Hi Dai

Left Liverpool 40 years ago,no regrets,when I first came down here,everyone thought I was Irish LOL now I have a plum in my mouth they think I am Welsh.
I know the Isle of Sheppey,few years since I have been there,Deal name fame is they lost 11 bands men to IRA bomb,they were all musicians no threat to anyone,most 18–21 years old.
I…[Read more]

Hi Jean
He is not to bad in himself considering the ctd has not done the job for him,and now started Velcade,another learning curve, 2weeks on 1 week off just started the week off.
he is not looking forward to having bone marrow taken at end of every cycle, but that is now the only way they can tell what is going on.One minute we are looking at…[Read more]

Hi Pauline this lousy illness plays havoc with all our lives! You must be very hurt by your husbands reactions but I think Jean and Eve have raised good points and as Jean said it has got better Perhaps you could contact his specialist nurse , in confidence , explain the situation to her (or him) and she may find a way to approach him about his…[Read more]

Hi Pauline and Jean,
Jean and I have had this conversation before,you will find Pauline there are a few others on this site with partners they feel like strangling some times,even with out the illness,that,s part of them,
I think jean and I came to terms with ,what was going on instead of getting angry we took the view( their body there life )it…[Read more]

Hi Eve,

I have a personal hand warming pillow on my wish list… and I must admit that it most definitely helps. 🙂 Re: the burning neck, Slim's not using the hot water bottle as a pillow by any chance? 😀

Sleep, or lack of it is the bane of my life… always has been but now, when I really need it, it continues to evade/avoid me. I…[Read more]

Hi Russell
Bone Marrow is the only way to confirm Myeloma 100% it does show in bloods sometimes and sometimes it only shows in Urine there is about 5 different types of Myeloma,and there are related conditions.see related topics!!!
As I said you are young,looks if they have found it early if you look at home page and go into video,s there is a…[Read more]

Hi Dai
Thought i would let you know Dai Slim did not have Picc line,but solved his problem after last week looking like a pin cushion,bought a cheap hot water bottle fill it and wrapped it up in pillow case,applied to arm while waiting to be called in,works a treat,and no time wasting looking for veins:-)been to hospital this morning,have to go…[Read more]

Hi Tom
Have we missed you yes,yes yes,we thought you got lost in your jungle of cucumbers.We are in need of some cheer on this Forum,as ever one has been having hiccups,and the people who are doing well are reluctant to post ,

Kitchens do keep you busy though,mine is still not quite finished little things like light and blinds,but we will get…[Read more]

Hi Pauline
In life we seem to find this energy to cope with what ever comes our way,my husband has the same view as you,why worry about it,if you cannot do anything about it!!:-S I how ever try to jump there hurdle first,so i can make it easier for everyone else to get over.
He is the Myeloma sufferer I am the carer,but this diseases has taken…[Read more]

Hi Christin and Meike

I also have not been on here for some weeks:-( still doing ok just having a kitchen fitted:-/ am sure it will be Ok when its all done and dusted:-D

Am Pleased David is doing good also, am sure it will continue 😀

Love and Hugs to you all

Tom "Onwards and Upwards" xx

Hi Liz

Sorry you are on here 🙁 but its the best place for info and advice, Hope all gets better soon.

Love

Tom "Onwards and Upwards" xxxx

Hi Sally

Sorry am late (but thats just me) and also sorry to hear about your Dad, hope things improve soon.

Love
Tom "Onwards and Upwards"

Hi Ted

Yep we have more men on here 😎
Sorry to hear you had to join this group 🙁 but its one of the best on line 🙂 as you already know we have a lot of folk in your position and in front so can answer you Q's .

As for me I am a (Young) 56 and am no 18 months post Stem Cell Transplant and doing good 😎

Dont worry about not having…[Read more]

Hi Gill & Stephen,

I have been following Stephen's progress forever… but with particular interest since he struggled to get to his 2nd SCT. Talking to others (mainly at our DayCase Unit) it seems that the 2nd SCT is often rougher (i.e. not as smooth) than the 1st and takes much longer to recover from. I hope this is the case with…[Read more]

How sad i was to find this post when i came on today. What an inspiration Gaye was to us all and what a courageous and brave lady.
I hope that she is at peace. I will miss her posts and it has made me feel so sad .
You will be missed by us all Gay RIP lovely lady
Gina
xxxx

Hi Sue really good to hear Michael is home at last and they have got that infection under control You must be sp pleased to have him home but I bet you are exhausted , no wonder you feel low after having the worry of Michael being ill and hospital visiting him. I hope that you can both relax a little now and please try and make some time for…[Read more]

Hi Carol
You are allowed a copy of all results,you do have to ask for them,I have most of Slims results,but some take a couple of weeks to get back as test are done in London,Leeds and Birmingham.
Any department in hospital can only give you result they deal with,computer does not allow them into anything not connected with there dept.
What…[Read more]