Hi Ivan – what fantastic news. I don´t understand all the "ins and outs" but I do know that such a drop indicates that they have the cancer on the run!
Best wishes for continued good news.
Carol xxx

Hi Keith and Helen

Luckily I didn´t have any problems like yours but I just wanted to send you my very best wishes as I know how under the weather you both must be feeling at present.

Keep your chins up – had my sct in Feb and for a little while wondered if I would ever feel stronger but yesterday I rode my new horse and cleaned lots of mud…[Read more]

Hello Graham

Just wanted to extend a very warm welcome to you. Seems we were diagnosed in the same year but I only had my stem cell transplant in Feb of this year and after further velcade am now in remission.

Good luck with the Harvest and very best wishes – hoping that the GMX has produced lots of the little wrigglers for future…[Read more]

Hi Wendy

Well done on your SCT, and it sounds as if you sailed through it:-D , only in 15 days you beat me by one day 😎 and to be fair mine was an all out attack of bowels and mouth:-/ 5 of those 16 days was nearly comatose :-/ but hey ho am better now 😀 .

Still get tired but am learning that what I used to do prior to MM I cant do post…[Read more]

My 'need' is less conventional, being folically challenged by nature rather than medicine… and I have several hats of different textures for different seasons… but, if I could make a donation, I would love to own a woollen 'beanie' by way of a 'Bridget Original'… which I would wear by way of pride and comfort.

Wouldn't it be great to get…[Read more]

Hi Graham
If Tom can do it you can,do not think they are a strict bunch,you have different issues when your younger with families,work and money so still worth trying,they can only say NO,and that,s nothing with all the other issues.:-S
If it is any help to you,at this time your face looks ravaged and you look into that mirror,it does get…[Read more]

Hi Dai and may you be a happy bunny for a very long time to come love Bridget x

Hi Graham welcome Can I just say if you are young of heart and mind they laet you into the under 50 group , this is from me a 56 yr old who joined ! Seriously there may be relevant work or lifistyle issues better suited to the under 50sif so just let Scotty or Phil know your e-mail address This site is brilliant too , so many lovely people to…[Read more]

Hi Dai
How did the holiday go,plus the weather,must have just been nice to get away from treatment for awhile:-/
Soon passes it seems like yesterday you were saying about starting Velcade,Slims just finished second cycle,wish we had your turn round for bloods and Velcade,we do it in 2 trips.60miles all together.:-S 😛 Tried staying around…[Read more]

Hi Graham,
My first thoughts on reading your post,your 2005 and relapse 2010,and wondered how you have managed to cope with this all this time,family and friends are good,but its people on the same journey who understand.:-)
You are further on your journey,than my husband,but I can see you are going to be a great asset to this site,and I hope in…[Read more]

Hi Graham, sorry you have had to join the forum but welcome.its my mum who has the mm and i am her carer with my sister.
I hope your count raises and everything goes well for you.
Take care
Gina x

Hi Graham
Sorry you had to join us, but you have joined a great band of folk that throws Humor and commonsense into the threads 😀

Hope your count soon picks up and you get a great harvest.

Tom "Onwards and Upwards" 🙂

hi Bridget

Hats glorious hats I can recommend your hats they are pretty and stylish
Glad you are feeling a bit better hope the RT is kicking in and reducing your pain PS I wore my hats alot last winter

Lots of love Jo xx;-)

Hi Everybody

NOTIFY

My word for today IFY Eve

Hi Paul
My husband is on the MX1 trials,he got CDT side,6 cycles intensive pathway,some advice I can give you,is high dose DEX does disguise any infections,low blood pressure was the start of Slims,not even picked up in A&E,so do take care.Septic pneumonia has cost him the chance of going for SCT.
Now on Velcade as no bench markers to judge how…[Read more]

Hi Helen and Debs I love to hear how well you are both doing and you are so right it is day by day , sometimes hour by hour ! Helen it must make you feel much better now your mouth doesnt hurt so much, nothing makes me feel so wretched even a single cold sore !! I have lost my hair 3 times now and I knew from the outset I was too untidy for a…[Read more]

Well Nettie

You have more oo than I lol, Mad? No I dont think you are Brave? Yes I think thats the one 🙂

Good Luck.

Love

"Tom Onwards (and just for this thread) and downwards" xxx

Hi Liz,

The side-effects will pass, they always do… but… I just realised how insensitive I have been in my post above…

[i][b]'everything else went fine, with a nice 4 way chat between myself, an elderly afro-carribean leukemia patient and 2 new Myeloma patients… well, new to me that is… with both of them being around with MM for…[Read more]

Hi Eve

Hope you both can make it the parking is just out side the venue which is next to London Zoo last year there was loads of parking if you needed it
Love Jo