Hi Liz and Kev

And a well done to you both 😀

Am still on Zometa, think it will stop at xmas?? am sure Dr says be on it for two years post sct ??
Enjoy your break am sure you are ready for it 🙂

And David Good Luck with your appointment on Friday 😀 like you I know its going to be OK8-)

Tom "Onwards and Upwards"

Hi
[b][/b]Fantastic news!!![b][/b] So pleased for you both may it continue for a long, long time.
Thank you for letting us know – it´s a real boost.
Go away and enjoy your holiday you really have earned it!

Best Wishes

Love Carol
xxxx

Hi Gill

Well it looks like your Ankle is better 😀 but I hope your A R S E gets better soon too he he

Love
Tom xx

Hi Amelie

Luckily my doctor is very kind and sympathetic – it´s just that after my being so poorly I think my itchy back comes rather low down in the order of things to worry about so I´m trying not to worry about it.
Hope things go well.
Love Carol xxx

Dear Jo happy anniversary! What a wonderful thing to celebrate 46 years is awesome. I do hope you are going to do something really special tomorrow , have a lovely time Bridgetx

Dear Jean and Dia
thank you both for your kind thoughts lets hope we can have lots more celebrations

Love Jo

Ah… life on this planet. 😀

I was getting worried… no messages or replies from anyone about anything for a good 24 hours… I know there was some maintenance done at the week=end… but I tried coming on board only to find it like the Marie Celeste… floating quietly along with no one on board.

Back to normal now… 😛 I hope.;-)

Dai.

Hi Helen,

The thing, for me at least, is that we do have choices and options in the direction and management of our Multiple Myeloma. But… these choices and options, the ones that will dictate our medical/clinical paths through MM, arise when we are at our most ignorant, our most vulnerable… and inevitably, our most frightened.

In…[Read more]

Hi Bridget
Glad to hear your back up and running! Hope the morphine is helping with the pain although I know it must make you rather haaaaaazy!
They have given me oramorph to be used only at those times when the Tramadol just can´t calm the old back down but I haven´t been forced to use it thank goodness although I have come pretty c…[Read more]

Hi eveyone heres my word KNOWLEDGE leaving —-DGE love Bridget x

Hi Susannah I do hope the lower dose is better for Michael , all fingers and toes crossed ! I wasnt eligible for a Bendamustine trial as I am a non-secretor and the only way to monitor my mm now is mri and bone marrow biopsies The hospital does have a system though where if all the team agree then treatment can go ahead At the moment I am waiting…[Read more]

Hi Amelie, i hope that you get the information you need, sorry i cant help. But wishing you and John good wishes.
Take care
Gina x

Happy Anniversary Jo!

Good grief, 46 years is a long time… but you are still here and hopefully celebrating. 😀

Anniversaries, high-days, holidays and birthdays are good to look forward to… especially those milestones… whether they are naturally occurring (like a Golden Wedding etc.,) or set in the road ahead as a marker… in my…[Read more]

thank yo so much for your positive replies, you always raise my spirits and i know you all know what you are talking about.
we have spent the day with mum today and even got a few smiles off her,so result :-).
i will pass on what you have all told me.
thank you again.
Gina xx

Good News Gina

so glad your mum is reponding the blue badge will help her get around a bit better give her my best wishes 🙂

Love Jo

Hi Gina what wonderful news! It may have been a bit of a mixed bag but its a very good start to get those numbers down!!Hopefully mum will feel better soon , I agree with Dai the drugs we take are often what make us feel lousy but as your mums system gets used to them it should get better. I hope you can all relax a bit now and go and have some…[Read more]

Hi Gina,

That is good news. You can tell your Mum from me that I have often felt at my absolute worse after getting good results… it just means that the medicine is doing its work. Unfortunately she is feeling the double whammy of the chemo being active and the accumulated side-effects, especially fatigue, that accompany the drugs at work.…[Read more]

My Dear Friend Min after Dais lovely message to you there is very little to add. Please know that although Peter was the mmer you were and are the person who made so many friends on here.It feels wrong to pressure you to stay , if I were in your shoes I am not sure what I would want,but Min you would be missed by so many people! I can only imagine…[Read more]