I agree Min we should be able to double up at least 2 of those appointments,We rang last week just to remind them of things that needed to be done,and was told not to worry things were in hand!!!!
when we went on Friday no appointments had been made,nurse made blood and Zometa.Told me nothing had been arranged to late to get hold of anyone.
bank…[Read more]

Hi Min,

Hopefully now that they have identified the problem they can find the appropriate anti-biotics and get Peter back to some kind of 'normal'… whatever that is. I can empathise with the high temperatures, I've suffered from my fair share and I know how uncomfortable they can be.

The loo-dash with IV stand was one of the events in my…[Read more]

My relapse in the spring coincided with a tumour on my sternum which was growing rapidly – I was fortunate that it was due to Myeloma and was totally eradicated by my first cycle of Velcade.

I wish Stephen every success in his treatments for his 'quite a few other bits of plasmasytomas' and I hope that after they have been eradicated and/or…[Read more]

Jumble Sales. I still love them today… despite Janet saying she thought I would avoid them like the plague given their significance to my childhood… but I didn't know any different.

The significance? I was the third of seven children (an eight appeared in my mother's second marriage). I can remember three or four of us having to stand in…[Read more]

Sixpence was also a tanner in West Wales. I had a shilling pocket money between the ages of 10 to 12. It cost ninepence – 9d to get into the cinema with threepence – 3d left for sweets. Threepence would purchase a 4 oz. bag of mixed sweets… I normally settled for mix of toffees and pineapple chunks… not many of each in a quarter bag but…[Read more]

Hi Debs,

I have exactly the same symptoms, with exactly the same effect as you and it drives me to distraction.

I don't bother with the Oramorph because as good as it is for general pain it just doesn't work on nerve pain. I'm afraid that I have no other suggestions (i bought a Tens Machine but had to stop using it after one session after…[Read more]

Hi All,

Yes, they kept me in… after being told to come in I had a quick shower and my temperature went up to 38.0 by the time the nurse took my temperature it was 39.0 – examined by a Doctor who admitted me.

The Doctor came to see me in the room and said that my Neutrofils were fine, as were my white cells, so he wasn't inclined to give…[Read more]

Hey Min am sure its no help to you or Peter but I threw more pants away after my sct than I had bought in a year, dare I say it dint stop for some weeks after getting home so beware, after food no one dare go to the loo till i had been ha ha.

I also used the throw away pants that they have in hospital 🙂 and brought some Pads home to use when…[Read more]

Hi Eve

Tried to cuss but this site wont allow it ha ha (get on the over 50's)

That time table is taking the w e e , w e e (hope it lets me post this one ha ha) I am having a Zometa infusion tomorrow at 9 am then see the consultant at 11.45 🙁 BUT bless Dr Jalihal he tells me to go straight up to his clinic as soon as I have had my infusion…[Read more]

Hi Chelle
Only just read of your rotten news and I am so sorry that it´s taking a while to find the right treatment for your husband and obviously taking it out of your both in different ways. We all understand that it´s very hard to remain positive – at times all we can do is keep going whilst we let the doctors try and figure things out on o…[Read more]

Thank you to you all for your replies. We know it will get to the point where there wont be any options but are hoping that they can give her the mdt again. although it only got her pp to 19 she still had 12 months without treatment till numbers started rising again. You never know something new may come along in the meantime. I hope you are all…[Read more]

Hi Chelle

Like the others I am sorry to hear your Hubby is poorly 🙁

Please think on the positive side it will make your journey a little bit easier, its a struggle at times I know but it will help.

I cant offer advice re the meds just to give you both my support.

Love and Hugs ((()))

Tom "Onwards and Upwards" xxxx

Hi Gina

Like the others I am sorry that the Velcade is not working for your Mum 🙁

I hope they soon find some thing that will help and not many side effects? (if only)

Love and Hugs to you all

Tom xxx

Hi Gill

I do feel for you,at least you now know,and the battle begins,we are still waiting on MRI scann date for this Sunday,then hospital appointment for everyday except Thursday,have just worked out the mileage and we will be doing 210 miles to and fro that week.

I do not know which is worst knowing or waiting,Slim seem to take it in his…[Read more]

HI Dai
I take it the kept you in?????Eve

Sorry Deb,Slims on Velcade but does not suffer neuropathy I do give his legs a good massage,but i suppose you legs are to painful to touch ,I think Dai has a lot of knowledge and scott you could try e mailing one of them

love Eve

here is my memory for today
My mum use to buy every week something for Christmas,tinned fruit and things and put them at the bottom of the wardrobe,we were not allowed to touch them.

I can remember thinking if i made a little whole in the tin,I could drink the juice,and my mum would never know i got the old fashioned can opener and put a tiny…[Read more]

Hi Gill sorry I didnt spot your post before I sent you a message Blooming heck no wonder you couldnt sleep! Stephen must be so fed up at the thought of more treatment and surgery , sometimes I have a weak moment and want to say get lost when told I have got to go through it all again. I hope the next results are better news for you Take care love…[Read more]

Green shield stamps were amazing when they came out! I still have a few glass plates and a mixing bowl that came from there Mind you the amount you had to spend to get them was astronomical!! My mum smoked Embassy cigarettes and she used to send me up the road to sell the cigarette cards as they did a similiar scheme love Bridget x