Well done Ivan, am sure the count is great:-D keep it low and keep getting remission8-)

Tom

Hi Bridget

Well am pleased it is working for you 😎 am sure the dex wont/cant be masking the pain:-/ so we will put it down to the RT you have had and long may the pain free continue 😎

Love and Hugs (((()))

Tom xxx

Oh Gill

I hope your "Ankle" is soon better 😀

Just noticed Stephen is 56 (ish) we are same age 😎

Love (One Shy) "Onwards and Upwards" Tom 😛

Hey Graham

I am in on the "Under 50's" and am 56 😀 yep 56 its a place I go to to use some words that you cant use on here 😀 if you know what I mean 🙂 never known anyone not accepted good bunch of cussers in their though so be warned lol 😛

Tom (never too old for the under 50's) "Onwards and Upwards"

Honest Helen I never (never) read this post (fingers crossed he he) xx

Hi Amelie

Sorry I cant help, but am sure if you phoned the Nurse am sure He/She would be able to help?.

Good Luck and am sure John will be Ok

Tom "Onwards and Upwards" x

ILS = Solitude

UDE – up for grabs.:-)

My sympathies to both of you… it sounds painful… but why the cannula? I cannot imagine receiving Mephalan without the aid of a Hickman or similar multi-line… as a matter of fact I can remember being told that it was crucial to have one for both the doses… pre-Harvest and the pre-SCT.

When I was admitted the time before last, for an…[Read more]

Hi Gill & Stephen,

Well part1 has been done and while full removal would have been ideal at least they will know the cause and will be able decide on how best to remove the rest (Chemo for MM – RT for associated). It makes me wonder if they might have gone for the lot if Stephen had been under a general… but then that would more than likely…[Read more]

Hi
I hope Min has taken a little time out,may be,she has gone to enjoy her grand children,if she has she will come back refreshed,and stronger to cope with all those inefficient people who do not know her situation and have no understanding of it.
Min will come back in her own good time.Eve

Hi Gill
My,Stephen is brave I suppose it is better recovery with local,and chemo should finish off,I suppose Gill with all they go through,its just part of the bigger picture:-/.
Do understand were you are coming from,to me it seems like waiting for the next episode,I do not think sct now,I just wait!! as cdt did not work,will velcade:-P.I…[Read more]

My word to follow that one is LAMINATED which leaves TED

Hi Paul not all doctors classify patients myeloma type to them so you will get various answers to your question When I was first diagnosed they were able to measure my paraprotein levels and therefore the level of myeloma in standard blood tests When this proved inaccurate after a couple of years, I relapsed with a large tumour and still had low…[Read more]

Hi Carol thank you for caring and I would never think you were a pest for asking ! So far so good no pain for the last few days but as I took extra Dex this could be masking it The radiographers always point out things get worse before they get better so I am being cautious for a while yet ! Still its looking very promising apart from a bit of a…[Read more]

Hi Helen your answer made me laugh That would be just the thing to happen to me too !Or I would spend a whole day out before realising it was on back to front or upside down!! Just e-mail me your address and I will knit your hat , at least it will help keep warm As for body hair Wendy I didnt have to shave my legs for over a year the first time…[Read more]

Hi Jo , Dai and Elizabeth thankyou for your kind words .Dai of course you can have a Bridget beanie but no contribution please this is my small gift to my online friends in just the same way you give us your beautiful words and music Its a joy to me to be able to make something people like and who better to make for than good friends .I have still…[Read more]

Hi Graham,

Welcome to the forum, by the looks and sounds of it you have as much if not more experience than most on here. Your Stem Cell mobilization is interesting… how many did you have left from your original harvest?

Dai.

Dear Min

Please don´t be silent. Not only would we miss your kind, common sense approach you might just miss us too! Having been widowed I do know what a help friends can be when your going through such a traumatic time so pleae do make the most of us.

I´m really glad that the funeral went well – what a comfort for you all.

Try to t…[Read more]

Hi
I had my SCT in Feb and the last three months I have been back on Revlimid. In addition to the usual symptoms you mentioned I have felt quite strange at times. I describe it to my husband as being like a goldfish looking out as everything seems rather vague and distant. I have also had some worrying short term memory losses and there are…[Read more]

Hi Bridget
Thanks so much for letting us know how you are getting on. I often think of you but don´t want to pester.
Sorry you are suffering with the pain and just praying that they get on top of everything for you soon.
Prayers and very best wishes are with you
love Carol xxx