Hi Everyone

How about HENCEFORTH A word not spoken very much but used a lot in letters.

RTH
Eve

Hi Gill
Just to wish you and Stephen good luck,hope every thing goes to plan,and you can have a bit of a rest soon,have noticed you are another one,who burns the midnight oil,terrible when sleep will just not come:-(
The rugby has taken over from the post on here a little bit,I enjoy the solitude of the early hours,If I want to feel a bit sorry…[Read more]

Hi Gina
Glad you and your sister enjoyed the info day:-)It helps i think when you meet people who have been living with MM a log time,it gives you a lot of hope,and on bad days,you can think its just a slight hiccup,and tomorrow will be better;-)
My nearest info day will be London next year,and nearest support group is over 60 miles away, that,s…[Read more]

Hi Aileen

And a warm welcome from iccle ole me 😀 and as for not knowing type you have joint me as I aint a clue what type i have and i have had it since 2009:-0
But am gonna find out next time i see my Dr? in about three months I think :-S

Good Luck with your treatment.

Hugs

Tom "Onwards and Upwards" xxx

I totally agree, mum gets the same. But we all have to stay positive dont we and you are always very positive 🙂 x

Hi Deb's

As you know I am a fiar few months Post sct and as for hair growth (and am sure you wont have this problem) facial hair? if I dont shave for a day or two I get a Pencil tash ? seem to have a line of "None Growth" around the mouth and chin? but am nearly used to it by now? so will let it grow as it comes 😎

Tom xx

Thanks Gina am doing "Spot On" thanks 😎 some weeks i dont know I have MM 😀 then the iccle devil pops up and tells me am "Tired" :-S but hey ho thats MM for you :-0

Tom "Onwards and Upwards" xx

Hopefully you will go to one one day Tom. You are right it was a very long day, well worth it but very long 🙂
Hope that you are doing ok
Gina xx

Hi Gina
Thanks for the post 😀 pleased you had a great day (bet it was a long day)
as for me I aint been to one yet? (my fault).

Love
Tom "Onwards and Upwards" xxx

Hello Alexis and John

A warm welcome to the site one that you and John will find a great help as you go down the road of MM.

No need to sign up just post add to other posts or make your own post and do your bio, I for one would love to read it.
Folk on here are like the info line as they help,comfort and support each other in their good and…[Read more]

Hi Alexis
My name is Eve welcome to the club,i never introduced myself officially,just,joined in,Then some one put on a thread"Who the Heck are you" think you will find it in Off Topic just scroll down.I came out on that no reason it cannot be updated on.:-)
So good luck,By the way i am a carer to my husband, keep posting Eve

Hi Gill just want to wish you both good luck. You are right about the space on your calender its never ending. Please keep us posted on how everything goes
Gina xx

[b]I Love[/b]

Silly things, little things, trivial things
Non-sensical tid-bits that show how I feel
In my sunshine and shadows
Through my smiles and side-glances
In those little romances I know to be real

[b]Dai.[/b]

Hi Gill I am glad Stephen has got a date at last ,it seems ages since you first mentioned his lump As for the full diary what social butterflies we are!! Thanks for the reminder about the flu jab I am hopeless at booking them so have now left myself notes around the house , like thats going to work!! Take care and good luck for the op Bridget x

Hi Aileen welcome to our merry band!! It is a huge shock when you are first given the news but as you begin your treatment, if any is needed. things will soon become clearer The info line on here is manned by nursing experts who are only too glad to help with questions Last but not least there are so many lovely people on here to support you when…[Read more]

Hi Ivan
It does depend on what type of Myeloma you have and how much bone damage and tumours,plus lesions.some are more aggressive than others.
This is such an individual decease you cannot go on anybodies bench makers.
Did you ask why they had taken you off CDT and put you on Velcade after just a few cycles???? You would normally do at least 4…[Read more]

Hi Ailleen
Welcome to the site,i have been on here since February,and must admit in the bad times could not have managed with out it.:-(
As David says some one is always ahead of you on this journey,I am a carer to my husband,It does take a little bit of time to take in,but my attitude is i want to know everything about this MM,
So do not…[Read more]

hi Ivan
Worth checking out,blood clots one of the side effects,pity about CDT,Slims on 2 cycle of Velcade,no big side effects(touch wood).
It might seem very small ,(like a sore leg) but do get things checked out.
will not have blood clots in future with Clexane surprised you were on such a low does,you look a big man from photo,goes on weight…[Read more]

Hi Bridget

Sorry your first lot dint go too well 🙁 But am pleased the next one was better 😀

This MM is a bit of a trickster as you say runs smooth (ish) then wallop a smack at the side of the head and it takes weeks before a decision can be made re the meds:-S am sure the know about the pain and fear folk are in and the wait should…[Read more]