know about anyone else but::: prior to me having MM I…[Read more]

hey up Ted (a northern saying)

I am sure that we as MM badge wearers none of us know what will is going to happen as the bLo**ming MM throws a bit of a curve and throws it all out :-S

Regards

Tom "Onwards and Upwards" 🙂

Hi Terry

May I be one of many to welcome you to this great site:-D but sorry to see you here:-(

Reading your post am sure you will sail through it all and a lot of it as you know is S**t :-/

Me I had lots of CDT and a SCT (December 09) and am doing great only on Zometa now 😎

Good Luck Terry

Tom "Onwards and Upwards" x

ITY = YETI

ETI to you.

Dai.

Gill and Stephen

so sorry about the news I know your not quiters this next treatment may be the one we all have to fight, fight to live I know stephen does that all the time keep your chin up
Love Jo

Hi Terry

so sorry you have had to join this group I cannot help you with velcade as that will be the next drug i am put on when i need it I like you will be looking for advise I have been lucky so far no tumers but I have had chronic renal failure due to myeloma
Love Jo

Hi Roz
I have only just seen this post,and as you know I am not in your position,so in truth cannot begin to understand,loosing my partner through death,although i do know that this will happen in the future.:-( I always thought it was that I would go first.because Slim until now was the healthy one with good genes,just shows how wrong one can…[Read more]

Hi min
Who,s ears?if big Slims if small mine,having trouble reducing size of photo,tried putting one of Slim and me on,so thats the ears and fence LOL,my dog is better looking.Love Eve

Hi Terry, welcome to the group. My mum has myeloma and she has had it since 2009. You will get lots of support and advice from the lovely people on here. I know as i have had lots. Im sorry that you have relapsed. My mum at the moment is on Revlimid and Dex and this seems to be working for her.hopefully there will be lots of options for you to…[Read more]

Hi Terry
First may i give you a welcome to this site,I am a carer to my husband but you will find lots of different people on here who can give you advice and boost you up when you need it.
I can only tell you about Velcade but others on here have been on a journey with similar problems,
may I say Velcade is not the last resort,My husband was…[Read more]

Hi everyone how about this word TENACITY –something we all need! Sorry but it still leaves ITY Bridget x

Good Morning Tom well the pain has definitely gone !! Thank goodness for wonderful radiotherapy and the lovely Professor Tobias , a man who keeps his promises Now all I have to wait for is the tiredness to ease up but that may be due to my myeloma levels rising as well ,so soon as new treatment starts the better Hope things are good for you and…[Read more]

Hi Gina how is mum feeling? I hope this lovely spell of sunny weather has lifted her spirits a bit. Please say hi for me love Bridget x

Hi Shirl
Just seen your post ,do not know how I missed it.
Well stuck in hospital with the weather so lovely out side,no fun and tired up to oxygen ,you don,t have one of those massive tanks do you,or can you get about with a portable one?
I take it the info day was at your own hospital?
anyway at least your home now,this weather is going to…[Read more]

Hi Bridget

How are you today? Hope your Pain is still kicked into touch:-D

Love and Hugs

Tom ((()))) "Onwards and Upwards" xx

Hi Liz and Kev

Hope you enjoy the break next week 😀 and hope the sun stays with us till you have had the aforementioned break 😎

Now those Pesky veins:-S they found one of mine first time 😀 last Thursday so was thinking its an in and out today:-D but my records were not at the day ward so I was sat with just having a fluid drip in…[Read more]